I am going to ask this outright. I couched in another thread. But I am asking outright.
I can't be the only one dealing with this. This is a form of PTSD. My cousin said so. A grief counselor did.
How do you get past the end of life very graphic images? These are haunting me, quite frankly.
I am not special by any means. There are so many of us who just muddle through. Like the old pinball games. Bump into this, bump into that. We don't get any points for it.
Does this ever get better? Is it time limited? Mine is real fresh. Not yet 24 hours. I want to know there is an endpoint here, or what I should expect.
First, so sorry for your recent loss. Sending a hug your way. I’m by no means an authority on this topic but speaking only from my heart. I was at my mother’s bedside, holding her hand through much of those last few minutes. I was there and heard that dreaded death rattle. I was there as the hospice nurse monitored her vitals whispering to me when she had taken her final breath. These images stayed with me for some time, but just as my sadness and emptiness have become loving memories of my mother and our times together, so too have those images softened in my mind. I can still recall them but they are not as painful as that very day. I hope this has helped you a little. Joining GriefShare was a tremendous help to me. I can’t say enough good things about the organization. God bless you on your grief journey.
I'm no doctor, but ptsd is caused by traumatic events and maybe using the best part of your memories can ease the recent images. Plus, 24 hours means this just happened.
COME ON PEOPLE, SHE'S ALREADY TRAUMATIZED ENOUGH WITH HER OWN ISSUES!
There can be an end point but its different for everyone. Are you seeing a therapist. I am for PTSD with my Dad. You will need to. EMDR therapy helps too. Find a therapist who does EMDR therapy.
It helps to talk about it so your emotions have a way out of you rather than bottled up inside. It will take time but it works.
Hugs dear one. Dont let being a secondary victim of dementia get you. Unlike your loved one, you can beat the effects of this wicked disease.
This type of therapy is short term ( 6 to 8 sessions), and is designed to deal with trauma (or PTSD). There are several sites on the Internet that explain the therapy, and can help you find a qualified therapist near you. If do not have the resources to afford a therapist, there is an website that can help you do some of it online. I used the online site last time, but it was somewhat less helpful. I believe having been guided by a therapist before - was key to it working at all for me.
Trauma is best managed in the early days. The longer you keep going over the images, the deeper they are set. Sorry your loved one did not pass well (as possible).
See the link: https://www.emdria.org/page/emdr_therapy
Last thought, grief therapy - which is usually free at most hospice locations (whether you used that one for a family member or not), is the place that you find out - what you are feeling (grief, anger, sadness, loss...) are normal. But grief therapy is not EMDR for trauma...
I'm so sorry for your recent loss. Today is in fact the 5th Anniversary of my Mom dying. 💔 I was with her during it all, the last few months of her life. I'm still haunted by the images of Mom laying there in her bed literally skin & bones. My Mom was such a strong woman in life; Mentally & Physically! So to see her in this condition still takes my breath away.
My Dad was on Hospice himself at the time. So, I was caring for both of them in their home when Mom passed.
I thought we had more time. Told her we'd do her bucket list as fast as possible starting with dessert!!
We never got that chance as she passed 2 weeks later. 12 days after my 50th Birthday. My husband brought me to the hospital (before she was sent home on hospice)see her on my birthday. I didn't think I could handle it. It was just the 3 of us. She sang Happy Birthday to me for the last time. I just watched her sing & made sure I was present in that moment. ❤
I try to remember her singing to me when I feel the huge wave coming. It helps a little. But I do believe I have PTSD from all of it.
I'm on medication for my anxiety since then & looking into counseling since I'm still taking care of my Dad. He's no longer on hospice but doesn't remember anything about Mom dying or me cleaning up & listing his house for sale then moving him in with my family.
It's a hard time, but let yourself go through the emotions. Look at pictures of the fun times with Mom before she got sick.
Hugs ❤
My MIL died at our house on hospice. My husband was holding her hand. This was 2 years ago. I didn't go into that bedroom for awhile. I remember when her dentures just fell out while she was in a coma. For some reason that little thing scared me to death.
My husband travels and I was all alone the other night and that bedroom door is always open now. I got up in the middle of the night to potty and the lamp was on in that room. It is a touch lamp where you just touch it to turn it on. Freaked me out but I just said "Hey Grandma, I love and miss you but don't turn on the lamp again it is scary haha!"
It all gets better. Trust me.
Your pinball imagery is excellent. It makes me think of the bright lights, exciting sounds, and sense of winning that is the game. We have two addicting pinball games in the living room, so it struck a chord. I hope one day soon that you'll visualize yourself as a player, looking down through the glass at the little ball to see that you played the very best you could for your LO, who now rests from the game.
If you mean that they died, give yourself time. It takes a while to grieve, it gets easier ie less raw but there are still things that will remind you of the person or times you feel the sting that they are gone. We can dwell on the bad or the good, our choice. If you are having difficulty doing that therapy is a great idea.
Obviously anyone’s death is stressful but probably more so if you aren’t prepared for it. Sorry, this won’t help you but I sincerely hope those with elderly or ill loved ones research the stages of the dying process. It seems so many people are caught unawares when that person dies whereas had they done some research beforehand they may realize their loved one has been dying for months and is on an irreversible process. Then it’s not such a shock. You still miss them but realize no one is responsible, for the present time it’s a “ normal” part of life.
My mom had a rare form of red blood cell cancer for a number of years that caused anemia. She died in 2013 at the age of 86 so she lived a good long life. For six years I watched over her and found doctors who could provide quality of life. During her last nine months she could not heal and had several amputations. Her medications caused her to be diabetic but she had trouble healing due to thyroid shutdown. She decided to sign herself into hospice. She was in a rehab facility at the time and decided to do hospice there. I took movies up for us to watch and spent hours with her laughing. I also started to research the family to tell her about all the people she was going to meet. She would not shower unless I gave her the shower and she would lavish there for 30 to 45 minutes. This I did for her because it was my duty and I believed my honor. At the moment she left her body she woke me up and I felt her presence. It was like being wrapped with a warm electric blanket and she began talking to me not though my ears but in my brain. She was happy and free of all pain! At 5:35AM the hospice nurse called and said, “Your mom is gone!”
I laughed and said, “I know, she is here with me and we are walking out the door,” since I had promised to do her hair and put makeup on her.
The warm glow of her spirit stayed with me constantly for two days and she would make me laugh so hard with jokes and little quips. I felt her presence several times after that but I also thought I was a little crazy so I asked her for verification. A month after her death I was setting up an antique show (we often used to do them together during her last few years) and her favorite porter helped me with my things at setup. She had always called Robert her savior for changing a flat tire for her. While I was talking to Robert I felt my mom’s presence. I said, “She is here.” The warmth occurred and I could hear my mom saying, repeating, “Robert was all wet.”
I asked Robert, “Why is my mom saying you were all wet? Was it raining outside?”
With a broad smile he said, “Your mom is here!” He then told me it was mid-summer and about 100 degrees outside and she had parked her van in the sun on asphalt, so it was hot. Robert made Mom go inside while he changed her tire and when he was done, his clothes were soaked with sweat. He was drenched. He gave me a hug for my mom.
The last time I felt her presence, I was in the house with my father. She reminded me that the lock box in the back of the top of her closet. It was locked and I had no idea what the combination was. She told me and I opened it on the first try! Inside were the car titles, my father’s Navy discharge papers and much more. I have been blessed to know that she is happy and with God and receiving all that he promised. I am now taking care of my Dad who suffers with dementia and a personality disorder, so my trials are far from over. I am blessed with first-hand knowledge that our reward lasts an Eternity!
Segoline, eventually you just won't go there anymore. This is all still so fresh for you. Give it time.
I ended up nearly drinking myself to death, had to have multiple Gastrointestinal surgeries that almost took my life,had to be hit several times with the paddles to get me back. I am going to be 69 in a few weeks and the only thing that most of my doctor's say is to prescribe opioids to try and keep me comfortable. With all the restrictions put on prescribing high doses of them I am in a catch 22.
I say all of this because for years I didn't stick with therapy which I believe with all my heart that if I had I would have processed all the pent up grief over the years I would not be in the condition I am in today. I beg you to seek all help available by professional trained folks that can get you through this. It will never go away completely but with help you will pick up the tools needed to get through life.
Peace and Love
Dumping1..aka
Tim Shockley
It started with a fall and in and out of hospitals and rehab NH's. At the end she was on hospice in my home, bedridden with numerous problems. 13 years prior she had been diagnosed with an inoperable abdominal cancer that seemed non-existent after the radiation. At that time she was given 6 months to live, yet went on mostly symptomless 13 and a half more years.
The last 19 months were the worst time. The things that happened and stupidity of staff in facilities has created much anger in me that I have never gotten over. In the first rehab after the fall, which was a 5 star Medicare rated facility, she developed a tailbone sore that was stage 4. I did not know about this until she was rushed to the hospital from this facility with delirium from a UTI! She had frightening delirium several more times later. After another episode and hospitalization she went to another 5 star NH for rehab. Some incompetent woman on staff there dropped her in front of the wheelchair and broke her ankle. I took her home after she was recovered. Then more delirium and visions that were often frightening. She would see a woman's head spinning around on top of her TV or yell because she thought the doorbell rang at 3 am. I had nurses train me to give insulin shots and do wound care. The wound was to the tailbone and the dressing had to be protected with a gauze from the diarrhea which was the result of radiation burns years ago from the cancer treatment. This was a constant daily battle. I had to empty bloody catheter bags as well
I did have a wonderful hospice team and could not have gotten through this time without them, though most of the work fell on me.
My mom wanted to find peace and she finally did after 19 months of hell. I try not to be angry at the incompetence I witnessed. I try to not see the things I saw during those 19 long months. I got through it doing the best I could to keep mom comfortable and doing little things like flowers on her dinner tray, photos on the dresser, nice classical music she liked. Most of the time I am ok, but I am not over this as it has left me angry. At least I don't jump at loud noises anymore. Old friends bragging about their great and perfect lives after their parents passed on did not help either. I was also thrown into care for MI, 88, after a year's break because my husband's sister who was living with MIL died.
This whole thing left me with scars, though I am trying very hard to enjoy what I can because I know my mom would not want me to be this way. I suppose it depends on how bad the memories are and how much you try to build new memories. During mom's demise I got out old photos of her past, happier life and looking at those really helped. There was so much more to her life than the rough ending time. With time the bad memories fade but with me will never fully go away because of the length of time endured and lack of help. Try looking at photos of happier times. This does help me. {{hugs}}, Katie.
“Alright, here goes. I'm old. What that means is that I've survived (so far) and a lot of people I've known and loved did not. I've lost friends, best friends, acquaintances, co-workers, grandparents, mom, relatives, teachers, mentors, students, neighbors, and a host of other folks. I have no children, and I can't imagine the pain it must be to lose a child. But here's my two cents.
I wish I could say you get used to people dying. I never did. I don't want to. It tears a hole through me whenever somebody I love dies, no matter the circumstances. But I don't want it to "not matter". I don't want it to be something that just passes. My scars are a testament to the love and the relationship that I had for and with that person. And if the scar is deep, so was the love. So be it. Scars are a testament to life. Scars are a testament that I can love deeply and live deeply and be cut, or even gouged, and that I can heal and continue to live and continue to love. And the scar tissue is stronger than the original flesh ever was. Scars are a testament to life. Scars are only ugly to people who can't see.
As for grief, you'll find it comes in waves. When the ship is first wrecked, you're drowning, with wreckage all around you. Everything floating around you reminds you of the beauty and the magnificence of the ship that was, and is no more. And all you can do is float. You find some piece of the wreckage and you hang on for a while. Maybe it's some physical thing. Maybe it's a happy memory or a photograph. Maybe it's a person who is also floating. For a while, all you can do is float. Stay alive.
In the beginning, the waves are 100 feet tall and crash over you without mercy. They come 10 seconds apart and don't even give you time to catch your breath. All you can do is hang on and float. After a while, maybe weeks, maybe months, you'll find the waves are still 100 feet tall, but they come further apart. When they come, they still crash all over you and wipe you out. But in between, you can breathe, you can function. You never know what's going to trigger the grief. It might be a song, a picture, a street intersection, the smell of a cup of coffee. It can be just about anything...and the wave comes crashing. But in between waves, there is life.
Somewhere down the line, and it's different for everybody, you find that the waves are only 80 feet tall. Or 50 feet tall. And while they still come, they come further apart. You can see them coming. An anniversary, a birthday, or Christmas, or landing at O'Hare. You can see it coming, for the most part, and prepare yourself. And when it washes over you, you know that somehow you will, again, come out the other side. Soaking wet, sputtering, still hanging on to some tiny piece of the wreckage, but you'll come out.
Take it from an old guy. The waves never stop coming, and somehow you don't really want them to. But you learn that you'll survive them. And other waves will come. And you'll survive them too. If you're lucky, you'll have lots of scars from lots of loves. And lots of shipwrecks.”
https://themighty.com/2018/12/ball-box-analogy-grief/
I know this will sound awful -- and I don't know how old you are or your living arrangements, but MOST caregivers will once again have to earn a living, and that will be monumentally difficult due to age discrimination in the work place. Employers tend to shy away from older Americans; still you will have to get back to the work force. My neighbor told me he had to get back to work when his wife died (he ended up having to quit his job to care for her), and he said working really helps a lot.
A dead body will not bother me compared to the mess I'm going to have to deal with...but at least I got everything taken care of before she dies: Prearranged cremation, and eldercare attorney got the estate prepared so nothing will go into probate. The more you get prearranged the smoother it will be to transition to life without mom. Prearranged funerals are best because the funeral home can really take advantage of your grief and gouge you because you are not thinking straight. I am NOT going to spend a fortune on body disposal because I have to go on living. The time to pay homage to a person is when they are alive, and you love and care for them. When they pass it's too late.
My saving grace was that one of my sisters was there with me at my Mother's house for the last few days of her life, and we talked about it for hours over the first few weeks after her death. I remember being really hesitant to talk to anyone else about it - I didn't want to drag anyone else into my angst and leave those images in anyone else's mind.
My mother's passing was relatively peaceful, but still it was awful. You will heal from this, but it takes time. Grief counseling is a good idea. There are many of us here who understand and can relate to what you're feeling. Give yourself time and try to take care of yourself now, as best you can. Hugs!!!
Can you picture the last time you held your mother's hand while she was alive? I'm thinking, maybe, if you form a strong, different image it will help to shut out the traumatic imagined one.
This is a horrible time and I feel for you.