Would "letting a parent go" really be considered "elder abuse"? I know I am living with end of life decisions I made for my father and its been 2.5 yrs of Hell. My father was a few weeks shy of 90 when he passed. He had fallen and broken his hip outside his home in June - had surgery and then went to rehab. His rehab was slow but he was fighting to come home by working hard at PT. I was there every day with him for 2 months. A few weeks prior to his coming home, he developed a UTI via catheter and he became very ill, agitated, delirious and hardly eating or drinking. I wanted him to go back to the hospital but nursing home and infectious disease drs assured me he would be ok....he became worse even with all the antibiotics they gave him.....I finally did a forced release to hospital (after 9 days) and he was admitted and was told he had MRSA infection and it went to his heart....he was touch and go....we were preparing ourselves for the worst.....he wasn't improving and stopped eating and drinking and was in much emotional and physical pain (bedsores as well) plus he was septic. To my surprise (since he wasn't a surgical candidate) they said his only hope would be 8 weeks of IV antibiotics in a nursing home, with feeding tube,urinary catheter and stage 3 bedsore - I saw a lot of suffering ahead for him - he wanted to get out of the prison of a bed and go home - but he was infectious and too ill.....I couldn't bear the thought of him suffering with all those tubes in a nursing home for 8 weeks (or more) and chose hospice - he wasn't aware of this choice since he was not in a good mental state....he died in 3 days and it felt like euthanasia.....I keep thinking "if only I had tried the 8 weeks of IV antibiotics - even if he suffered - maybe he would have survived"
The hospital bed wasn't the prison; his body was.
Trying to force his exhausted body to keep going would have been cruel.
It wouldn't be any comfort to you if the antibiotic treatment was given and he suffered the entire time. You'd be thinking the opposite now... "If only I'd decided not to do the antibiotics, he wouldn't have suffered so much." At 90, you both knew his time was limited. Even if by some very small chance the antibiotics worked, how much longer would he have had after that? Would he have been his old self again? It doesn't sound likely.
Assuming you both believe in an afterlife... do you think he's looking at you now and angry that he was on hospice? Resenting you? Blaming you? Wanting you to be miserable and regretful the rest of your time on earth? My guess would be NO! Honor him by proudly carrying his legacy in the time you have here.
Have you tried grief counselling? I know a family who was greatly helped by it.
I guess we are very different for I felt nothing but relief for this man who was always Hansel to my Gretel in the forests of life, the gentlest and best man I have likely ever known. He would no longer have to suffer. He had beginning dementia, likely a Lewy's type. He was afraid for his future.
I miss him. I truly do, but could I have afforded him release and relief before I did I would have done so, and I would have shortened, not lengthened his time of suffering. We used to always, when we didn't live in the same town, write long letters to one another. So I still write him, things I would have shared with him, a book I would have sent, a picture of a flower I saw, other things. I decorate the book with beautiful things.
I feel SO VERY LUCKY that I had my brother to the age of 85. I am so relieved he isn't suffering. And I will never ever regret getting him free of the hospital and of his misery.
That is just my take on it. I think you will by now have familiarized yourself with MRSA and what it means, of being septic and how it takes out everything a system at a time. I would bet there wasn't a doctor there who didn't tell you that hospice was the right decision, whereas I had to fight some of them. With Covid I could not be with my bro at this crucial passage.
I am so sorry you are still suffering so. Your father would not have wanted that for you nor would my brother have wanted that for me. We spoke of death and its inevitability often; perhaps that helped. I was a nurse, and I am familiar with death, have come to see it as deliverance for the most part, from torture and torment.
I would like, after 2 1/2 years of suffering, to suggest to you that you are forming habitual paths of suffering in your brain. Our brain is susceptible to this circular thinking. Sometimes seeking help is a way to retrain our brains. There is nothing to be gained by your suffering, and you are losing the essence of your father and his love, coming to see him only as his "end of life" and not as a whole life lived with love. I hope you will seek help. Often a licensed Social Worker is better at this "life passage work" if they are trained in counseling.
I wish you the very best. I feel connected to you in what you suffered, the pain and confusion and desperation for one you so loved at the end of his life. I wish you the very best, and I wish you joy of the life and love you shared with your Dad.
(((Hugs)))
Be thankful for it.
A long life & a short illness.
Be even more thankful.
Breaking a hip near 90 is a major event on the body. Yes it is survivable & some recover well. But for many it is the start of the decent. It is often called 'the beginning of the end'.
I don't know if this will help - but I will be frank. There are worse things than checking out a fraction earlier than 90. There can be living too long.
IF he survived (after 8 wks IV antis ... for how much longer? And for what quality of life?
Long enough to fall again. Break the other hip & do it all.over.again. Then fall & break the femur beneath the prosthesis. Or a fall with a head strike causing brain haemorrhage.
The orthopaedic ward is FULL of elders 'falling to death' very very slowly & painfully.
He was spared that.
I do remember having similar feelings when my mother entered hospice at 95, because I did have the sense of “euthanasia”, although she hadn’t had any awareness of anyone being with her or near her for several days before she died.
You mention the feeding tube and the Stage 3 bedsore, the MRSA and being septic, refusal of food and fluids. The statement that the alternative was “his only hope”, and with all of them together, yes, “a lot of suffering ahead for him”, and absolutely no promises of a good outcome.
IF you had chosen to try that last try, and the result had brought him back to less than the man he!d been before his troubles started, would he have wanted that much smaller, painful, confused life?
What would he have wanted for you? Would he want his daughter to be tormented by what “might have happened” when she would have done anything in her power to give him back the life he’d known before he became so ill?
I don’t think it have been his choice for you to have suffered at all, but rather he would be grateful that you were brave enough to let him go.
Is there someone that might be able to talk you through your feelings and find some peaceful resolution of the thoughts that continue to trouble you? You sound like a dear, kind, good soul. You have borne this sorrow for a long time.
It is OK for you now to be kind and loving to yourself, as you were to your Dad.
Life is not quantity; it's quality. What would have been your dad's quality of life in those eight weeks of catheters, IVs and pain? I doubt he would have lasted eight weeks anyway, because if he went in three days, I would say he was pretty far gone.
At some point, we simply have to let nature take its course. You prevented your dad from suffering any longer, and that's the greatest gift you can give someone at the end of their life.
I also suggest getting the book, Healing After Loss, by Martha Hickman. You read just one page a day, so it isn't too much to digest. I believe it could help you.
See All Answers