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It is over 4 years since mother died. Due to our very difficult relationship, I did a lot of grieving before she passed and haven't needed to do that much since. So I don't think this is so much related to her as to my own aging. I am 85 and inevitably think about what lies ahead. The visual which is with me right now is the sight of the Hoyer type lift in the shower room mother had in her bedroom at her NH. I also had a friend who died of metastasized breast cancer who had a Hoyer lift in her house where she stayed, with help, till close to the end. I think it symbolizes for me the absolute helplessness that can happen to a person as they near the end of their life and I don't want that! Nobody does. Yet these devices are so very useful and help to make those last years and months better. Anyone identify?

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This is a long and interesting thread! What I noticed more than anything is that people talked about what they wanted toward the end of their lives. We have heard the expression “make plans and God laughs”. We don’t always get what we want. You could be hit by a car tomorrow or end us shot in a mall. There are practical things that can be done right now: eldercare lawyer, POA, Health care proxy and if you are older, perhaps a prepaid funeral. You can look into local facilities from adult daycare to nursing home long before you need them BUT you don’t know if you will be in right mind to choose when the time is right or to select physician assisted suicide. You can sign off on no extraordinary means to be kept alive now but spell that out. No feeding tube, no CPR for example but be specific- if there is no reasonable way I can return to a previous level of health. Certainly if you are doing well and suddenly need CPR, you might want it but if you are frail and elderly you might want to forgo it. These are discussions you need to have with relatives/friends you expect to survive you. There is a good book “Talking about Death won’t Kill you”Get a copy of 5 wishes.
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golden: I tend to be the polar opposite of my mother, who was a sugar coater. Also, she never questioned her physicians, especially specialists. Her retinologist destroyed her vision by way too many Lucentis injections. So poor was that physician AND staff that I witnessed and reported an associate speaking very inappropriately to an elderly patient.
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Two ways in which I am not going:
1) the hoyer lift
2) those traffic round-a-bouts
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I just came across this thread. Interesting conversation.

Since I hurt my foot 3 mths. ago I've found myself feeling really isolated because I'm not mobile. I find myself contemplating old age and all it entails. I must admit it scares me. The thought of feeling helpless and dependent on others. Even now, watching hubs go into stores while I wait in the car for him makes me feel really depressed. I watch elderly people limping around and think I'm I already there? My foot is healing very slowly. I'm scared it may never be normal. Walking is my form of exercise. What if I can't anymore? Take care of yourself people! The older you are, the slower it heals. Don't fall! Listen to Golden. Take your calcium and protein etc.

But flashbacks? Not really. I have a hard time letting my mind go back to those caregiving days. I think It's a form of avoidance. If I'd allowed myself to dwell on those times I think I would have spiraled into a dark place. So I deliberately don't go there. I miss my mom but just don't think about her much. I hope if she's watching from above she understands. I just can't.

To be honest I hope I die before I get that old. Sounds selfish I know but I just don't want to go there. My mom was so sad and I was so sad for her. I don't look forward to being in that place. I pray I die in my sleep while I'm still somewhat healthy.
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Regarding death with dignity, make sure you do your homework well in advance. I can't speak for other states, but I just looked this up for Washington State, and it has this written in there: "people with dementia are unable to qualify for the Death with Dignity Act because by the time they are eligible to receive a terminal diagnosis with a six-month prognosis, they are no longer deemed mentally competent."
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ConnieCaretaker Feb 2023
Michelle: the laws need to change so that people can include their wishes in their end-of life preparation papers.

https://leg.wa.gov/legislature/Pages/Bill2Law.aspx

Contact your legislators!
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I can understand your feelings about hoyer lifts! I sadly have watched my mom decline through stages of Alzheimers, and now needing a hoyer lift and wheelchair 24/7. She wouldn't listen her doctor's advice 25 years ago to lower cholesterol and blood pressure, refused to take medication, refused to lose weight, and exercise. She was angry because the doctor said she was overweight. She was fun-loving when I was in school, but later in life seemed to "pick" on certain people but not others, bicker with her boyfriend non-stop, not remember family gatherings, and became very negative, etc.

I recently learned from webinars and books, that dementia begins 15-20 years before diagnosis, and is caused by several factors coming together, not just genetics. Dr Dale Bredesen's recent books, Dr Daniel Amen, and Dr Joel Fuhrman books and websites have a lot of information on remaining mobile and functional throughout life through lifestyle and changing to thier recommendations for healthy diet.

Thinking about my mom's decline after being very sedentary, I try more than ever to stay active through the things I enjoy like gardening, and service work, and by exercising. While no one has all the answers, I keep being admonished to exercise and do strength training, and my friends say their kids also keep on them to exercise and do more to maintain strength also, lol. They want us to avoid long term care they say. Wow, do they have it right!

I am listening.
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Caregiving and watching a love one slowly become sicker and sicker is humbling. As we watch them progressively move to the final season of their life, we start to think about what it will be like for us. Death is inevitable and unavoidable. It’s a part of life that everyone must encounter regardless of whether we’re in great health or not. We are not in control as much as we’d like to believe. Our Creator determines when and how we will leave this life. So why sit around being depressed or dwelling on something that you have no control over. Enjoy your life NOW. If your deceased love one could come back to enjoy life, she would! Why worry about tomorrow. Tomorrow will have its own problems.
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Golden I have watch some hysterical YouTube videos. Some up and coming comedians have their own channels. I will see if I can find a couple.

Here is an extensive list I found by googling.

https://www.thefamouspeople.com/list-of-comedians.php

This is a favorite stand-up of mine.
https://m.youtube.com/watch?v=US7uFkpkNSk&fbclid=IwAR1f7wwNbBUcY_pNiJ16KVe5xhmgZHGKxzxK0HW4a51kvTQa6tDWbHIxYtU


And a channel I watch sometimes. Different comedians.
https://m.youtube.com/@DryBarComedy

https://m.youtube.com/watch?v=Vz4eDDjaIbM
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golden23 Feb 2023
Thanks, glad. I'll take a look at them. Unfortunately perhaps I have a "different" sense of humour. I need to look for British sit coms like Keeping Up Appearances or Dad's Army. They work for me.

Just found all the episodes of Dad's Army on Youtube. Should be good. James Herriot's book are humorous. I am into reading more than watching these days.
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A few points in answer of the posts below,

These are visuals mainly of my mother, and of my youngest son who died aged 23 many years ago. The emotions accompanying them have blunted though I will never be completely comfortable "seeing" my son on his death bed. I am not in distress when I "see" these images. But they are a reminder of difficult times in the past and, as others have mentioned, flash forwards to the future.

I think it only realistic when you are 85, which I am, to recognize that one's quality of life may decrease and prepare for it mentally, emotionally and financially,. Mother lived to 106 and there is longevity on both sides of my family.

I have always found it better to face difficult things head on. I am not worrying about my future. I have plans for my care and enough resources to carry them out. Fortunately Alberta foots most of the bill for nursing homes. Mother was in a new one, state of the art, her own room etc. and her carers were good. I could not wish for a better place for myself should I need it.

I am not one to take my own life but to each his or her own.

I do also get flashbacks to my childhood, the tension in the house, mother screaming etc. but again the feelings have blunted over time, thankfully.

I think going out into the woods and just leaving this world would be great.

Jesus is in my life and I trust Him and God's plan implicitly.

I totally agree with planning and looking after yourself as much as possible. I eat healthy, watch my weight, BP and blood sugar. I can do squats, and work on having as good a lifestyle as I can. I am in the process of downsizing the family home and moving to a condo with my sig other further south where the winters are shorter and there are more resources. I look forward to new opportunities there - gardening on and further developing a lot I have, meeting new people, getting involved in the ME/CFS Association there and so on. Dinner theatre!!!

No one wants to decline and become helpless. It is not a happy thought and not a thought to dwell on, I agree. Thankfully I have much more in my life than those thoughts. I appreciate everyone's feedback and experiences. Most of my friends have already passed so I don't have many to talk these things over with. Younger people have their own different issues and interests, which are also interesting to me. I do have one older lady I talk to and we laugh as we commiserate about the changes that come with age. It's great to be able to have fun over them.

One of my current goals is to bring more laughter and humour into my life. I have downloaded, some Bloom County, Calvin and Hobbes and Pogo cartoons to help with that. Still looking for more!

Have a great day, everyone and look after yourself!
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Absolutely.
To remember my loved one’s great life and allow myself and others to also experience that life.
I’ve channeled my pre-grief into action, such as saving pictures and comments from that person into a special folder on my PC, so that when the memorial time comes, and and everyone else can rejoice in a life we’ll lived.
I do this for my elderly in-laws, and myself as well.
I also do appropriate music and put those songs on a CD for the memorial service.
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This thread has inspired me to contact the Death with Dignity Org to inquire about tweaking the 6 months to die requirement to a definite date such as the decision to put someone in Memory Care: no Hoyer Lifts, Depends or lock downs for me.

After reading all the different ways memory care patients suffer and end up locked up, I'm really wanting a Mai Tai and a handful of Fentanyl.

P.S. For me, caretaker flashbacks are about witnessing the demise of a love one and realizing I, too, might find myself stuck in that reality. No, no, no!!!!!!!!!!!!
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Whether it’s a friend, relative, or partner, we sometimes find ourselves with someone who suddenly begins to experience the acute effects of trauma. This typically presents as sudden fear or panic, flashbacks, intrusive negative thoughts related to the trauma, or dissociative states where the person appears to “not really be there” anymore. Of course, these experiences may be frightening, confusing, and overwhelming for the person experiencing them, and they may also be for the person witnessing them as well. If you are in a relationship with someone who frequently experiences these symptoms in your presence, it may be beneficial and empowering to have a sense of what might be helpful for the person in that situation.
However, it is important to note that the purpose of this article is to highlight some quick and concrete strategies to help the person re-orient or “ground” during or after an acute trauma reaction, and it is not intended to imply that anyone in a personal relationship with another trauma survivor should take on the role of being an actual therapist. Think of the information in this article as a “first aid kit” for flashbacks – it’s to help you when you need it and should not be used in place of actual treatment from a trained professional.
Sudden difficulties communicating or responding
Person seems disoriented
Frozen, wide-eyed stare, clenched or fluttering eyes
Inability to make eye contact
Dysregulated, uncontrollable flood of emotions, such as crying, screaming, shaking (panic)
Calling out for help, repeatedly saying “no” or trying to run away
Curling into a fatal position or trying to hide
Seemingly unaware of or disconnected from the present
Making movements or gestures as if responding to something that is not really there.
Matilda
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When I read flashbacks, I think of PTSD. Would you like to share specifically what flashbacks from your late mother (sorry for your loss) and from your friend about the trauma the Hoyer lift reminds you that you are experiencing? Professional help is indicated to cope with these issues.
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I get them and my mother is still with here, being cared for by me.

The flashbacks that I get are from my growing-up years dealing with her screaming at me for minor infractions and saying mean things like "you walk around like dead flies are dropping off of you", and (when I didn't want to clean the toilet) "you're not too good to get your hands dirty". This from a woman who refused to clean the toilets.

DIdn't empty all 8 wastebaskets, vacuum the entire house, set the table and do the laundry before she walked in the door from work? Let the screaming commence, complete with the red face.

Any question that I asked her that she felt was too intrusive would also usually cause her to scream at me that it was none of my business.

Anyway, that voice - that tone - that scream triggers me and flashes me back to those days. Ugh.
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Lmkcbz Feb 2023
What does “dead flies dropping off you” even mean?! My fear is having to see my awful mother on the other side. She’s still here … but gets more awful by the day and I want to wash my hands of her forever!!!
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I'm 70, my mother died five years ago at 102. She was mobile, but watching the decline in my face for six years, knowing that I most likely will live long enough for a similar trajectory, was terrifying. I think it has motivated me to make a plan, think about what I want, and get the ducks lined up. Plan for the future, live in the moment. Sending well-wishes and hugs.
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Make sure you have a plan for yourself, in the case that you may not be able to care for yourself. You can do this with a living will, and by discussing your wishes with people you trust. It's good to set up powers of attorney for financial and medical matters for such a time, and also to have a will if you have assets (such as a house). Having all of your paperwork in order and preparing for the worst case scenario will help you feel more ready for whatever comes. Hopefully you'll never need it!
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AQUAINST1 Feb 2023
See my comment about Pre-preparing.
By doing this, it could help you dealing with the present.
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Oregon has assisted suicide and you don't need to be a resident to legally end your own life. When I get to that point I'm moving back to Oregon -- anywhere I need to go to make sure I can make that decision for myself. I have no kids and no family.

You aren't alone. It's insane that we humanely put animals to sleep but let humans linger and suffer. That isn't going to happen to me. I'm moving to Mexico for starters. No way am I aging and dying in this country and if I must...again...Oregon is where I will reside.
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ConnieCaretaker Feb 2023
Death with Dignity:

Ever since taking care of my mother who died from Lung Cancer (after having a decades long heart trouble), I read about Oregon's Death with Dignity program and the beautiful young lady who had brain cancer and decided to depart before the ravages consumed her................I knew that I would follow in her footsteps if a terminal disease would ever come to visit me.

Thankfully, we do not all need to move to Oregon, it is now available in multiple states and one of them is mine!

https://deathwithdignity.org/about/
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Yes. I took care of my mother for 11 years with constant changes for the worse plus her depression. My father wasn’t around as he committed suicide right after she became ill. I’m worried I’ll be alone to try to cope as my husband is older than I am. My children aren’t near and I’m getting worse with something new going wrong and more doctors
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I don’t have experience with the Hoyer lift but I sure can relate to what you are talking about. My mom is still around and I’m in my 60’s but as I watch my mother go through this, maybe not as gracefully, and go through my part myself I often find myself worrying about the future and my own aging health as well as my son who is an only child having to watch it. I am fortunate to have siblings I am close to and can share the caregiving and sometimes the emotions with, I know we are all having them so I try not to sadly my brothers with my own sadness even though I know it’s warped thinking, my son won’t have that. I see my grandmother as she aged in my mother more and more often which makes me think that’s probably me in the future and as I loose my mother as the mother that comforted me the sense of loss along with a distance from her emotionally, maybe out of self preservation, fills me with sadness of loss and the dread that I might put my son through that as well…

My mother used to say, I think it was while caring for my grandmother, that she was just going to go out in the woods during the winter, fall asleep under a tree and freeze to death (my mother has always been able to sleep anywhere, anytime), at the time I was horrified by this and fearful she would do it as she did suffer from depression. Now I understand exactly where she was coming from and I also understand that the problem with this is that by the time she was in the place she might have been talking about she wasn’t able to do it. I often find myself wondering lately if she is really happy or even content being alive, I’m not sure how to answer that. I know there can come a time when we are keeping our loved ones alive for ourselves not them but I’m not sure where that balance is. For now I know if we were to stop the interventions that help keep her quality of life she would die a slow and painful death full of more hospitalizations and interventions than she currently has so it’s clear, I do not want her to suffer any more than is necessary. I do think about what I would want for myself when making decisions for Mom but we have always been very much on the same page when it comes to that so I can but the separation gets harder and harder as we both age. So yes I do identify with what your saying. Mine are still flash forwards though rather than flashbacks.
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CG1000 Feb 2023
My parents moved in with my husband and me in early 2020. We lost my dad almost 1 1/2 years ago, with a great deal of trauma due to my siblings' behavior that I'm still struggling to process. His decline followed a predictable course, and he was ready to go, which was all that made it bearable.

It's been very difficult caring for my mom without him here; he could say one sentence when things were rough, that put things into the right perspective. We've lost those precious words and it's harder to keep a right attitude without them. Mom has so many health problems, and it seems like something new crops up about every week. Twice we've been told she was dying, and twice she miraculously hasn't. It seems like all we're doing now - all three of us - is just surviving.

But last Christmas Eve, as we sat in the living room with Christmas carols quietly playing and gazed at the lit Christmas tree, and my husband read the story of Jesus' birth from the Bible, and we warbled a few carols in our aged, off-key voices - Mom very quietly said, "I wouldn't want to be anywhere but here."

She obviously gets much better one-on-one care in our home than she could ever hope to receive in a nursing home, and she's very appreciative of our work on her behalf; but it looks to me like there's nothing for her to live for.

We rarely have the energy for fun anymore; there's too much work to do, and it takes all the energy we have. We had moved shortly before Mom and Dad moved in with us, so we have very few community connections and very few visitors other than hospice caregivers. It's mostly just us. Mom reads a lot of newspapers and cuddles her cat and does Bible study, spending most of her days alone in her room except for getting care and a little talking time with one or both of us. She usually feels too tired to go out to the living room.

But she accepts that this is all we can do. She smiles through her exhaustion and her pain and gives us her love and understanding.

I've talked to the hospice nurse a lot about this, wondering if our dedicated care is actually causing Mom to suffer longer. The nurse reminds me that nobody knows how much time Mom has left, and if we don't give her the best care we can, she may well develop health issues that don't kill her but make the rest of her life much worse. And if we actually are prolonging her life, there's nothing wrong with that. Like Dad, when she's ready to go, she'll go.

So I hang on to those words Mom said - "I wouldn't want to be anywhere but here." Although I don't understand how she can be happy here, I know she was speaking the truth. She is where she wants to be.

We now know up-close-and-personal, what nearing the end of life at an advanced age can be like. Like you, Lymie61, we "flash forward", and what we envision is our kids struggling to care for us. We want to go quickly without draining them. We willingly made the choice to do this for my parents, but we don't want our kids to have to do it for us. We know, of course, that we'll just have to accept whatever happens, regardless of what we may wish - hopefully as gracefully as my husband's parents did, my dad did, and my mom still is - if we reach that point where we can no longer care for ourselves.

I doubt that what I've written is going to help anybody. I think I just needed to say this. It's in my mind and heart every day, and it feels good to put it into words... It's just reality.
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If you have Jesus in your life remember he is with you. Give your worries to him and enjoy the blessings you have now.
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In my 70's now and overwatching the care for my soon-to-be 99 year old mom, I find that watching her age (gracefully at that) and understanding what's best to assist her, I'm actually learning how to age and planning for my own aging years.
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Anything can happen to a person regardless of their age. I watched my dad (2 yrs ago) & mom ( last Nov.) pass in ways that could have been avoided. Neither took ownership of their health and even tried to care better for themselves. My mom ended up being bedridden because she so loved her wheelchair and just became weaker.

Do the very best you can to be healthy mentally and physically. If you are getting weak ask your doctor to order physical therapy at your home every few months. At least you can learn some simple exercises and stretches.

Get in touch with old friends or make new friends. Socializing is so important. Go back to church if that interests you and join a ladies group that supports a charity. Great way to meet people.

Do you have any hobbies you used to love?

I wish this chapter of your life to be joyful and have peace!
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I'm 66 and I identify with you!
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I had flashbacks for many months after my husband died, but they began to be farther apart and eventually faded away. Your "flashbacks" sound more like your own fears about being similarly frail and in need of help yourself someday. Maybe you will be; maybe not. We don't usually get to choose, but we learn to adapt to each new stage of what we need for our own care. Try not to obsess too much over what might happen to your own health. Deal with conditions as they develop. They are often things you never expected or prepared for despite all your pre-worrying.
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I’m praying I die of anything other than dementia and that I am not helpless for very long. Although I took care of my mom, dad and husband while they were dying, I don’t want to live to a “ripe old age”. Unfortunately, I have a lot of longevity in my DNA.
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Caregiverstress Feb 2023
This is why I believe we need physician assisted suicide by advanced directive in the country. Let people decide for themselves, when they are in their right mind, what the point of no return is for them. Maybe it would be, “when I can no longer recognize my own family”, or “when it’s time to be put in memory care”. Then you put systems in place with checks and balances to protect that person’s wishes and against any unscrupulous family members. Maybe three different doctor’s have to agree they meet the persons own criteria and then a judge signs off on it. Then it can be carried out as any other medical procedure without the ALZ patient knowing what’s about to happen. Nobody should be forced to continue to live a miserable life. It’s quality, not quantity.

But…of course we all know that elder care is big business. They make millions off memory care units, and home health aides, and devices, and medication, all designed to keep people alive for as long as possible. My father’s doctor sends me notices to bring him in for COVID boosters, flu shots, to refill his blood pressure medication (which he refuses to take anyway), to get his heart checked. Why? He won’t go anyway. He wants nothing to do with doctors and I am done fighting him on it. If he ends up in the hospital with something, as his MDPOA my instructions will be to keep him comfortable and pain free and that’s it. No life saving measures, no treatments to prolong life, no let’s get him better and then send him to rehab, then skilled nursing, then if he survives all that, memory care. Nope. I won’t do that to him. I know my father and what he would want.

In fact if there was a way to get him to Switzerland, I would do it. Because this isn’t life.
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I definitely don’t want to live as long as my mother did.

It’s interesting to think about how some people live so long. Look at your mom, Golden! Geeeeeez, I can’t imagine.

My mom was shocked to live to 95. Her brother lived to be 96 and sadly, her sister died at 46. She had kidney disease.

My parents took in my cousins to raise as their own.

I have a cousin who just turned 100.
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golden23 Feb 2023
need - people who forecast these things say we will be living longer and longer. Apparently covid reversed that temporarily but longevity is on the rise again. More and more will be living to 100 and beyond. The trick is to be able to live well. It would have been a blessing if mother had passed at age 100 and escaped most of the dementia she developed. I think it pays to look after ones self as much as possible so as to stay in reasonably good shape or those extra years will be pretty miserable. It looks like there is longevity in your family.
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cw,

I agree that life teaches us lessons. We learn what works and what doesn’t work.
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Flashbacks? I don't think I would characterize it as that but I do have thoughts of my own aging and mortality and can picture myself lying helpless in bed or in a wheelchair as my mother was. I've always believed life teaches us the lessons we are supposed to learn so perhaps going through all that was preparing me for that kind of future?
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gladimhere Feb 2023
That is where I am as well, CW. Even now, because I live alone, if I were to have a stroke or heart attack, I wonder how long I would lay there before someone would realize we haven't heard from mom and we can't get a hold of her.

And I want to go before my brain does! Do not let me go where mom was!

I have memories of the sadness of losing my mom, but wouldn't call them flashbacks.
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Flashbacks are exactly how to describe what we experience at times.

I don’t consciously dwell on the difficulties of my past. I subconsciously learned to block out my feelings when I was young to protect myself.

Plus, I grew up in a ‘hush hush’ generation. No one spoke openly about issues. We were instructed to keep quiet. Now, there are tons of support groups. A long time ago there weren’t any.

I suppressed a lot of emotions in my youth. In the long run, this doesn’t usually work. My therapist explained this to me.

Suppression only works for so long and then something triggers an occurrence and our emotions and memories rise to the surface.

So, we have to address our issues. We don’t ‘get over it.’ We work through our issues and it takes time. Rarely, does it happen overnight.

I have flashbacks if there is a trigger. It can be something really small like a certain song playing, food, certain phrases that people say, etc.

A friend of mine who had an awful time with her mom said that she cannot be around anything that is ‘rose’ scented. Her mother loved rose scented cologne, soaps, etc. She detests smelling it because it brings back horrible memories.
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golden23 Feb 2023
You are right that suppression doesn't work and that triggers can be anything, anywhere, anytime. Your therapist was a good one obviously and you worked with them. I'm older than you and there was no therapy in those days. Once one of my children asked why we didn't have therapy for my mother. The answer "There wasn't any".
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@ snoopy - we can direct our thoughts and replace the painful ones with pleasant ones. It takes some persistence but it can be done. 😊
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