Hi All,
I'm glad I found this site!!! I've read some of the postings and (WOW)you start to wonder if things will ever get better. My mom is driving me crazy. I find I spend less and less time trying to have a conversation with her...it's too much work! And then I think to myself when she's gone that chance will be gone forever, so I try, it's very hard but I'm trying. I finally joined a local support group in my area...it's the best thing I've ever done. I have four siblings but I'm carrying the full load. I'm her primary caregiver, which I say she treats me one step above a slave...I don't even smile around her anymore, just taking one order after another. I find myself telling her the kitchen's closed! This isn't the Ritz! I will go to my second caregiver meeting on Tuesday...I can't wait! I need to breath, I need to be around other people. I seem to dream about just having one day to myself, one day to do absolutely nothing!
My mother's talk is usually confusion and self absorption, but her mind is not well. At one time she wasn't such a nice person, so we don't have that great a relationship to build on. She tries more now and I know she needs me. I let her talk and if it isn't important, I don't correct her. I've heard all the stories a hundred times, but I let her tell them. And yes, I feel antsy, but it is because of the other three things that I need to be doing. She isn't doing anything wrong and pretty soon she won't be able to tell these stories.
In the last five years I've learned that how I feel depends so much on the way I look at things. I still get very angry when she does things to upset my apple cart, but the little things don't bother me like they once did. I'm not able to be as nice as some of the carers on the group are, but I have gotten expert at tuning my mother out when needed. That helps me a lot in caring for myself.
It just seems to be an endless cycle of one doctor after another. She is not content. As I stated before, I care for her full time with the exception of one morning a week when I check in at the office. Most of my work can be done at home. She hovers over me continually. Conversations are 90% negative, about her health issues, things that happened 50 years ago. I've tried to shut those topics down and told her most of what she was complaining were decisions and situations she chose to be in... I've heard the same stories over and over. I am now telling her when she starts up with one... "I know, you told me that." Or, "I know, I lived through that too - remember, I was there." If she's not complaining about the past, it is: her bowels, not sleeping, her skin, her clothes, her food... and on and on and on. I told her once to let me know if something was right, that would be refreshing to hear... just once.
Thanks for listening, I just felt like I was going to explode this morning.
I am entirely alone no emotional support,etc. I have had mom with me for 9 months now with Alzheimers and when I mention nursing home, she states well, I looked after you when you were little. Talk about guilt---I don't know what to do. I am 62 with heart problems and she is not too much trouble, but does have poor toileting habits and when I take toilet tissue , she gets mad. I have to monitor bms etc and can not leave her alone. I guess I will do this until I drop dead or whatever. I cannot use assisted living because she nor My brother left her well off and stated he was leaving 160 thousand for mom---Now talk about anger.---I have it and could KILL her and Him for not putting money in trust for mom. I think she coerced brother but cant prove it.
The idea that this elder can dominate your life and load you with guilt is terrible beyond words. This ruins lives. I have huge sympathy for anyone who is mentally ill, and I'm assuming that anyone who acts like this must be mentally ill, but it's not okay to destroy the family.
Do what you must to take care of yourselves - all of you in this position. I'm so happy to see how you support each other in this community.
Carol
My Father was wonderful and could make you see the funny side of anything, I vaguely remember being like that as well,
He once said to me laughing "I would hate me as well, if I was half the son of a b she tells me I am everyday" 2 weeks before he died, he finally gave up and came to my house, and said I can't take it anymore,,, Now my Father was a big guy, so the phrase "abuse" would never enter into his vocabulary, especially where my Mother was concerned, How could he admit to the emotional and verbal abuse My mother reaped on him every single day. I think he thought it would make him less of a man, in any event, she had threatened to kill him in his sleep, and he had, had enough, he said he believed her, He came to me and asked if he could move in with us, I told him no problem, its about time. We were in the process of changing our house around to accommodate him, as he still didn't want to just up and leave after 50 years, he said wait for the next outburst, when she attacks me again, and I'll just leave then, His only stipulation was that I had to look out for her, after he left, He was killed in an accident 2 weeks later, When the police called, for a moment I was sure my Mother had killed him,,, Myself, My husband and children miss him every single day,
Now we are left with my Mother, with nobody to vent her never ending rage on, it would seem I have the job, and would like to resign, as I don't ever remember applying for the position.
I can send her into a frenzied rage, which involves screaming hurling profanities, name calling, and on many occasions its in a very public place, It can be for something as little as reminding her she didn't need eggs, it was milk she needed, while standing in the grocery store, She actually seethes, teeth clenched, her face gets beet red, she growls and pants trying to catch her breath between the rants, It really is something to witness, as long as your not the target, You would be surprised at how often it happens,
Its funny though this upsets my stomach to the point I'm physically ill, However when she is telling somebody about my Father, and what a wonderful man he was and how great a relationship they had, and how she misses him and they were never apart in 50 year, blah blah blah, I have to walk away, I can't take it,
We lived with her while our house was being build, 15 years ago for 6 months, It was a completely separate apartment, still she kept letting my dog into her part of the house, and every night getting home from work, I was met with a list of things the dog had done, 5 solid months of constant complaining and threatening, and whining, I finally gave the dog to a friend who had a farm for the duration of our stay with her, Unfortunately the little guy was killed by the coyotes on the farm, before we could get him back, I have never forgiven myself for this, I loved that little dog, My Mother when she found out,said Hm that' s horrible, he probably died thinking you didn't want him, and went on eating her dinner, My Father quietly cried. For this I loved him even more..
So when she is acting out, calling me names phoning me upwards of 20 times a day, with every single crazy thought going through her head, I can tolerate it most days,
When she starts telling people how wonderful she was to my Father and how much they loved each other and how she misses him, and then there are the stories about the little dog, how smart he was, how much she loved him and she wished I had never just given him away like so much trash.... Its all I can do, not to strangle her.
My Mother in Law, was talking about her sister, (whom is very kind, and takes in all the strays more people than animals and gets taken advantage of daily) when she said, "Age doesn't make people mean, gullible or kinder, , it just makes them more of what they already were"
I believe this completely as my Mother was never the kindest person, and now she is truly manipulative aggressive and evil. I think the subtleties of the unkind innuendo, malicious gossip and slightly racial slurs, evade her in her old age, and she has to say exactly what she thinks, and none of it is nice,
My siblings have stopped talking to her, some several years ago, Unfortunately with her manipulations, they have also stopped talking to me as well, I am certain its all the lies she tells, When she says something really hurtful, she doesn't want to be alone in it, so she says "We" "We think your a drunk" "We think your a liar" This "We" used to encompass my Father, now for some reason it encompasses me,
Lately she blames me for anything and everything that ever was and will be wrong with her life, Then the next day, she is all sunshine and light, and wants to buy a house with us and live happily ever after, I have nightmares about it, because once that happens, there is no going back.
She cries at the drop of a hat, and I feel terrible, however I know her and her every mood, usually people mistake the crying for sadness, its not for the most part, just sheer rage.... I managed to get her to the doctors once, where I took a deep breath and ambushed her, telling the doctor some of things she had done and was up to, She looked truly shocked and told the doctor I was fabricating it and laughed and was witty and funny and articulate, I didn't even recognize the woman in the doctors office, How is this possible, how can she turn it off and on, The doctor sent her for some tests and said if they came back negative, they would send her for and early alzheimer test, 3 years later, she has alienated anybody that every cared for or about her, and still she refuses to return to the doctors, saying he said there wasn't a thing wrong with her,
I am at my wits end, We are all she has left, I am so close to throwing in the towel, that the guilt is overwhelming,
Do we have to wait till she does something really really crazy, and loses everybody, before, I can make her see a doctor
I had people tell me how cruel I was when I changed the clocks ahead two hours because when friends who were watching him got him all out of his routine, dad was MISERABLE. He knew his routine from a lifetime of it that if he got deviated, even with dementia, he was a bear. So to avoid that, I moved clocks forward 2.5 hours so he thought it was one time and would get back into his routine. Did that for about a week to get him back on track. I had to change the clocks when he was in the bathroom cleaning his teeth (over an hour routine since he'd forget he brushed and flossed), so I had time to hit all the clocks or remove batteries. What was more amazing was to watch his confusion between his internal clock and the actual clock. By God that man knew the actual time even though the clock was wrong. I was floored!!! But I did get it to work to put him back on schedule.
You do what you have to in order to survive the situation you are in. Don't feel guilty for what you have to do to keep your sanity, even if that means screwing with your loved one to keep you laughing. Sanity is vital!!!
Its gonna be another fun weekend.
She's beyond annoying...and she always was. She's putting me in a bad spot of feeling guilty because when she's sick or lying sleeping I feel bad. But as soon as she's lucid and talking I feel like strangling her.
"acting like a crazy person (which she is").
thats a factual statement. my mothers haldol is bout worn off, end of month. shes been blubbering and argueing all day long. we just fussed for 1-1/2 hrs about how i could set the house temperature where i want and shed just get an extra blanket and freeze. suddenly she clarified to me that it was hot in here. its like i took a wide circle and punched myself in the face. * sigh *
you could put me in a lineup with charlie manson right now and he would look more lucid than i am.
I just found this site and I can really relate to you all. My life has been centered around my 86 year old. mother. She has been living with me for over 20 years and my husband. My husband passed away 3 years ago and iI have a boyfrined now. she is so jealous of my boyfriend or any friend I want to spend time with. She loves to start arguments and say nasty things . I have found myself distancing away from her adn when I stay around her she just starts complaining about anything she can think of . I want to enjoy her company . I need to figure out waht to do. I dno't want to send her to a nursing home and yet I don't want to live lkie this anymore. I need more options.Tahnk you for letting me vent .