My dad has been hospice for 8 months now with colon cancer. He has swelling and fluid in his chest. Right now he keeps having days where he declines and gets really bad and his hospice team think he will pass but then he bounces back and gets better. He keeps doing this over and over. I don't know what to do anymore. I feel like I am on a rollercoaster that never ends. I'm so exausted of being his only caretaker and constantly having these ups and downs with no end in sight.
This will sooner or later change and your dad will be gone, and at peace, and you and your family will be at peace.
Even when it was obvious that my husband was nearing death and his nurse told me that he would be dead in 3 days, it wasn't until 41 days later that he actually did die.
It is exactly like being a roller-coaster, and it is exhausting, so I hope that you're able to get away occasionally to do you, as you matter in this equation too you know.
And not to scare you, but once you get off this roller-coaster, you'll be getting on another one called grief/grieving.
Stay strong and know that God's got you and that you're going to come out of this a much more compassionate, empathetic and understanding person when it's all said and done.
And on a side note....I hope that hospice has your dad on some Lasix for his swelling and fluid in his chest. My late husband too retained a lot of fluid in his chest and he was on Lasix for many months while under hospice care.
The human body is a very strong machine that fights hard not to die. So rebounds are common with hospice.
Wishing you the best of luck with a difficult situation.