I went over to my mothers house last night at 6:00pm. Her door was locked as it usually is. I unlocked it and said hello. She kept saying hello, hello. I went in the living room and she wasn’t on the couch. I couldn’t see her.
I went in the hallway thinking she might have gone upstairs. I could hear her saying hello. I went in the living room and she was laying on her stomach on the floor next to the couch.
She was awake and alert. I called 911. They told me not to move her. The EMT’S would move her. I held her hand till they came. She was alert and conscious.
They took her to the hospital and I met her there. The doctor took off her sock and said her feet!! Her feet, the skin is falling off her feet. I told him she won’t let me bathe or soak her feet. She is suppose to go to the foot doctor on Saturday.
The doctor said when was the last time anyone saw her? I said I was there Sunday night and don’t know how long she had been laying there. I found her Tuesday night.
I explained how she takes call a bus once a week. She doesn’t want any help.,She won’t let me bathe her or wash her hair or change her clothes.
They did testing. She had a stroke on her right side and pneumonia in her right lung.
They will do a brain scan on her. She didn’t know what month it was. She didn’t know where she was. She told me to get married. I’ve been married 36 years. I can’t stop crying. I held her hand. I just got home from the hospital and will go back tomorrow.
I feel guilty for not finding her sooner. I should have gone over on Monday. I’m feeling overwhelmed with guilt.
For others reading this post, maybe it can be a wakeup call. Get the alert buttons and enforce elder to wear it. It's like any habit, it has to be reinforced over and over before it becomes the habit. I'm not saying the outcome in this particular situation would have absolutely been any different since a stroke was involved and the person may not be aware enough to push the button. However for a fall that didn't involve a potential mind altering event, it might be the difference between 30 minutes on the floor and several days.
Push the issue about hygiene even if it makes them mad. Remind them there is more involved than personal desire not to have help. Be very specific that if they land in the hospital the drs are going to question why a person was allowed to get in the shape they're in under the watch of children/family/friends. If they can no longer bathe alone, wash hair, handle personal hygiene, someone (family or hired person) will be coming to help them or make sure it gets done. Feet are a real issue for elderly. Get a podiatrist and make it a regular check up. If office visit a problem, call beauty shops in the area that may have folks who do house visits.
For the parent who is declining, to any degree, set up a daily phone schedule. If you visit in the home, you know when things are changing in abilities. Spend more time with the parent to see what really goes on at different times of the day. Spend a week at their house to see more of the big picture.
For many years, while my mom was still quite independent and doing well on her own, we talked each morning between 8-830 am, sometimes during the day, and every single night when she got into the bed. Had I not been able to reach her, I had several people I could call to go inside her house to check on her. It took some time to convince her to keep the alert button on her neck, but I did. It also had gps that I could look to see if she was with a sibling if she didn't answer during the day. (I lived about 200 miles away at that time). (I highly recommend Great Call 5 Star alert button). Daily contact is VERY important.
For the hard core, not gonna move, not gonna have help in my house - while they are still mentally alert start working on the inhome help when they need it. Explain you cannot knowingly let them live in a dangerous situation because they are being hardheaded. You need to do 'this' or you cannot live alone. Reiterate by saying I do not want to end up in jail when a judge says I allowed you to live in a bad situation. I'm not going to let you have the accident that will definitely happen if there is a way for me to prevent it.
My grandmother was the most independent woman I ever met. When neighbors called to say she was on the roof sweeping pine needles, we had a talk. Her motto was 'I want to wear out, not rust out'. So, without others around, we had the chat. If you continue to try to prove to yourself and others how tough you are, you're going to fall and end up in a bed rusting out. Not because you aren't strong, but because your body cannot take a fall now like it could have 50 years ago. Lots of anger on her face, but she caved and let me move the ladder to the outbuilding - agreed to call for help with climbing things. And she did. I let her tell others that she decided it was too dangerous and not planning to do the roof anymore.
My response is generally the same.
You wait for some catastrophic event that will force action. (if it is not to late)
"Action" is either in the form of getting help to come in or moving the loved one to a facility where they will be safe or into your home (sometimes you moving into theirs) All this after Rehab if that is part of the appropriate Plan of Care.
Part of all this is gaining the legal ability to "force" some of these actions into effect. this means a trip to an Elder Care Attorney (at least that is the best route) or other Attorney that can handle this type of thing.
No matter what has happened if your Loved One REFUSES help and care if you have no legal say they can go back to the way things were and the next crisis may be the last one.
You did nothing "wrong"
To everyone else if you do have an elder loved one, or one that is compromised in any way a DAILY check in is a good idea. (I have joked around that I will not change a light bulb unless someone is with me, I would hate to fall from a ladder and no one find me until it is to late.)
some of her confusion might be partly due to the stroke but some of it may be due to dehydration if she had not had anything to eat or drink for 48 hours.
good thing is you found her.
she was alert
and she is now getting the medical attention that she needs and probably would have refused previously. And now she may be more willing to accept the help that she needs.
((hugs)) to both of you.
Strokes that are clot-based can be reversed if caught within 3 hours of onset. Strokes caused by hemorrhages can not be reversed. You most likely would not have gotten there in time on Monday to have reversed the stroke.
Please continue to visit your mother and encourage her. The pneumonia and the stroke deficits can be scary and your calm, loving presence can really impact her recovery. When she is ready for rehab, please consider visiting her in a rehab center - residential facility where one lives and receives A LOT of physical therapy. She will need to work very hard to regain mobility and dexterity.
I’m so sorry HUGS
She doesn't have a cell phone or computer - she thinks they put out radiation or something, as if that would do anything to her at age 90 even if they did. We have tried to persuade her to get an alert necklace and she won't do that. She is secretive about her health and physical abilities, although she seems to be pretty spry when we visit her. Oh, she is also deaf as a post and either doesn't wear her hearing aids or they don't work.
Fortunately, there are neighbors who look out for her and could tell if something was wrong, but there is nothing we can do until a crisis hits.
Everybody feels guilty or at least has conflicting emotions when something happens to a parent. All those years of what we have been, or haven't been, to each other comes into play. Praying you will be at peace in your heart. It's obvious that you love and care for your mother. Don't let the docs make you feel guilty. Tell them to buzz off.
I just wanted you to know that I have been praying for Mom and you. We are with you in spirit during this challenging time. Take care of yourself too 🙏
Be near me in my time of weakness and pain; sustain me by your grace, that my strength and courage may not fail; heal me according to your will; and help me always to believe that what happens to me here is of little account if you hold me in eternal life, my Lord and my God. Amen.
He doesn't even know how to use his phone anymore.
Having the cameras made my life so much better without having to worry about my Dad.
I had one installed in his bathroom because that's a place which elderly fall and I have one in his bedroom and one mounted in the kitchen with shows me the Den area where he is most if the time in his recliner watching tv.
I can watch him from my Cell phone or computer and see what he's doing, saying and how the Caregivers are treating him.
You need to have the cameras installed before your mom is home from the Hospital.
The Dr would be able to tell you if your mom was dehydrated or not which would give an idea how long she was on the floor but happy you found her when you did.
Prayers for your mom's health and that she can go home asap as
she will be happier and healthier and recoop better at home where she's not stuck for blood, ect every 4 hrs.
I hope you are able to stay with her in her room at the Hospital, as I believe people in Hospitals need an advocate.
Prayers
My brother waited for his children and his grandchildren. It was the strangest thing. I swear he was at death’s door. The minute my niece and nephew and great nephews and great niece came in from out of town he perked up.
The hospice nurse heard him talking and laughing and she was so cute. She asked us if we were having a party in his room.
I told my niece and nephew that he was waiting for them. Shortly afterwards, he went into a coma. I am so glad that he got to see them before he died.
How is your son holding up? I know he visited his grandmother. This must be hard on him too.
Elaine,
The hospice nurse told me that my brother could hear me when he was in a coma during his final hours. I believe her.
At first I was skeptical but she said that people have come out of comas and told them about everything they saw and heard.
There is something you can do now.
Be by her side to comfort her.
Take mini-breaks and leave the room for short periods of time.
Talk to her, to say goodbye Mom.
Be hopeful that you will see her again someday, according to hers and your beliefs.
Is there a hospital chaplain?
This is the hardest time. We share it.
If the doctor at the hospital feels she shouldn’t be moved, they won’t move her.
She is getting morphine every 4 hours and she is calm.
They have easy listening on so she can hear it through the tv.
my brothEr will be here in 15 minutes.
Thank you everyone for your thoughts and prayers and well wishes and hugs and support.
I appreciate every one of you so much!!
Thank you for everything and being here for me.
Hugs to you all.
And remember, tears are God's holy water. They heal us as they flow.
Sending you a big bear hug and a prayer for peace during this difficult time. Know that we're all with you in spirit, my lovely friend.
Your mom is not in pain, which is huge.
Can you play your mom some of her favorite music on your phone? That's what SIL and I did when mom became unresponsive. They tell us that people can hear even when they are in comas.
Love you, Barbara