When I was younger there were no elders in my family, extended family, or friend's families who had this awful disease. My elder relatives were very much a vital part of our lives and integrated into everything we did. I know it wasn't called Alzheimers back then, but I knew very few people who had diminished mental capacity as they aged. Fast forward to the present and it seems that so many more seniors are afflicted with this illness.
Is the cause environmental, from having less healthy diets and lifestyles than past generations, social deprivation, or from living longer lives. It seems so odd to me that we would have this tremendous leap in cases in such a short period of time.
I also wonder if it is coming from a shift in our thinking about aging. In the past most people did physical labor until the day they died. We did not warehouse older citizens or make them feel like their usefulness was up. My grandfather worked on his farm until his 80s. My grandmother was dancing 2 weeks before she passed.
If it is a societal issue, that troubles me. The last few decades have ushered in a youth-fixated philosophy, so much so, that the media and advertisers try to suggest that people in their 40s+ are "old." We separate generations and grandparents are just for "visiting" on Sundays. Could lack of inter-generational contact be contributing to the cognitive issues we are seeing now? I don't know.
I know very little about this illness, and am hoping others will share their theories. I hope we find a cure...it is such a dignity-robbing disease.
And it is also somehow connected to the reason why nitrites are so bad for the brain, but I don't remember the details.
Nice to see you again. I appreciate your input and directing us to more info. about coconut oil.
Lilli
Interestingly, a spokesman for Alzheimer's Research Trust says "The most exciting implications are that some diabetes drugs have the potential to be developed as Alzheimer's treatments."
I feel that Menopause is a natural process and should be left alone. Our brains and bodies as women are wired to go thru this change. And when you are a healthly woman who adverts menopause, what are the longterm effects?
My mother was always a healthy eater, very active, never drank nor smoked. My moms only downfall was OCD and anxiety issues never treated. Which could play into the Dementia too.
My other theory is moms father had resonable early onset ALZ. But 20some yrs ago it wasn't heard of to much. He never had an autopsy to confirm. But he was referred to as "senile". My memories of him I seen alot in my mother. I do believe strongly in Genetics. My grandfather was a sufferer of OCD and anxiety issues along with others in his family.There have been alot passed that was considered "senile" So maybe the "weakness" mentally is there for Dementia and how we live our lives might be a factor if we will develop Dementia. Its scary cause I am my mothers child and I do see some patterns in me that align with mom. Moms obsession was "cleaning" and "pleasing" she lived in her own world of reality. I am obsessed with "pleasing everyone" I have the approval addiction. My sister is a hoarder and shopaholic, and my brother is a drug addict and compulsive liar. All 3 of us at one point in our lives have suffered from sex addiction. We all have inherited some form of mental weakness. And it goes on now to our children. My nephews have problems(1 has ADHD, one is ADHD with Aspergers syndrome,and one is Autistic and I am now starting to see some issues in my older child. So since there is such a prevelent psychalogical pattern in our family does that mean we could possibly suffer from dementia at some point in our lives? If there is an accurate test I want to know about my possible future. So I can do everything in my power to prolong it now.
yellowfeever, if it is true that something like 50% of all people who live beyond 80 have some form of dementia, then it is probably best that all of us consider the possibility that it could happen to us, whether it seems to be in our gene pool or not.
mental stimulation, or social activity. My mother has been declining for 5 years, since age 80, and she ate an incredibly healthy diet, exercised regularly, including yoga, weight training and aerobics, is a college graduate who read avidly( serious fiction and non-fiction, not romance novels and People magazine), and was socially active and involved in community activities. She was adventuresome in every way, traveling and expanding her horizons. My grandmother also had Alz.
and she was college educated, active, lively and social. This disease strikes people of all backgrounds, personality and intellect regardless of their diet and exercise regimen. My mother was the least likely candidate for this disease except that her mother also had it, and probably her grandfather as well. It's much more likely to be related to genetics than anything else. There are a lot of people out there who just believe nonsense!
No one knows yet exactly what causes dementia. Therefore we don't know how to prevent it. The advice to keep fit and healthy and to exercise your mind is not intended to be a prevention but to build up resources to cope if dementia strikes. Staying mentally active builds new pathways in our brains. The more pathways we have, the longer it will be before the dementia pathology can take them all over. In fact, keeping mentally active in the early stages may (we hope) keep building pathways that the pathology has to subdue, lengthening the early stage.
If you mother had been less fit and less intellectually active, who knows? Perhaps she would have started declining noticably at 70.
At this point there is no known way to avoid getting dementia. Being physically healthy is an asset if you do get dementia, and having lots and lots of pathways in your brain may keep the pathology from being so immediately successful.
It is kind of insulting, isn't it, to think of your mother and grandmother and my husband and the loved ones of members of my support group and hear that staying mentally active prevents dementia. Nonsense!
So do the crossword puzzle, match wits with the fictional detective, balance your checkbook by hand once in while, learn a new piece on the piano -- use your brain! Not because then you won't get dementia, but because you will have more resources if you do.
"Did she limit her fats? And did she use unsaturated oils?"
That is right on the money.
As a point of reference, the brilliant physicists who worked on the Manhattan Project all understood that they "Stood on the shoulders of giants". IOW, their work would not have been possible without all the theorizing and research that had gone before.
Now comparing that to nutrition and in particular Essential Fatty Acids, then back when catchlab's mother was in her 30's, 40's, 50's, and maybe even 60's, their were no EFA giants in sight. So IF the EFA's truly are ESSENTIAL - meaning that you MUST get them in your system or suffer long term degenerative consequences - then how likely is it that his mother really had ideal nutrition? Not very, IMO.
Anyway, it's very late now, but since catchlab ended that post with the incredible statement that "There are a lot of people out there who just believe nonsense!", I will just provide 2 quick scoops of.... nonsense.
First scoop, from July 2008, "medpage today", reviewed by Zalman S. Agus, MD; Emeritus Professor, University of Pennsylvania School of Medicine:
"In patients with early Alzheimer's disease, a high level of cardiorespiratory fitness was associated with less brain loss in the hippocampus, a cross-sectional study showed.:
"All analyses were adjusted for age, gender, education, and whole brain volume. "
"We found that, in early-stage Alzheimer's, cardiorespiratory fitness is correlated with regional brain volumes in key areas affected by the disease," Dr. Hornea said. "This suggests that maintaining cardiorespiratory fitness may positively modify Alzheimer's-related brain atrophy."
"She said that "this is the first study to show any relationship between fitness and the hippocampus in Alzheimer's patients."
"An association between physical fitness and the degree of age-related brain atrophy has been established in healthy patients but not as well in those with Alzheimer's.
"This is the first time that MRI brain imaging has been used to demonstrate the connection between cardiorespiratory fitness and Alzheimer's-related brain changes in the hippocampus, an area of the brain important for memory and spatial navigation. In Alzheimer's, the hippocampus is one of the first regions of the brain to suffer damage."
So folks, think about that. If ordinary, run-of-the-mill age-related brain atrophy correlates with dementia, and "cardiorespiratory fitness" correlates negatively with the brain atrophy, then what does that suggest?
Second scoop of nonsense, from July 2011, an article entitled "The 9 Brain-Fitness Foods that Protect Against Alzheimers Disease":
"Research published in the journal Archives of Neurology indicates that certain foods protect the brain and reduce the chance of developing Alzheimer's disease."
"The researchers were able to identify certain dietary patterns which correlated strongly with a lower risk of Alzheimer's. The diets which seemed to protect the brain were high in omega-3 fatty acids, omega-6 fatty acids, vitamin E and folate. The brain-fit diets also featured lower intake of saturated fats and vitamin B12."
"It was found that the participants who followed this eating pattern most consistently had a 38% lower risk of developing Alzheimer's than those who deviated from it most widely. Interestingly, it was discovered that the use of dietary supplements and/or alcohol did not affect risk levels for developing Alzheimer's."
Coconut oil, anyone?
My husband participated (as a subject) in a huge international lipid study, for 9 years. We followed the "heart healthy" diet through that period.
In that 4+ decades I've come to some conclusions.
~ The human body is amazingly adaptable and can get by on eating meat, not eating meat, eating nuts, never having access to nuts, eating earth worms, eating fruits native to the person's habitat, eating fruits from far away, etc. etc. etc. Truly amazing.
~ What is health-promoting for one person is dangerous or deadly for someone else. (Peanuts anyone?) What is adequate intake of particular nutrient for one person is a deficiency for someone else, and an overdose for yet a third person. We are each highly adaptable, but we are also unique and have our own limits and needs.
~ What we can "get by with" is not the same as what is optimal.
~ Nobody knows for certain what is optimal. Nobody. Not a hundred years ago, not forty years ago, not today. But we do keep refining our notions of what is best for us.
The official version of what constituted "heart healthy" food changed in the course of the 9 years we were in the study, and has continued to change since. I'm all in favor of further research. I just don't take any of it as the final word on what is optimal.
The American Diabetes Association changed its stance on sugar in the 1990s, based on a better understanding of how the body (most bodies) metabolizes carbohydrates.
If you are going to eat a "healthy" alternate diet, you'd better pick your guru, because what one toutes as essential another disdains as harmful.
I don't believe that dementia is caused by a lack of coconut oil any more than I believe that headaches are caused by a deficiency of asprin. That something may alleviate a problem is not proof that it is lack of that something that caused the problem.
And yet, without having the final word on what is optimal for feeding the human body, mankind has managed to survive and even thrive, eating what is available.
I try to eat a wide variety of foods. I try to minimize the amount of highly processed food I eat. I try (not always successfully) to eat amounts that maintain an even weight and energy level. I take every nutritional proclamation, whatever the source, with a grain or two of salt (which is pretty much all the salt I need).
You are right that different people react different ways to different foods.
But the one thing that I have seen to be true across the board is that when we try to improve upon the original, we mess things up. Margarine never held a candle to butter, the scientifically altered canola oil does a lot of damage that olive oil never did; forcing ourselves into a low fat diet by eating only egg whites and not the yolks; or drinking milk that has been stripped of its natural fats and enzymes instead of straight from the cow; or isolating parts of a food and turning it into supplements or even sugar, never works as well as the way God created the food to be eaten in the first place. The more man plays around with our food sources the worse our health becomes.
Linus Pauling was a bigger and more credible proponent of vitamin C than Adele Davis, wasn't he? That didn't make him right, especially for your family.
Do you think it is OK to monkey around and develop new strains of apples (mmm honeycrisp) but not ok to come up with new plants to produce salad oil?
I think our brains are our greatest natural resource, and the ingenuity we come up with to feed ourselves is pretty remarkable. That we often don't get it exactly right doesn't surprise me -- hey, we are human -- but not all of our efforts are counter productive. I'm pretty happy to drink pasteurized milk -- thanks Louis -- but I know there are others who think we'd be better off drinking it raw. Isn't it great that we have so many choices and can usually follow our own preferences and beliefs?
When German neurologist Fritz Heinrich Lewy identified clumps of what turned out to be microscopic deposits of alpha-synuclein protein in the autopsied brains of persons with Parkinson's disease a hundred years ago, I don't think he was looking at the result of too much canola oil or skim milk.
But, since no one knows the exact causes of dementia pathologies, speculation as to whether and why it has increased is wide open and interesting.
As far as the apples are concerned, I do wish we could go back to the original strains, but that is not the same as what they have done with canola.
But this is not what we are discussing here, and all I want to do is explain my own and my husband's experience. It could be that he was miraculously healed of dementia and the coconut oil is just a coincidence. It was a miracle either way.
I've read that if you live to be 80 your chances of developing dementia are 50/50. Yikes, I hope that isn't true. But let's just use that as a discussion point.
I spent some time looking for population of the US by age.
population age 80 and older
In 1900 : 373,847 (less than .05% of the population)
In 1950 : under 2 million (I had to estimate from graphs)
In 2000: 9,184,954 (more than 6% of the population)
I came across a couple of sites with neat animated graphs that showed age groups as portions of the total population and how they shifted from decade to decade in the last century. Oh my stars! The aging of our population is staggering seen that way.
Many people, of course, develop dementia before they are 80. (My husband was 77.) But just using the 50/50 prediction and age 80, assume for a minute that dementia has not been increasing but has held steady. (We don't really know, one way or the other, since we only have recent statistics to look at.)
That would mean in 1900, less than 200,000 cases of dementia ("senility") existed in the US, and no one was particularly keeping track of them.
In 1950, less than 1,000,000 cases existed, and we still were not accurately diagnosing or tracking them.
In 2000, about 4.5 million cases existed, and they had all kinds of publicity, research, fund-raising, and public awareness focussed on them.
Why do we hear of more cases now? It may not because there really are more, proportionately. For all we know, dementia might be decreasing (I doubt it, but we have no proof.)
With the population much, much larger, and more importantly, with the portion of the population within the age range of typical onset of dementia increasing even faster, how could we not hear more about this devastating disease?
Catchlab, You say "most people would agree that coconut oil does not cure dementia nor does dementia get healed spontaneously by anything. At this time, it is progressive and irreversible." There are a few hundred people in this area, including doctors and nurses, who would have to disagree with you after watching my husband get worse and worse until he had cognitive skills of 11 out of 30 and then suddenly "get healed spontaneously". So stick to your story if that is what you wish to do, and I'll stick to mine because I am an eye witness to the fact.
If there are more, orangeblossom5's observations about cultural changes in attitudes toward the elderly and the dispersal of family geographically seems logical and compelling. But it breaks down as I try to apply it to the cases I know. Our 5 children lived within easy driving distance when their dad was struck with dementia. There was no estrangement. We did family things together. He was active socially and mentally. He enjoyed retirement. He did not feel useless or disregarded. That explanation just doesn't fly for him. Dr. Thomas Graboys (Life in the Balance) was at the pinacle of a highly regarded career in cardiology when he was struck with Parkinson's with Dementia. There is no indication in his book that he was estranged from his family or had feelings of lack of worth. The societal explanation offered by orangeblossom5 is interesting, but it just doesn't seem to match the celebrity cases we all know about or the private cases I hear about in my caregiver support group.
Those of you who are caregiving someone with dementia -- do those societal changes fit the situation of your loved one?
My husband’s story is somewhat similar. His diagnosis is Dementia with Lewy Bodies, and he dove into it at the deep end. He had sudden onset of very severe symptoms 8 years ago – cognitive decline, memory problems, paranoia, hallucinations, mobility issues, frequent falls – it was terrible. These started in June and by October he was in a wheelchair. His cognitive test result the first time he went to Mayo clinic was 7 out of 38. I’ve just looked through the annual records from Mayo, and other years the test results were 33, 30, 35. This year it was 29.
He still has dementia. He did not return to “normal” as Bruce did, but he bowls each week, he is very high functioning, and has a decent quality of life. Most importantly, instead of needing 24/7 care of a skilled nursing facility he is doing fine at home. I say that we’ve had 7 years of early dementia, and 1 year of advanced dementia, and the advanced year came first!
If I had been doing something deliberate or unusual in those first dreadful months, like giving him rhubarb juice daily or soaking his feet in Epson salts, or giving him lard spread on Wonder bread, or holding a crystal pyramid over his head and reciting an incantation, or feeding him coconut oil, you’d better believe I would give it credit and that I would still be doing it. But we did nothing of the kind.
Catchlab is correct that at this time dementia is progressive and irreversible. And yet, Carol, you and I have experience of apparent reversal or partial reversal of apparent dementia. (My husband is not the only person in the Mayo study that this has happened to.)
Wow, huh? How can that be? Nobody truly knows. (Researchers now have some theories in cases like my husband’s.) In Bruce’s case, it might indeed be coconut oil that makes the difference. That doesn’t account for our case. Whatever is behind these “miraculous” improvements, I hope science can identify it (or probably more than one it) and use it to help other dementia victims.
Until then, I am truly grateful for our partial reprieve.
And I don’t think that our unusual experiences really answer why we hear about more cases of dementia today than we did in the past.
Talk about a brain teaser. Daddy used to say "When in doubt, find out. Don't jump to conclusions."
Gotta go pump up. See y'all later.
-- Ed
I am curious! I seen coconut oil at walmart and its not expensive. Maybe I'll get some on Monday after moms dr appointment. I was thinking of starting a discussion thread on here to track moms progress good or not or maybe an outside site blog. Mom eats a pretty good diet(pureed). Everything I feed her because of low food intake is healthy. So if this oil does help it shouldn't matter what stage of Dementia your in.Though chances of later stage improvement might be slim or slight. I am going to experiment with a open mind. Since mom is bad cognitively I would notice any improvement. I am not going to let my mind use the wonderful "power of suggestion" I am going into this with no expectations.
I am NOT trying to disprove Carol. I just want to see it for myself. I will let everyone here know when I start.