She wrote a letter to the daughter of her friend, telling her that food was being withheld (I monitor her diet for salt, sugar, starch & carbs as she is diabetic and has high blood pressure); there was no privacy (for us!! not her); that she never got out (unless you call four trips a week to the hairdresser, bank, grocery, WalMart being confined) and that people were opening her mail and listening to her phone conversations etc.
The letter was forwarded to the police which resulted in visits by them and the supervisor of her care agency. Needless to say, this was a shock and bad surprise for me.......I immediately called a meeting with my brother and of course, she went on the defensive and was angry to have been discovered.
When asked why she wrote the letter and didn't voice her complaints, she said "it wasn't meant for publication". I was angry and ashamed of her that she took this action especially after I had created a 3-bedroom apartment in my large home for her with every luxury!
I discovered she had been phoning all kinds of people to obtain sympathy for herself. The wake-up call came when she went to visit two care facilities and discovered just how the seniors there were treated - and especially when she found out what kind of food they were served!!
Now as far as the situation you are in...I am there too. I cared for my mother, in her own home, for 8 years. Did her laundry, cooked her meals, cleaned her house, took care of her financially, took her out on outings, sat with her for numerous hospitalizations, ER visits, dr. visits. Just doing what I was programmed to do. Then she told my siblings I was abusing her. Similar complaints - I did try to talk to her about not living on sweets, about the importance of doing her physical therapy, about unsanitary conditions in her home. I was just doing what I was programmed to do - which was to do a good job taking care of my elderly mother. My post war generation mother treats this as though I am a small child "talking back" to her - her programming is that I owe her undying compliance even though I'm the one that will have to sit with her for hours on end in the ER with a CHF event after she downs all the sodium rich food she can lay her hands on. Plus, I think she wanted my siblings' attention and this was a way, within her now limited powers, to get it. Now my siblings have disowned me and are sending hate emails to my pregnant daughter about her "toxic, volatile mother". My extended family is irretrievably lost to me.
Here is what I did. Find a therapist and let go with love. You can honor your mother without giving up your life. You are a special person with huge value and your value is not contingent on whether you or not everything you do pleases your mother. Let her make her own choices and let her have the consequences of her own choices. My mother now has in home help. I visit her only when her aide is present. No one will ever be able to accuse me of anything again because there is always a witness - and I am, and always have been, sweet as pie to my mother, even though she was not really a very good mother to me (alcoholic, abusive environment). I encourage you to work with a family therapist to sort this out. You have a right to take care of yourself and you can take care of yourself and protect yourself... and still honor your mother. You kind of have to reboot and reprogram all that hardwiring. Most of us couldn't live with a spouse who demanded blind obedience and treated us as a small child whose needs were subserviant to theirs. Why would anyone expect that we're obligated to live with an elderly parent that demands that of us? Its okay to assert your rights, it is not disrespectful, it is not a failure to honor your parent. I don't know what the right answers are for your situation - that lies within you - but please find a path where you can love your mom and honor your mom and still love and honor yourself.
Your advice for seeking therapy sounds right on target. What hideous brainwashing to overcome.
I know a lot about dealing with dementia, and some about relating to "normal" edlerly parents. I think I'll stick to participating in those topics.
Thanks again for calmly sharing your insights.
Libracat: There are times when I say too much. The attitude I referred to came from some of your responses to posters who are just trying to be helpful. This is not a challenge about who could prepare meals 365 days a year in the manner that you do. No one was suggesting that your mom is starving and we are all happy to cut you some slack. And cutting people slack works both ways.
I asked why you keep your mom in your home because I wanted to understand how you see it. I was not trying to re-victimize you make you defend yourself. I am sincerely interested in how you feel and how you see your obligation in your mom's care.
I have read your other posts and your words were very powerful in describing a horrific situation and I was left to understand that your life was a living hell and you felt you had no control over it.
I think one of the reasons your previous posts struck me was because I also dealt with a difficult mom. Not as difficult as yours, but enough to leave me feeling like a child again at times. Why did I continue to do it. It's because I didn't feel like I had a choice. Of course I did, but once we moved them up here and into the house we built next door for them then the choice was gone. My parents needed assistance on a daily basis and they had very limited assets. They had put those assets into the building of the house. My brother and I also put funds in to build the house for them. So in my mind, this was their home and what had been done had been done.
I also see myself in what SVT has to say. I can relate to everything she says and I actually thought I had conquered those demons some years ago; but having your parents in such close proximity can really open up some wounds.
We can learn a lot about ourselves in the care giving process, but we can do it sooner by looking inside and asking ourselves some difficult questions. Having a good therapist to help us on the journey is insightful and comforting.
I would not have got hooked on the building a house on our property for them. I did that because they had always lived on acreage and had their two big dogs and because, after retiring, we had 10 acres and felt they would love the environment, which they did.
It might have been better not to move them up so soon, but to wait until THEY truly realized that they had one foot in the hospital/poor house and another on a banana peel. As it was, they still had this delusion that they had options. They didn't, but it might have been better for them to actually realize that and then they might have found less to grumble about. I was more about being preemptive, getting them here before a total crisis.
If we had not done the house on our property thing, I could have possibly found them a place with a large fenced yard for their dogs. I could have started the Medicaid process and even if my brother and I had to pay their rent until Medicaid was resolved, my brother and I would have been so many thousands of dollars ahead. I'm sure we would have each saved a minimum of $100,000.00.
With my parents qualified for Medicaid, they would have had access to a home care provider for 5 hours per day, 5 days a week and that would have given me some space, not just from their care, but from their proximity to every minute of my life.
Nevertheless, my mom would have still had a cancer diagnosis in 2006, she would have still broke her hip in 2008 and passed in December of that year. My dad would have still had his stroke last July, but maybe not living under our roof at this time.
Without the additional house on our property, we would have been $$ ahead, only had to maintain one house and my husband could have put his shop exactly where he wanted it to be, across the driveway from our place.
None of these thoughts make any difference in the reality of my husband's and my lives as they are now, but maybe.....just maybe, I might run across someone who is contemplating moving their parents up to live by them. If they ask me what I think, I hope I can share my experience in the same manner that SVT shares hers. I don't think I will be listened to, but I would be willing to support them through the good times and the bad.
Let me also add that I don't think I could have ignored my parents need for help. I'm the oldest and my sibs were and still are all working full time jobs. The focus was what do we need to do to keep mom and dad safe and get them the care they need. With our parents permission, we chose a course. In hindsight, I might have done it differently, but I would not have abandoned them.
So we all live and learn and have an opportunity to share with others.
Hugs, Cattails.
Assisted living is another option.
I agree that we tend to rush in to help for any number of reasons, many of which SVT shared. We don't think about ourselves seriously enough or do things in a manner that affords ourselves the space we need to live our lives and maintain an element of privacy and happiness.
If my retrospective views are helpful to others then I'm glad I shared them. Cattails.
It really burns me up how much the government system is so messed up! You have to be dirt broke in order for the government to help you out. forget about the middle class people and leave them hanging on a string until they run out of all their assests before they can get any help. This makes no sense to me for I would think the government would want to try and help the middle class to prevent that family being completely needed among the system.
Just words to those who can still benefit.
Don't let anyone try to cajole her out of the cold shoulder, if that is how she plays it. Just make her invisible. Make decisions around her...in spite of her...if she isn't talking. And when she talks, if she is mean, just react the way you have. The change is in not reacting to her reactions.
You know this, I know. You just had a bad day. Which we all have!
Once I said "let's call the supervisor for the physiotherapist and give him a good recommendation" she said, why bother, that's his job.
In the last couple of days, the feistiness and mouthiness has been very hard for me to take. Two days ago, I caught her making a remark to my husband, who was looking for me at home. She says to him, "Oh she's in the kitchen, that's where she runs and hides, it's her hiding place." I heard that and went to address it with her, as I mentioned on an earlier post. When I told her that wasn't a very nice comment, that I don't have to "hide" anywhere and I go to the kitchen to work and to prepare meals for her, and asked her how she would feel if someone said that about her, her answer was "Oh that wouldn't bother me in the least." What BS!!
I tried to point out that that was a hurtful thing to say, and that I didn't appreciate that kind of comment about myself, I of course was accused of being "too sensitive" (those of you who have seen my earlier postings will be aware of this characteristic of gaslighting - a major tactic in narcissism). The end result of this exchange was that she was a punisher all day yesterday and I fell into the trap of asking her what was the matter........which is just what she wanted - and she said, I guess I'm not allowed to say anything (?!) Oh it's all about you, isn't it?
Today the phone rang - loudly and also in her room so she knew it rang - and I picked it up, it was my daughter. As I was talking to her, I heard a click, someone listening for about a half a minute, and then "Oh, sorry" click.
I went into her room when I was finished and asked her if she didn't hear the phone ring (I answer all the calls in my own home - I also pay for this line.)
She said she heard it ring "a long time ago" and I said if you heard it ring, why would you pick it up then, you would know someone was talking on it? Her answer was - get this - "Well that's just too bad". REALLY?? If I had answered her that way as a child, or as a teenager, I would have been on the floor (or worse) in about a half a second .
G-d's teachings say that we are to love a person in spite of their faults. I just didn't realize someone could have SO MANY!! I also looked up the seven deadly sins, and guess what - six out of seven!
195Austin, I will follow your advice as she thrives on arguing and defensive and change-of-subject, deflective behaviour. I could recite many, many more examples of it but how would that help me? I always try to be the bigger, better person, remaining positive and polite but I always get sucked back in by her. If she doesn't get her own way, or what she wants, the comment is "I've been so good to you and your husband and children and this is what I get". Well, you created it!! You can't buy people, or own them but this is what she thinks and how she's learned to operate.
I suppose I shouldn't let her buy or give me anything because then I am obligated to put up with the nastiness, cutting remarks, sarcasm etc.
It's just so sad that she can't enjoy life but instead enjoys hurting the people around her and makes it her agenda to make everyone else as miserable as her! I can't even whistle in the kitchen or play music because that will indicate that I am feeling happy and then she will find a way to knock me down yet again!
What I have learned from my experience and the experience of others and from a lot of reading is that you cannot reason a person with dementia out of irrational beliefs and behaviors. Reason is no longer an effective tool. Arguing about whether they need an umbrella to watch baseball on tv because it is raining at the ballpark is futile.
It seems to me that trying to reason with your mother regarding her irrational beliefs is as futile as reasoning with a person with dementia. It isn't going to do any good at all, and it might even make matters worse.
If my demented husband thought I was hiding in the kitchen, I would never argue with him about it. I certainly wouldn't defend myself against an irrational claim. I have accepted, sadly, the limitations of his thought process. I want to minimize the conflict for both of our sakes.
Your mother is obviously mentally ill. Apparently she cannot be reasoned with any more than my husband can, at least on certain subjects. Her life is a big delusion. One night my husband thought he was an airplane. She apparently thinks she is the center of the universe. These are both delusions. Fortunately my husband came in for a landing on his own (I certainly didn't reason him out of it). Unfortunately it looks like your mother's delusion is permanent.
IT IS NOT YOUR FAULT that your mother's brain is faulty. It is not your fault that you are not able to reason with her and straighten her out. It is the nature of her disease, and not a lack of ability on your part, that prevents you from reaching her.
You are obviously an intelligent, caring, worthy individual. You want, as we all do, your mother to recognize that. I don't think that is going to happen, through no fault of your own. My wish for you is counselling or support groups to help you truly understand that, and come up with more effective coping strategies for dealing with that awful truth.
The nursing staff (and I agreed) not to tell her about the doctor's appointment as they didn't want things to escalate with her for an entire week before appt. By this I mean, she will be more difficult to handle, will lie and say she has symptoms when she doesn't. (This has been going on for 40 years) - so she didn't have dementia then.
Guess what I am saying is even though I am well aware of her personality disorder; mental illness, etc. - it still does feel so stressful not to be able to EVER say how I feel about something without her flipping out or saying she is having a heart attack, or some other made up illness. My family - children and husband don't understand why I can't call her out on the lies, the betrayal, etc.
What really gets to me and confuses me is how when it suits her, she can turn on the charm to anyone - at any given moment. I've developed a thicker skin, but I know in reality I am still fragile within. To NEVER in your life been able to defend yourself verbally (and these are just minor things) - is not normal. It is so dysfunctional and I realize that.
I live 2 hours from her, but she has grandchildren and greatgrandchildren right around the corner from her. Long story short, again nothing to do with dementia) when my brother died 10 years ago, his sons who are in their thirties coordinated his funeral. She didn't like how they did things and was so cruel to them. My nephews are the sweetest, kindest men - very much like my brother and father were. She made grown men cry by her treatment of them. I called them on the phone to try to help them and smooth things over as they were dealing with the death of their father. My oldest nephew then 30, could not stop crying on the phone because of her. Even after allllll this, for years they tried to get together with my mother despite what she had done and she turned them away every time. They have stopped trying. She has two greatgrandchildren she has never met. These kids are so wonderful and they would be visiting her right now if she had not turned them away. So, she is alone except for me - because SHE IS NEV ER WRONG SHE IS A PERFECT PERSON. AND SHE HOLDS A GRUDGE!
And I can never say one thing about this (and I've tried) and she flips out.
She just continues to play the victim, lonely card. Sorry to go on so, it just came out. By best friend has a narcissistic mother as well. It was fate that brought us together at the age of 12, and we've been each others "therapists" for years; about 40 now.
I feel like yelling and screaming at her!!!!!! But, I can't. It is what it is - therapists have told me to talk to her toooo. Even some of them don't "get it".
The reason she saves this behavior for me is that I am the youngest and most easy going and she "trained" me to feel guildty. I don't feel guilty at all, but I am tired of a lifetime of it. Most importantly, this behavior will not be perpetuated by me. That is the lesson here for me. I am a better mother for it as I would never treat my children how she has.
There is no point to responding to any negative comments your mom makes. You are talking to the wall and she just takes delight in upsetting you. Like Jeanne and 3Pink say, you are not going to reach her.
Do your best to detach from her. Walk away from unkind comments and don't respond. Put your music on in the kitchen and ignore her attempts to ruin your joy. Take the cold shoulder for the peace it offers. Turn the music up.
Having her in your home will always be difficult. She's just too close and has too many opportunities to inflict pain. I don't know how you have survived for the past 3 years.
Can you get some professional help in untangling yourself from her? I wish I had more to offer you. Hugs, Cattails