My cousin had the most mellow, easy to care for elderly mother (her father passed at a young age many years ago). Her mother rarely complained about anything, and whatever my friend wanted to help her with, such as taking showers, cleaning the house, hiring outside help when needed, etc, her mother would gladly accept the help. And her mother always expressed gratitude for her daughter's help. She also never played mind games with her daughter, was never manipulative or controlling, and never tried to make her feel guilty about doing enough, or about going out to spend a couple of hours with a friend. Her mother was always good-natured, had a positive outlook, and was always smiling and laughing.
Furthermore, my cousin has a sister and a brother who live nearby, and did their part to help with their mother.
Have you ever heard of such an IDEAL care-giving situation?? Of course, I certainly don't begrudge my cousin for having such a wonderful mother! But as I struggle beneath this enormous burden as a caregiver to my difficult parents who are in their 90's, I also struggle with feelings of envy and resentment. I'm ashamed to have such feelings, but it's so hard not to, when my parents are both driving me over the edge of insanity. I love parents, and they have been very good to me through the years, for which I am so grateful, but on the other hand, my mother has a "Jekyll & Hyde" personality, as she has what I believe to be Borderline Personality Disorder, which has caused a tremendous amount of turmoil and anguish for me and the family, and my father is wonderful, but tends to be obsessive-compulsive, which drives me crazy. And I get almost no help from my sister.
From everything I'm reading here in this group and elsewhere online, it seems that the vast majority of elderly parents are very difficult to care for, and getting help from siblings is a very common problem, too. But have you ever come across easy-going elderly people, or are they truly a RARITY? What percentage of elders, would you say, is difficult versus easy to care for?
When I read of the difficulties many caretakers have, I realize how lucky i was. Those who have easier caretaking situations are surely out there, but are less likely to turn to a forum for help so you don't get to hear their stories.
I understand you might be envious of another's good fortune because you are comparing it to your bad fortune. People are who they are and the personality gets even intensified as they age. Positive or negative traits. So my lesson learned was to look inward at myself. Where do I see any negative traits and begin to work on them. Remember too with dementia, the filter goes away.
Just yesterday I was allowed to see my dad outside his nursing home for the first time since lockdown. His first words to me?..."I almost hate you". Now yes they were hurtful, but I know who he is, I know his filter is gone and his dementia is really late stage. So I brushed it off. Easier to do when they don’t live with you, of course. Wishing for him to be different serves no purpose for me.
There is a great book I often recommend and it covers the basic personality disorders you mentioned. I advise you to buy it and read. It’s a thin book with good insights and tips. Written by a psychologist who counsels adult children of parents like ours. It’s by Dr. Paul Chafetz title is "Loving hard to laugh parents; a handbook for adult children of difficult older parents"
It's ok to wish for a better situation, but don’t dwell on it. Accept what you have and realize what you can change is only you...and not them.
My father with lifelong paranoid personality disorder only made worse by progressing vascular dementia was a very difficult person to deal with and provide with care. Ended up gaining guardianship and forcing him into MC which he adapted to and mostly enjoyed (according to my cousins), although he never admitted it to me.
I imagine your cousin's experiences are not quite as easy as you believe. I endure the painful exchanges when my mother pleads she must go help her mother but I don't really talk to others about those spells or how difficult I find them. I was in the kitchen last week and away from the intercom when my mother called for her sister and her 5 year old great-grandson picked up the intercom and repeated a version of what he has heard "Grandma, A isn't here, can I help you with something?"
As far as getting help from your sister, have you asked for her help? I have a brother who doesn't offer to help and I have never asked him for direct care, but every time I have asked for him to pick up something we need (groceries, lotion, packages, food orders, home project supplies, etc.) or do something like nail shingles on the ramp so it's not slick when covered in frost and rain, he does it without objection. When I ask him to stay with Mom so I can go somewhere or even just sleep, he's there. He's not an organizer and doesn't see care needs as well as I do and he won't retire till the end of the year so he doesn't have as much time to care for Mom, but he is supportive. Maybe your sister would be willing to help with some of your parents' household chores or do some shopping even if she is not willing to provide personal care?
I also have a sibling who doesn't want to be involved in anyway except as a disruptor and to lay down the criticism. If your sister is silent, then you are so much better off than having a disruptive sibling.
Please consider caring for your parents does not mean you personally providing all their care. If they have the resources, please consider hiring some in home help or using delivery services for as much shopping as is practical. If resources are more limited, please check with your parents' PCP about Medicare provided bathing and personal care assistance and with their county's Area Agency on Aging about community Medicaid (which is usually only based on income) about respite care and other services.
I chose to help my parents. I chose to move my mother into my home. Some days it would be nice to have siblings share responsibility for their care or have more help from extended family instead of the second guessing my care decisions. You cannot make life choices for other people. Because I chose to be here doesn't mean they have any obligation to make the same choice. I accept that and move on because getting angry about it isn't helpful. I hope you can find a similar peace.
Take care of YOU
It is very, very important that you keep your own sanity intact! I have found that if I take one day a week to be parent-free it really helps rejuvenate me. I make sure my siblings know, and even though they are hours away at least they can call and talk to Mom (old and frightened) and Dad (Alzheimer's).
You tube has tons of relaxation breathing videos, guided meditations etc. These help! Really.
Write down your angry/resentful thoughts. It's normal to feel this way! Acknowledge the thought by writing it, even if you are jotting a sentence on the back of an envelope to get the feelings out.
Also, set boundaries.
Especially on those Jekyll and Hyde days. If she is being rough on you its OK to say, gently," Y'know Mom, that hurts when you say that. I'm doing my best." Then, change the subject. Or, if she isn't very cognitively impaired, whenever she gets mean, just leave. Either the room, the house. or just the conversation.
If Dad's OCD behaviours are getting to you, distance yourself from them as much as possible. Don't watch.
My Mom was texting me at all hours of the day and night. Things like "I just heard the most beautiful concerto on the radio" or "Did you see Bob's funny post on facebook. His dog is so cute". I am so tuned into the phone in case there is an emergency that I hear every text notification, and text back that I am in bed. I finally had to be very blunt and tell Mom not to text between 10 pm and 9 am unless it is an emergency.
I hope some of this is helpful. Remember, you are a GOOD DAUGHTER! Maybe a tired one, but a GOOD DAUGHTER!!!!!!
Put yourself in her place. How happy would you be if you had her disabilities? The fact that I understand and sympathize does not make it much easier when she wants things her own way, the way it used to work, rather than what is easier for my sisters and me.
If we make meals for her they usually end up in the trash because they are not made the way she used to do it, even though she can no longer stand long enough to prepare her own food. Other examples abound.
To others she may appear to be as sweet and kind as she always was. To us, her daughters, she serves as a reminder of what we never want to become and what we promise ourselves we will never do to our children. We do understand her frustrations, but that doesn't make it easier. It also doesn't help that some of her disabilities are the result of her own willfulness: her vision can't be corrected because she would not eat right and her diabetes can no longer be controlled; she can't hear because she won't wear her hearing aids; she can't walk because she refused knee replacement surgery when it was possible, now it is not possible.
We will probably also be a trial to our children, as our disabilities overtake us, but I hope the trials they will experience are less burdensome.
I sincerely doubt that the compliant, uncomplaining elders are in the majority. Most of us are not compliant and uncomplaining in any part of our lives. Success does not come to those who smilingly accept whatever comes their way but, rather, to those who meet challenges head on and refuse to accept mediocrity. Our lives do not train us to be compliant, but to fight against the odds, to try to overcome difficulties, and to achieve our dreams. Those attitudes are great in your youth and middle age. I find them great in my late 60's as I work in my gardens and make my home the place of my dreams. Will those attitudes make it easy for my children to tell me what to do in my 80's and 90's? Maybe not.
I am writing myself letters to read in later years in hopes that I can be easier on my children than my mother is on her children and I hope that I will read them and pay attention to my younger self. I am also cultivating interests and skills that require less physical effort like needlework, computer-generated art forms, digital photography, and other fun but easy things. Nevertheless, I cannot be sure that I will not want to cling to my own way of doing things. I hope that I will listen to my children when they tell me that I am not coping as well as I will want to think that I am, but I cannot be sure of that.
In the meantime, I try to give my mom the patience she has mostly lost. While we struggle to cope with the reality that she refuses to acknowledge my sisters and I try to remember the times when all that stubborn refusal to give in to anything helped to put food on the table in tough times, keep the home we lived in as nice as she possibly could even when she had little to work with, and made her stand up for her friends when they needed her.
Just a thought .
personality does *tend* to be consistent, but dementia change things. Also the elderly are often grieving losses of their friends, their health, their importance, their abilities.
I’m remembering so many Disney stories where an elderly curmudgeon Is reawakened to joy, often by kids who they first think are annoying.
many elderly mellow. Others become isolated and hostile.
She did everything I asked, never complained, followed all instructions and was truly a piece of cake to care for. Dementia stole her ability to converse much, other than the usual dementia questions: What day is it? Where am I going? What do I do? So we could not share memories, experiences, etc, but she remained easy-going until the day she died.
I attended caregiver support groups and heard the challenges most caregivers are experiencing. My caregiver job tied up my time and there were certainly a few moments of frustration, but I now realize that my situation may have been very unusual.
I am so sorry your days are so stressed. I commend you for what you are doing! Reach out as much as you can to outside support if possible.
You mentioned that your mother probably has BPD and your father is OCD. I bet that they displayed those basic characteristics when they were 40!
Having said that, there are diseases of the brain in which changes in personality are part of them, such as Lewy Body Dementia. Also, due to the gradual loss of function that occurs to all of us with aging, many people become quite "irritable" because they can no longer do what they used to do with ease - even if they were "calm" when they were young.
As others have said, a person with difficult elderly parents is more likely to seek assistance via this forum. A person with "easy" parents would not feel the need to reach out - so we rarely hear from them.
My husband has gone through stages of defiance, depression, anxiety, clinging, confusion and frustration, which I think are very normal to experience. Sometimes, it has been very difficult on me. But, he’s not always like this, and more recently he seems to have found some peace. What’s nice is that every few days, he will thank me. This morning he serenaded me with Paul Anka’s “Diana.” 🥰 Life isn’t so bad.
Even when she had a raging UTI and was completely out of her head in the hospital, she was a perfect patient...like a little girl afraid to upset anyone. It was quite sad actually. She wet the bed and was going to lay in it anyway, but of course I told the nurse.
Parents that are balanced tend to be easier to care for.
Of course Alzheimer's and dementia or other brain injuries can cause difficult situations and personality traits to appear, making the individual a challenge.
This is my personal experience with the elders in my family.
My MIL was dismissive and suspicious of my husband's help. Threatened to report him to APS.
I think that some folks have life-long trust issues.
At 93 it was Dad who said he wanted to look at senior living. As soon as I drove up to the first place, he said "where do I sign up". We went on tour, and had a free lunch. He was ready to move in. He was thrilled being around people of his own age.
Dad asked me to sell the house. When I asked him what to do with the remaining items in the house, he said just bulldoze everything down. "Ah, Dad, I don't think the HOA would approve", we had a good laugh.
When Dad had to move into Assisted Living/Memory Care, we referred to Dad's studio apartment as his "college dorm room" since Dad had all his books crammed in there :)
But DH's mom is who we have . . . .cranky, disagreeable and completely non-compliant long before Dementia came on the scene. My SIL (her daughter) often tries to address MIL's complaints and tantrums .. . . and I try to remind her that MIL is cranky, she WILL complain about something and be angry every day. If we "Fix" the issue . . . she will just find another one! One day, it was me whistling in the car, LOL. ALWAYS something!
We were walking in our yard a day or two ago and I told DH that his dad would have enjoyed coming for a few hours to sit in the orchard with a book and a glass of tea . . .just enjoying the day. But we weren't going to invite his mom because she would gripe & complain, and then give us the "SEE! I CAN get out just fine . . . now take me to town RIGHT NOW I NEED TO GO TO THE STORE!" afterwards.
I think that in some cases, dementia (and just old age) seems to magnify the person's personality. If they were sweet and agreeable, the are still . . . if they were crabby pants, they are more so :( but that's just my opinion.