My Mom (who is 74) is my Dad’s primary full time caregiver (Dad is now 81 with very limited mobility). As my Mom is now getting older herself, the situation is becoming more challenging. Both prefer to remain in their own home at the moment and we do not have the means to hire 24 hour assistance. We have however tried to hire part time caregivers to help take some of the load off of my Mom. According to the service providers, this falls under Respite Care. But none of these Respite Care Caregivers will do anything? They bring homework, work from other jobs, books or stare at their phones 90-95% of the time. We have given clear instructions, leave lists have spoken to the companies they are hired through. And every time, it is the same thing.
We’ve made it clear to the Caregiving service that my Mom (the Caregiver herself) is at a point where she needs more hands on assistance. And we do not simply need someone to watch or just give companionship to my Dad. My Mom gives each caregiver a rundown about my Dad’s morning routine (feeding, cleaning, etc) and then gives them a few other things that are falling behind that she needs help with (maybe putting some dishes away, or a little laundry from my Dad’s bedding) - and every time she walks back in the room and the caregiver will have set themselves up at the dining room table doing homework or will be reading a book and not attending to anything she’s asked. Is this a thing??
We’ve tried 4-5 services and are very honest and clear about the level of care required along with our needs and past experiences. We are repeatedly reassured by each new company that, “their caregivers would never do that and if they did, we should let them know immediately.”
Sigh, 3 caregivers in at the new service and 2 out of 3 all but refuse to do anything. One last week was even hostile and yelled at my poor Mom. For the record, my Mom is really easy going. But by now, even she is completely frustrated with this whole situation. After last weeks caregiver was so rude to my Mom, we called and spoke to our representative from the company. She was extremely apologetic and reassured us nothing my Mom had asked was out of the norm. She even stated that each caregiver is texted a list of duties to be expected at each job, and that she had compiled the “to do list” that is then texted to each caregiver prior to arriving at my parents house.
Is the term Respite Care giving these Caregivers the idea they just need to physically “be there” to give my Mom a break, rather than actually taking her place for those hours? Do most Caregivers bring their own personal work to do while caring for clients? Is this a known thing? This is not giving my poor Mom any reprieve…it is now adding more to her stress level!
I’m at a loss and feeling hopeless! Anyone else going through this?
Any insight from professional Caregivers is definitely welcome as well! Thanks
Unless there is a significantly lower rate for "respite care" I would ditch that and go with something more specific - for example bath care, or whatever it is your mom need help with.
About a month ago, I bought one of those Traeger Timberline grill/smokers. Had not even used it yet, put it through the initial heat cycle, thats it. Came home from work, Sat before tax season ended, exhausted and the worker was bbqing ribs and sides for her family started it at her 8 am shift and slow cooked it all day. I was so angry. Made dinner, on stove and she told me her client preferred to "be served at 6:30 pm." I was livid. The normal lady just steals Keurig, tp and paper towel. Thats only the last month.
The agencies lie and if you complain too much, they will say you are difficult and wont send staff. Pick your battles and get a housekeeper to help mom with chores.
We’ve been going through this cycle for about a year and a half now, if you do manage to find a decent one…they quickly get another job doing something else.
We also have a housekeeper that comes weekly for cleaning. But with daily soiled bedding and clothing, this stuff piles up quickly. I just don’t understand how a caregiver expects to get paid to do their own personal schoolwork or whatever rather than the things they have been hired to do. If I did that at my job, I would promptly be fired!
At this point, I’m not seeing the point in evening hiring them. It still all falls on my Mom and now she’s stressed and irritated on top of it all!
It seems like complaining to management hasn’t helped you very much. That’s a shame.
I think it is useful to complain if the organization is managed well. A good manager wants to know of any issues that arise and resolves them. A poor manager simply won’t care and will do nothing to fix the issue.
By complaining with an organization that cares, not only will your problem be resolved but you will be doing others a service by preventing that agency to send a caregiver that isn’t following procedures to future clients.
For me, personally, I want to be fair and give people a chance to correct a problem. If someone squares any issues, I let it go. If issues continue, then there is a bigger problem and I would bid farewell to them.
It also depends on finances. Some people can afford to pay a private caregiver for their services and they write up a specific contract. This should be prepared legally. I would not ever pay someone under the table like some do. That isn’t good for a variety of reasons. Consider everything. With an agency, if one caregiver can’t show up, they will send out a replacement.
You could consider paying for a housekeeper and separate caregiver for specific needs if your budget allows for this.
I had a caregiver that wanted to help me when she was finished with helping mom. It was very sweet of her but I told her that I didn’t expect her to do extra. I happened to be mopping my kitchen at the time and she offered to do it. Her organization specifically told me that she was only required to tidy up my mom’s room and care for mom’s needs, bathing her, helping her dress, preparing a light meal or snack. I cook so I never asked her to cook but she did serve mom her meal. Mom enjoyed when her caregiver shared a meal, a cup of coffee and a snack with her. I always made extra food for the caregiver to have a meal too.
I do hope that you are able to find suitable help soon. Wishing you all the best for you and your parents.
Your mother is communicating her wants to the agency. The agency is communicating those in the form of tasks within the support plan to its workers. The workers... are not hearing, not complying, not agreeing..?
Your mother reports the failure to the agency. The agency hears the report and promises to act on it. And then..?
But I am also interested in "picture the scene." Worker arrives, briefed via the support plan which s/he should get in skeleton form with the day's rota, and then in more detail on the client's premises. Yes so far?
So this particular Wednesday, mother greets the worker and says: "today Mr Client would like to shower and shave. He would like oatmeal for his breakfast. I will give his medications. Once he is dressed and settled in his riser recliner he will probably need a nap, so if you could then help me change the bedsheets that would be much appreciated."
And the worker responds by..?
What should happen is that the worker first Reads The Support Plan. I personally take a blank Daily Records sheet and bullet point the support plan directly onto it, but that's because I do love a checklist. Last Sunday morning this led to my marching into the client's bedroom and demanding (kindly, not fiercely) to know why the client's wife was stripping his bed without assistance - "It says here," I said, tapping the folder with my pen and looking at her over my glasses - but the rule is that if she's happy, you're happy and she'd pretty much finished the job.
Anyway. So, worker reads Support Plan. Has your mother read it? What does it say?
Let's assume it says something like: "if time allows, please support domestic tasks including laundry, garbage disposal and tidying client's living areas e.g. bedroom, bathroom, day room."
So the worker knows this, and your mother knows this, and your mother comes into the room after an hour or so and finds your Dad asleep in his chair and the worker engaged in online training on her laptop. And your mother says..?
Now. I am only guessing. But my guess is that your mother finds it much easier to do the tasks herself than to say "Oi Mush!" to a strapping lass with a sulky expression, and possibly also finds it preferable to put her own dishes away than to leave this job to said strapping lass with the ham-fisted approach to porcelain.
There is an awkward phase during which workers coming in to the home seem to cause more trouble than they save. The first time you visit a person's home, you don't even know where the light switch is, let alone how they like their coffee, how dark they like their toast, whether they tuck their t-shirt in or prefer it hanging out; whether they store their mugs on their rims or their bottoms. I got my head bitten off for picking up and folding a damp towel - "I WISH you wouldn't do that!" snapped the client. I froze and delicately attempted to put the towel back exactly as she'd left it on the bathroom floor, then realised it must look as if I was taking the mickey and blushed - there is no winning with some people.
Now. There is no reason on earth why your poor mother should be expected to be a trainer in household management, and at this most stressful time in her life also find the energy and patience to engage with workers in teaching them their job. But that, to a greater or lesser extent depending on the individual worker's attitude and life skills, is the trick of it.
So, now then, hand on heart, do you think your mother is communicating directly and openly with the people who are actually standing in her house?
What we didn't realize at the time because they had just started with the 3x a week as the bath aides at the same time - was that FIL was not allowing them to come into the bathroom with him. WTH? They weren't going in with him because he said he didn't need them. They aren't really 'allowed' to do more than the client or the client's proxy directly ask/tell them they need done? (apparently, we had no idea) So we fixed that really quick. FIL injured himself getting into the bath and we put our foot (feet? LOL) down immediately and said that they would be in the bathroom with him at all times and gave them a list of things that HE needed their assistance with before, during and after the bath. Ever since then, those things have been occurring. He didn't want them in the bathroom, he was embarrassed, but what was the point of having bath aides that weren't assisting him to bathe?
I don't know about other agencies, but at least with this particular group, as long as we tell them exactly what tasks we need done, they are doing it. If we don't give them specific tasks, they will sit and keep him company or wait on instructions.
I've been an in-home senior caregiver for almost 25 years. I stopped working for agencies and went private cases only a long time ago.
You're not going to get experienced caregivers who know how to handle this kind of work from some agency paying minimum wage. Also, agencies lie to their caregivers. I know this from experience. Pretty much every case a homecare aide gets sent to is described as living in an immaculately clean house for some sweet, little old lady and all you have to do is have tea with her. Or some cool old-timer who just wants someone to watch a ballgame with. That's what agency help gets told. That's never what it actually is. Homecare agencies will pretty much hire anyone too. What they collect in payment is not what the worker gets. The caregiver usually gets minimum with no benefits. Clients aren't going to get much from that worker. Hire privately. If you're paying out-of-pocket for agency help, pay that to a private caregiver and you'll get good results.
I was lucky to be able to hire a trained CNA for my Mom and she was wonderful!! Cooked for Mom, served lunch, took her for walks and rides... varnished my kitchen cabinets ( in spite of my protestations). As I said I was lucky and this woman had the work ethnic of a saint.
There are lots of reasons to go with agency personnel including the ease of payment, the coverage for liability and the fact that the agency will at least attempt to get a replacement if the caregiver has an unplanned emergency. However, as been pointed out they tend to hire at min wage (which isn't going to get you a lot these days when Amazon is paying 18 an hour) so the caregiver may only see $12 of the $20/hr you pay the agency. Sounds like the agencies you have dealt with are hiring students to be bad adult babysitters and that is not what you want.
If you have tried 4-5 agencies, perhaps it is time to try, as has been suggested, a private duty person from one of the care site on the internet. There is a person who posts here who works private duty and I am sure she can give you the names of some reputable sites.
I wish you and your family luck and peace on this journey.
But not before I asked the person, and the company, why it was this way. "Well she was asleep and..." the person said. This was before I pointed to the sink full of dishes they could have put in the dishwasher. I asked for a refund of services, which I got, so that I could be paid to load the dishwasher.
I've found it takes several tries, and time we don't have, to find a caregiver that "clicks" and gets along with our elders. We eventually found one that actually went on to become a family friend, but not without moments of great anxiety and angst. She went on to get a different job otherwise I'd call upon her again. Some people love this kind of work. Some people need it to pay their bills. It takes time before you find the former, and go thru hell dealing with the latter.
Best wishes.
IF a person is going to hire an independent contractor, do the following:
1) ask for references (family of client and the person they worked with)
2) Ask them to get TB test (at their expense)
3) Ask them to get fingerprinted (at their expense)
4) Verify work references. (Don't just ask for them.)
5) Ask for personal / character references.
Anyone can offer to care for an elder. You must do your part / due diligence to insure the person you hire is, frankly not a criminal and is honest and has the integrity you are looking for. If you do not do your part, you will be responsible for the outcome.
* I've been working in the field for 'more officially' over 8 years, primarily at one retirement community where I contract with individual residents.
All care providers at this retirement home MUST be vetted through the retirement home:
1) show personal and work references / work history
2) Out of my $ pocket:
- yearly TB tests
- FBI finger print(ing)
Provide copy of car insurance
3) Weekly Covid test and proof
This SHOULD BE standard for any independent hire.
Hopefully, it is what an agency requires before they hire on caregivers.
Gena / Touch Matters
A certified nurse's assistant (CNA) does hands-on care.
There is a difference, and hiring a CNA costs a lot more because they do a lot more.
If you hire someone off the street, realize the liability if they claim to get injured in your home they can sue your estate. If they earn a certain amount you become their legal employer and you are responsible for their taxes "Nanny Tax".
Read more about the Nanny Tax here: https://www.investopedia.com/terms/n/nanny-tax.asp
Be aware some companies like "Granny Nannies" do not insure their workers, and they also do not take out their worker's taxes. That is why they cost a lot less.
Whatever agency used, MAKE CERTAIN and see it in WRITING the workers are covered by Workman's Compensation.
Here is an example where Granny Nannies was sued as one of their caregivers allegedly bilked $140,000 from a 92 year old.
https://www.businesstrialgroup.com/news/btg-sues-granny-nannies/
Around the clock care is VERY expensive. That is why Medicaid only pays for nursing homes; they average about $85,000 to $95,000 a year per patient for all their services, and that is a LOT cheaper than home care.
I have been for over 10 years and have helped with 7 families.
Ditch the agencies and interview people on your own
Gold luck
You, as the hiring party, may be required to pay taxes.
This is absolutely NO excuse for hiring through an agency that provides inadequate caregivers.
I know what it's like hiring someone to come take care of your loved one. I've hired private and through agencies.
Good experience all around thank God.
I shared with the CG that there is a surveillance camera in the house and left a checklist to complete. I was successful with this method.
I now own a on call companion and funeral design service to meet the needs of Loneliness and home going preparation.
The last stages of life should be full of Fun not stressing out all the time. However we can make if happen within the scope of what's in front of us.
We review the contract and if that's not the services needed life moves on.😇
Pray about everything and rejoice in all things.
Youll find that person that fits your needs.
Life really is short.
Love in Christ..👑
sounds like your mom needs a caregiver, not respite care. they do background checks and you can even do payroll through them. You will need to invest some time interviewing the candidate and contacting their referrals.
Its important to share what your expectations are right up front.
also, if you have a college near by that has a nursing program you maybe able to hire a student to help, check with the college to see if they have a program like that.
best of luck and prayers for you and your family as you struggle to find the right fit.
btw, where do your parents live?
If you want more hands-on physical or medical care, you might need a CNA or even a nurse. You will pay quite a bit more.for these services.
Have you tried putting your parents into respite care at a local Assisted Living/Senior facility. I know many of them offer a week or sometimes more care. It not only gives them a chance to see what these facilities are like, but actually gives you and your mother a complete break from caring for them. You can arrange for them both to have care together. They will also be included in the activities and meals with other residents. That would provide a form of interaction that they don't have in their own home, but Might prove helpful.
If that is not a possibility - Keep looking, There are services that do provide what you need for help. Perhaps what you really need is to hire a good housekeeping service to take care of the chores that are becoming too much for Mom.
Good luck and God Bless.
Unbelievable!! As a professional caregiver myself, what you have experienced, is appalling!!
Your lists, are standard ADL’s (Activities of Daily Living).
Do you have a company called “Home Care Assistance” in your area. That’s who I work for. Try them?
If they lived in your area, I would be over, in a heartbeat!!
I have no answers, other than keep trying other companies & fire the “caregivers” that don’t do anything.
Best of luck.
Does your mom need help with care activities for your dad? Showering, toileting, etc? If not, what about hiring a housekeeper that does laundry and cleans the house? Maybe shorten the shift for caregiver needs?
I'm doing a 4 hour caregiver shift (which is not an agency) this summer. My duties are specified; meals, laundry, bed-making, showering assistance, housekeeping, etc. I teach so I'm off during the summer which is why I'm caregiving right now.
Not sure if this helps, but your frustrations are felt by many. You're not alone. My sister keeps insisting that the caregivers do their job. The agency finally sent one of their best, which was wonderful. My dad was happier when the food improved.
Good luck.
You might even order lunch or Dinner a few times a week.
Start buying microwaveable meals, easy to fix and not much clean up.
Order groceries delivered.
Mare sure when you have a Caregiver there, at least once a week treat yourself, take a nice soak in the tub, go out to eat with a friend, get a massage, get a manicure or pedi
RUN THE VACUUM THE CARPET IN ALL THE ROOMS THAT ARE BEING USED, MAYBE WET MOP THE KITCHEN AND BATHROOM FLOORS, CLEAN THE BATHROOM SINK AND SWISH THE TOILET BOWL WITH THE BRUSH, WASH ANY DIRTY DISHES LEFT FROM THE PREVIOUS MEAL, CHECK ON THE PATIENT EVERY HOUR, OFFER THEM SOMETHING TO DRINK, OR MAYBE FIX THEM A SNACK, ASSIST THEM WITH THEIR FOOD, ASSIST THEM, IF NEEDED, TO THE BATHROOM, WASH THEIR BACK BECAUSE OLD PEOPLE ARE NOT ABLE TO DO THAT.
IF THE RESPITE CARE PEOPLE ARE NOT DOING ANYTHING BUT SITTING, THEY NEED TO BE WARNED PERSONALLY THAT THEY WILL BE FIRED FOR NOT COMPLYING.
YOU NEED TO COMPLAIN TO THE INSURANCE PROVIDER, IF HER MEDICAID OR MEDICARE IS HELPING TO PAY FOR THIS SERVICE. IF YOU ARE A PRIVATE PAY FOR THE CAREGIVER SERVICE, THEN CHECK ON CHRISTIAN CAREGIVER SERVICES.
Some people don't have warm personalities and they're not overly friendly. That doesn't mean they don't care and won't do right by a person.
I'm not a warm and friendly type myself. I've always gotten along with most of the senior clients I work for. Once I've been with them for a while, the clients and their families know they can trust and depend on me. They don't have to worry when their elderly loved one is in my care.
Peace of mind is worth more than some aide saying hello to a person when she walks by.
The first priority is the client, greeting them, feeding them, doing some laundry, cleaning up after making them their meal. If the floor needs swept that is part of the job, some vacuuming if needed, wipe down counters, wash, and put away dishes. Play cards, puzzles, take groc shopping, or for short ride to just get out. Mostly to be a companion to the person being hired for. If working a night shift some allow you to sleep and check up on client, or not, in that case might be acceptible to bring a book if accepted to stay awake while client is sleeping. Taking short walks, in neighborhood or backyard is something to do with person. making sure they have a snack and meal from when you leave, and date food. Sometimes clean out the fridge of old leftovers. Caregivers should not be bringing over homework, other clients work, be on the phone for long period of time, in fact only if absolutely necessary. I can't believe you are having trouble with so many of the Caregivers. The women i work with are loyal, dedicated, and willing to go the extra mile, they really spend time trying to improve the clients day. Maybe tell your mom to make it clear what she needs done, to leave for a break or errands. Sorry you are having a bad time. Please don't let this go on much longer. Bonnie
It depends on what the care assignment is. If a person is on a case that's say four hours and there's really only two hours worth of work and entertainment, what's the worker supposed to do?
Everyone hiring in-home help should make a list of exactly what they want then discuss it with the worker to see if it's within their job description. Also include whatever places they may take the client to, if the client can still be taken out.
This is so very rarely something a caregiver/companion ever gets when they take an assignment. The care agencies they work for normally don't bother with this either.
Back before I went into business for myself, I worked for care agencies. They'd assign me a client and I'd go to their home. I can't tell you how many clients and their families expected full housekeeping (for everyone living in the house) including heavy chore duty, along with hands-on care for their senior while keeping them entertained at the same time. This happens all the time because families are not properly informed on what to expect from a caregiver and caregivers are not informed on what their actual duties are.
In private care the pay is good. Clients will get a lot more of 'going the extra mile' for them because the extra mile is paid for.
Care agencies don't pay well. If the help is paid minimum clients and families should not be surprised if they get minimum effort from a worker.
On my last long-term care assignment, the couple had Visiting Angels before they hired me privately. Visiting Angels is the reason why they hired private care.
Not only did their "angels" rob these poor people blind, they also really neglected the client they were supposed to be caring for.
She used a walker and one of the angels was taking her for a walk outside. The dementia client with mobility issues was on her walker 20 feet in front of the angel, while the angel walked along looking at her phone screen. The client was seriously injured because she fell. Then Visiting Angels were fired.