Hi All,
I'm glad I found this site!!! I've read some of the postings and (WOW)you start to wonder if things will ever get better. My mom is driving me crazy. I find I spend less and less time trying to have a conversation with her...it's too much work! And then I think to myself when she's gone that chance will be gone forever, so I try, it's very hard but I'm trying. I finally joined a local support group in my area...it's the best thing I've ever done. I have four siblings but I'm carrying the full load. I'm her primary caregiver, which I say she treats me one step above a slave...I don't even smile around her anymore, just taking one order after another. I find myself telling her the kitchen's closed! This isn't the Ritz! I will go to my second caregiver meeting on Tuesday...I can't wait! I need to breath, I need to be around other people. I seem to dream about just having one day to myself, one day to do absolutely nothing!
Austin, good news for you! You go girl!! Verbal abuse is so hard if ever to recover from. When you get a good medical staff behind you and social worker, man is it awesome to deal with. They won't fall for your husband's crapola. You keep taking care of you. Learn that the word no is okay and no one ever died from saying it. Your health comes first because if you aren't cared for how can you give to others. Its like an engine with no oil... it won't run. You soak up that oil (so to speak)! :)
To all, thanks for always sharing! All of you inspire me.
The latest one she has done to me is this:
I started doing her nails when she was first on hospice, hoping bright colors and fun flowers would cheer her up. A year later it is the dumbest thing I ever thought of.
Friend: Zelda, (As she holds up her hand looking at her nails).
Zelda: Yes....
Friend: I have a chip.....right here.....
Zelda: Yes....
Friend: Fix it!
Zelda: We just did your nails two days ago.
Friend: You're not going to fix it?
I just shook my head and walked away.
When she was well she was never like this. So frustrating!!
My mother on the other hand has always been deceitful, so now with her escalating, its really nothing new. I'm not surprised by anything and to be quite honest, I now joke with the staff, and use their wonderful skills of creativity to get mom back so to speak.
It helps lighten the mood with the caregivers and it also gets mom to get out of herself. Although she's REALLY stubborn. The staff has to use extraneous extreme creative excuses to get mom to do even basic like bathing and going to the dining room.
All I can say is for those who have their health as older individuals, thank God every day for every moment. He has given you the breath for another day.
God bless all of you!
It's so hard to talk to anyone outside the immediate parameter of care. I don't understand why I jumped in to take care of her, let alone explain it to my younger friends. I sound petty when I tell these stories to others. The hospice nurses try to help, but when the patient refuses, you have no choice. All they can do is what she agrees to have done.
It can always be worse and in many of your cases it is. My heart goes out to all of you! God bless you all as well!
This is a rhetorical question (you don't need to answer us/me)... with 9 siblings there would seem more that might be willing to help. Is this about you controlling things or don't like how your siblings contribute? Are your expectations of caregiving overwhelming your siblings?
This is not easy especially when you are healing. Sad to say my mother is just too narcissistic for her own good and she's diagnosed that way.
My two cents ends here... find small boundaries you can put in place to help in your recovery. Although boundaries can be really scary, they can also help bring health and stability (whether one- or two-way) to any relationship.
He who does nothing accomplishes much
this doesn't mean you do nothing it means you do not plug into her negative energy and do not react because thats just what she wants I walk around shaking my head yes and thats the end of it. I have my own thoughts naturally but I never voice them anymore cuz I couldn't win anyway. try it see if it helps your stress level, if necessary talk to your doctor and see if he or she can give you something for anxiety and or depression or stress I take a tiny does for anxiety and depression it makes a lot of difference to Good luck to you
Mitzipinki, you are correct, with so many siblings one would think there would be loads of help, of which I would welcome with open arms, no strings attached. Honestly speaking, I do not want "control" over my mother and that is why i refused to hold the POA over her in case its needed. My younger sister has that title, and I'm grateful to her for taking care of that. I have 6 brothers and 2 sisters. My older sister lives, as I said, 30 minutes away from my home here in Florida and she has made no effort to visit mom and has called 4 times in as many months. My younger sister lives in New Jersey and is the only other child that has done anything, unfortunately she's too far away to be hands on. 3 of my brothers live in NJ and the other 3 are in S.Florida about 3.5 hours from me. Its rare if any siblings, other than 1 brother and younger sister call mom, much less try to see her. I have no expectations with regard to care giving for our mom. Sadly enough its to the point that the only thing that I do expect is nothing from any of my siblings. As I said, I would welcome help of any kind from them.
I want to smile and laugh again with my mom and fear that if things keep going on like they are, it will never happen.
Today I have to bring her in to her cardiologist to see what she's decided to do with respect to the pacemaker and defib he wants to put in her. I'm not looking forward to the stress it will inevitably cause. As mom refuses to believe that there is any issue with her heart, even though she knows she has congestive heart failure.
So needless to say, I feel as if I have the weight of the world on my shoulders at present and fear that I'll have a nervous breakdown trying to hold it up.
I don't ever recall her complaining just about every little thing, every little ache and every little pain. I understand that her age comes in and plays a few factors given the fact that she's 78 years old but this isn't an insane asluym.
She does nothing all day, grunts and groans when I merely mention the fact that she should do a breathing treatment or remind her to put her oxygen on at night. She doesn't hardly eat.. when she came down 4 months ago she was a hefty 178... and now.. she's down to probably 138 if not less. That much weight loss in such short of time for an elderly person is not good.. and I'm -not- a doctor! Im just the 21 year old granddaughter.
It kills Me to see the effects of what this is doing not only to My mom.. but My grandma and also My father.. this is destorying this household.
My mother as she mentioned had 8 siblings.. 1 helped My grandma down here.. grandma talks to a few of the other kids.. but in all honesty? they really could careless.. it really doesn't take much to drive 30 minutes out of one's day to pick up the mother that one says that he or she loves and spend the freakin' day with them.
I struggle to understand and comphrehend today's day and age.. how humanity works.. I just.. flat out don't get it.
This is the second grandparent I have seen wither away before My eyes.. I don't think that My mom can handle it for much longer.
Being a smart ass is like.. second nature to Me.. ask My mom. Haha.
I considered getting a place with My grandmother before she actually moved down.. I couldn't possibly now.. Its so difficult to juggle not only My grandmother.. My mom and taking care of her and then showing the concern for my father that I do.. I have no time or even any clue of how to have a personal life.
I feel like I'm splitting into like 5 and I'm not trying to take away My mom.. she knows I love her, I would hope that my actions have proved this. Perhaps not My words at all times.. but atleast My actions.. as the saying goes actions do speak louder than words.. it was My momma who taught Me that.
Anyways.. Sorry for the minor rant.. its time for grandma's cadiologist appointment.. I'll bring a body bag just incase.. 3 generations in one tiny car... oh the joys!
My time will come when I can take care of Myself.. I just wish it was now but due to the circumstances at hand.. I don't see it happening for a little while longer yet and that I think I'm slowly starting to accept.. don't like it.. but thats the way things go. My family comes first.
Neonwocky Oh I know girls younger than My age who are pregnant or already have a child.. its saddening to see it.. if I can't take care of Myself muchless provide for My family the way My heart aches to.. how in the world could I care for My own child? I couldn't, it would be absoluetely impossible. When the day comes that I have kids.. I want and -need- to provide them with a good sturdy home and steady income so they can live a proper life.
The appointment went fairly well, I just hope and pray that the doctors words rang true within My grandmother's ears and that they sink in deep. She's got a big decision to make. Her life depends upon it wether or not she knows it. There's nothing that Myself or My mother can say anymore.. its up to her now.
Sometimes.. I wish I were Super Woman, but alas. I'm not.
Yes, she knows full well whats going on, she has full cogniction about the current situation of her health. If it were up to Me or My mother.. she would already have had the procedure done. The doctor wants to put in a pace maker as well as a defibulator and a third wire along with that to strengthen her heart.
Dinner is cooking and the Father is Home, so I'll be back a little later to talk and or yammer away some more.
We have my elderly dad living with us (and our 2 teenagers and my husband), we try to keep in mind that our elderly parents are just that .... elderly. With that comes a certain degree of childish behavior, selfishness and "tunnel vision" wherein their lives are only about THEM. It's really okay when you keep it in proper perspective, and treat them as kindly and considerately as you can. We don't get any help from my brother, or any other relatives. But we've networked with our good friends, who look in on my dad when we're out of town, or need a vacation. There are other vacations when we take dad with us. If he gripes or gives us a hard time about it, we simply explain that's what's been decided .... there are also vacations he's included in .... and this one we're taking on our own. End of story. We're middle-aged adults, and we draw the line in the sand. YOU make the decisions that you need to, and don't allow your parent to guild you out of them. It's a sacrifice, and often an inconvenience, caring for our elderly parents .... but it's also very loving for them and rewarding. Let's all tough it out for the right reasons, and try to look beyond the temporary annoyances.
Don't be frustrated about posting. If you are here because mom is driving you crazy, well.... welcome to the club.
I had to get my mom's medical report from the last hospital/geriatric psych unit she was in and I was reading the reports. As much as I cannot stand her, I cried when I read some of this doctor's notes, etc. It breaks my heart to see someone so sad and so miserable, but yet at the same token I read some of her comments to staff about me, and I couldn't help but think, "There's the mom I know."
There's an old saying that is "Hurting people hurt others." It may be for our lifetime, it may not be, but its true. I'm trying to forgive mom. It's hard when I don't know the "why" behind the treatment I've received over the years, but in order to move on, God has asked me to do.
I still can't spend more than 15 minutes or so at a time, but I realize the hurt. Boundaries with tough love. The toughest job of all.