My mother is completely alone in life. Although she is not in a great amount of pain, she can no longer walk, dress herself or go to the bathroom. Her adult children are not in positions that they can stop working to look after her. Her care is approximately $10,000 a month out of pocket. No matter how "attractive" her surroundings are, living at this stage with no mobility is for the very wealthy, which she is not. It's clear that our society and the medical industry at large has not fully debated why we believe we should live as long as we can when in reality the cost and loneliness that accompanies a very long life is in reality a nightmare. My father and I worked diligently to make smart investments to weather whatever might come but there is no way that most working American's can actually afford the cost that is necessary to keep people alive when it's clear that they have lived much too long.
For the last 6 months, she has been in a facility that costs $11 K per month. I hope each day that she will quietly slip away in her sleep. There is very little pleasure left in her life and the exorbitant cost will take everything she hoped to leave for her grandchildren.
She is 97 now and who knows how long this dwindling will last. I have resolved in my own mind not to place this kind of burden on my own children.
I wish that my mom were so lucky. She has Parkinson’s disease.
Actually mom's health was great until 75, which kind of lines up with his description. After 75, mother just struggled & got more pills ect, but no quality of life was added by them..only delayed her pain & suffering for another 16.5 years.
By the end, she was nearly begging God to take her home.
Yeah, man's chemicals are really just making big pharma richer & people poorer.
Living to THIS level of old age is a nightmare, and I do not want to do it myself. So I won't. Plain and simple. I would never put my children or myself (or my husband) through the torture chamber and plan to have 'suicide pills' available for both of us, if necessary. A person needs to determine when enough is enough.
Don’t you wish everyone could live like that? She has no walker, no cane, dresses beautifully, she does not look 97! I think a lot of it is her attitude about life in general.
She’s a very caring woman who has buried two children, one daughter was only five years old, the other one was in her forties, heart attack.
She has never showed any bitterness. She lost her mom at a very young age, a baby and her dad abandoned her. He remarried and devoted his life to his new family and forgot about his other kids. Her brother was my godfather, sweet man. He died young. Her sister committed suicide.
She was raised by two old and mean aunts who told her she would never accomplish anything in her life because she was dumb and ugly. Of course she wasn’t either of them. Straight A student and moved far away after graduation and ended up working in DC. Met the love of her life and married.
My great aunts told her she was too ugly to find a man and marry. Crazy, huh?
My cousin always had a ‘Devil May care’ attitude and I swear I think she will make it to 100 and still be in good shape.
My husband’s great grandma lived just shy of 102. No medical issues. Died of natural causes, basically old age.
Quality of Life: Defined by the person and not by others. There's a lot of talking that needs to be done before we are faced with caregiving. Find out what quality of life means to your loved one. It may be less than what you think.
Living till we die: This is called the sanctity of life. I will make sure that my family knows what my quality of life needs to look like and strive for the best.
Taking care of our parents, siblings or other relative: It is an honor to care for someone. I am not saying it is easy. I'm not saying everyone is cut out for it. Just sometimes it's "tag your it."
Feeling like you have no life: Find a way. Figure out something. Anyone who is a caregiver needs to be able to feel like they are NOT hostages. If you don't find a way you will become resentful.
No one to help: Find an elderly program that may have social workers who know of services provided at low or no cost. You are not alone. We all need help, but we need to ask for it.
Having enough money: Maybe this is where a lot of the frustration stems from, not enough money. Long Term Care...why isn't Medicare changing with the census. Many baby boomers, yet; no insurance for Long Term Care (OK, well it costs money). Getting help even if it is temporary.
I feel for each and every one of you when I come to the site and read. I'm surely not the one to offer advise. I just wish I had found this site before my dad passed away.
I would give anything for him to still be here with me.
I don't usually hear anyone who is currently taking care of their parents and having burn out say anything close to that. Most of us would say we want our lives back. We are being forced by guilt or obligation to give up our lives for our parents to be here.
I'm going to plan better so my children won't have to be forced to take care of me.
I know I'm fortunate to have good genes (my grandmother lived to 92, still taking care of herself, and her sister lived to 102. I have four cousins in their mid 90's, still have bodies and minds working.)
My own plan is to stay active and keep going as long as possible.