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I had my grandparents here the last 3 years of their lives. My daughter was 19 and my son 13. I also had day care kids, my business at the time... It was very good for my family to spend more time with my grandparents when we were able too before. The day care kids had grandparents every day. The parents loved it. We explained the winding down process to the kids. The aides and nurses were treated as ay other parent coming or going and were just part of the day. Hospice and the funeral home were very helpful helping us all understand the process.
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truthbetold Jan 2021
Can you see PAH321 being able to pull this off if her child has behavioral issues and fears of death? It appears as if you have a lot of outside help with nurses and aids doing a lot of the caregiving for your parents. I’m very interested in how the balance was carefully created so that perhaps the children are or are not witnessing end of life behaviors in elders and being coached thru these times while you the mother and childcare provider is also juggling meals and play time for your family AND your day care . Hands up to you. I’m trying to pull this off the past 10 years and have to say it can be done with very creative and MANY support systems in place. My arrangement if I have to rate it from 1-10 is a 7....
Yours seems to be a 10.
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Have you called in hospice? If you feel she is failing, NOW is the time. Think of it as a life boat coming along side you to help you navigate the end of this journey. Moving her at this time would be so stressful on her. Hospice will provide a regular nurse evaluation, medication management, a care package to manage any discomfort and so much more. Bonus, hospice will offer you and family members support for a year after she passes so you can work through the various phases of grief. My heart hurts for you, I get it. My Mom is in Memory care for 3 years, on hospice for 20 months and just tested positive for Covid 19. I have not physically been with her since March ( facility is 5 miles away). Hospice nurse goes in weekly and updates me. It is the one thing that keeps me sane.
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Well, here it goes. Do as I say, not as I did.
You and your Mother love each other very much and unconditionally. A loving mother that has had a full and loving life would tell her daughter that she has had your time, love and support throughout your whole life. Her cup is full and she wants that for you. She would want you to take exceptional care of yourself first and foremost. She would want a healthy and happy woman to raise her grand daughter and bring her up in a loving home.

I didn’t follow my own advice, my mother was very demanding. I lost myself by trying to take care of more than was humanly possible. Every aspect of my life suffered and there wasn’t any “me” left. I lost everything that was important to me including my health. Your choice has consequences. Pick the choice you can live with. You’re in my prayers.
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bundleofjoy Jan 2021
big, big hugs to you, gngsadie!!
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Imho, yes, I can absolutely relate to your sacrifice and question. My late mother was adamant about living alone in her own home 7 states away from my home state. With an entire host of ailments, which were the worst ever case of wet Macular Degeneration that her retinologist had ever seen (classifying her as legally blind), Atrial Fibrillation, Congestive Heart Failure, urine and fecal incontinence, arthritis, and others. With a drop of very low blood pressure of almost passing out stage of 60 over 40, my 94 year old mother could no longer demand to live alone. I had to move there and in with her. Now mind you, I was already almost 70 myself when I had to undertake this mission. Prayers sent to you.
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IMHO I would take care of your son first. Whole it may seem cruel, your mom has lived her life, while your son is far from have lived his. With his emotional and other health issues, bringing grandma home so he can see her decline would be the worst thing for kid fragile disposition. You don't have to stop doing things for mom, but your don of priority.
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Your mother would say your first responsibility is to your child.
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I think you shoukd bring her home.
Death is part of the life cycle and depending on the age of your child, is what and how much you allow her to experience.

She can visit her Grandma often when she's living ar your home. Your child doesn't have to be there in the room when she dies.

You should let your mom come home to die where she will feel loved and not afraid.

Very sad to be alone when you die.
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Beatty Jan 2021
I get what you mean, but keeping Mother in her familiar bed & room would be my priority. Not moving into a different environment - even if the rest of the family were in agreement (which they are not in this case).

"home to die where she will feel loved and not afraid".

Mother could feel or not feel loved or afraid in her care home or any other location. That is unknown.

"Very sad to be alone when you die'. People can die alone or with others at home or in their care home. In fact, sometimes they wait until you leave the room. I have personally seen this many times.

Spending time with her, holding her hand, is the thing, the location won't matter.
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How OP describes her relationship with DH:
"Neither of us are good communicators with each other." Key word *Neither*

How OP describes the relationship with her mother:
"She is the only person in this world that knows me fully and loves me unconditionally. We are very, very close."

Unless I am missing something, I honestly don't get why so many people have assumed the husband is being a big selfish jerk here.

There are people who are so enmeshed with their parent(s) that it's dysfunctional. And it WILL affect a marriage! There is a man who posts on this forum who got divorced because his wife was incapable of separating herself from her mother. He should come along and comment.

The OP's husband's reasoning -- that having an elder in the home who needs facility level care will negatively affect his child is VALID. Nobody here knows the backstory of how/why the mother came to be in a facility in the first place. I'd be willing to bet, given the OP's relationship with the mother, that it was for GOOD reason.

It seems to me she is now fearful of her mother passing, and having all kinds of guilt, but to contemplate throwing away her marriage, and causing problems for an already vulnerable child just to bring her mother back from the facility where she will "probably" live her last days doesn't seem like the right solution to me. That "probably" could turn into a long time.

Then what- your divorced, your child could end up living with his dad, and you may end up having to put your mom back in the facility anyway. That is what happened to the man I mentioned who posts here. They got divorced. The kids went with him, the wife stayed utterly devoted to her mother, and STILL ended up having to place her.

To the OP: I am very sorry you are so conflicted and struggling. If your mom is dying then it is time for hospice. It is time to make arrangements so you can spend time with your mother where she is, imo, with hospice support. Stay over night if need be. Pack a bag and stay for days. You can be there for your mom without it involving a move back to your home. My concern for you is that IF you bring her home, and let the chips fall with DH and son, then you may deeply regret it later.

Good luck, and I hope you are able to come to a resolution that works for both you and your family.
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PAH321....
I'm a Christian so, naturally, I would bring home my beloved mother....actually I did that very thing. My mother and I were very close....and bringing her to live with my husband and myself was just a given. My only child was grown and involved with her own life, in fact, she was angry with me for another reason, which I won't go into here.
Being kind is always right. Your dear, sweet mother needs you now. She gave you life. And, I believe, the least you can do is to bring her home, and ask the Lord to help you to love all in your family, whether they are upset, angry or whatever....I pray you will do what needs to be done. And, I pray that God will be with you in you do. Your mother gave to you life, love, and sacrificed more for you than anyone else...and she needs you now. I pray you will step up for your mother, and may God be with you! Shalom!
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lealonnie1 Jan 2021
The mere suggestion that only a 'saved' Christian would 'do the right thing' and bring her ill mother home is a terrible thing to say here on this forum. Just terrible. That you are so self righteous to say that this woman's mother 'gave her life' and because of THAT, she is obligated to take her into her home is a load of BS.

What people say and do in the name of "Jesus Christ" and "God" and "religion" is and always has been a disgrace.
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The right thing for one may not be the right thing for another. Couldn't it be that OP does not have the patience or temperament to be able to provide the care required? And that is OK. OP has other responsibilities that a loving mother would want her to make the priority.
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You are blessed that you had a closeness with your mother - not all people do. But now you have an unsupportive husband whom, I assume, you need to stay married to and most important you have a special needs child. Your PRIME responsibility is to take care of YOU so you can take care of your child who needs care. Your mother is elderly, she is failing, you can't stop that. She lived her life. Now it is YOUR time and the child's time. Those two take priority over all other things. You have no reason on earth to feel guilty if you put her somewhere. It is the progression of life and as it should be. You cannot do it all and with what you have on your plate, no one would expect you to handle it all. If the consequences of her age and illness are impacting those of you who remain, it is time to move her. You have NO choice.
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I haven't been in that situation but I would chose my child over my parent.  If your mother has dementia she may not know that she is home with you to pass. And why torture your child with this when you know they already have anxiety about this virus and everything concerning the death issues.  you will end up having more problems than you want.  I know it has to be hard probably because you can't visit much but your immediate family (hubby and child) need your more and bringing her home will create more issues (as your described about hubby) and then you will have that to deal with along with your mother and maybe a more distraught child.  saying prayers and wishing you luck.
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Depends is the husband being the backbone rational person of what is good for child and wife? Or is he being selfish?

if your mother is in decent managed care, there is nothing wrong with her living her end of days there.

guilt has no place in care, could of, should have, would have are moments of emotional weakness.

I wouldn’t pull my mother out of good managed care, I would love her in the stable environment she is in and seek to pour more care into a mental health of our child
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My story has several parts very similar to you. Sis was diagnosed with LBD a couple years ago-had symptoms of something not right for several years before with memory issues and managing her everyday life. Sis was ready-with no nudging from family to go to assisted living to feel safe and also remove some of the daily concerns of meds and meals by going to a community life style. Eventually Sis says she is willing to come "home" back to where we grew up and where our parents and I live in the same city. Parents are alive at 95 and sis knew the clock was ticking for them and the ability to be together before they would pass. Sis had many increasing behavior and physical problems and needed to be moved to different care places-was exhausting and took a toll on sis/me. Before the last move in March of 2019, covid and all that, I was at my wits end of trying to find a nice safe place was not easy many obstacles-some even caused by previous community-kept us from getting to a good safe place.

At one point I was ready to throw in the towel and have sis move in with my family so I could take care of her-that she would get the best possible care. My husband telling me-we will never have a day off to ourselves we will be on duty 24/7, to make sure sis does not try to escape, has dry briefs, gets her meds, gets a bath and try to squeeze in some quality time with sis, while my youngest is finishing up his degree. My parents have home care been a real struggle getting good care-dad falling, not kept clean things not going well on that front. Even with help from the outside-responsibility for keeping things afloat would have been on me. I am one person-I knew I could not do the job of 4-5 people that would be available and involved with care at a community. My second job getting parents to the dr. and doing their bills, taxes and pills in my spare time. I had to say no at some point-I can not do all of this indefinitely. My sister has since passed away only 2 years after moving here.

Do I wish now that I had ended up bringing my sister home? I dont know that we would have had any more special moments or not, would she have lived longer? I dont know that either. Would I have been exhausted trying to do everything all day? Yes. I knew it would be too hard to try bringing my sister home to my house and then say sorry sis I can not do this any more and then take her back to a community if I could even find a spot during covid would be nearly impossible to do.

We have to make tough choices-I am sorry I could not stop the disease/let alone modern medicine could not save her either and have more time with my sister. I had to accept that I am one person although- I would try to give it my all I am not wonder woman. I had to accept the trajectory of my sister's life was going to be basically what it was-a few happy moments when she knew me and knew my name, a few good days, a few good conversations, a few visits to Bob Evans for blueberry pancakes was all I could do/give during a Covid year. I was able to give sis a lifetime of love, kisses and hopefully comfort during her last week of life in Hospice.
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Please understand that your vows were to your husband, not to your mother and you are responsible for a dependent child, even by law. So, much as you love your mother, she is the third in line for your caring. Life moves forward. She cared for you, you care for your child. It cannot fully move back
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