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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
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It may depend on the type of dementia. With Vascular dementia changes can happen literally overnight. (my Husband went from walking one day to not walking the next. One day he was able to shave himself, the next he couldn't) I think many of the stages overlap. My Husband was able to do some things he should not have been able to do and other things he could not do. He was non verbal very early one in the journey with dementia and was able to feed himself far longer than I would have thought.
My advice for what it is worth. Rejoice in what can still be done, mourn the loss of an ability but do not let it get to you as there will be other declines that will happen.
Like Grandma1954 said below it will depend on the type of dementia one has. Vascular dementia is the most aggressive with a life expectancy of just 5 years, and Lewy Body is next with a 5-7 year life expectancy, so obviously the stages go much quicker. Whereas Alzheimer's which can go on for 20+ years the stages will take much longer to get through. So like already said just enjoy each moment with your loved one best you can, because there will come a day when you will wish for just one more day with them.
Not really. And so much depends on the individual diagnosed and what type of dementia they are diagnosed with. Your own physician will likely be unwilling to guess. Reason being? In the past they so often got it wrong. It is very difficult to guess at stages of Lewy's versus Alzheimer's versus Frontal Temporal.
And then you have the individual, who is as individual as his own thumb print. Your best guesswork will come from your loved one's neuro-psyc, but it is a guess.
People on Forum can give you their own experience of the disorders after dealing with them. My own brother was diagnosed with probable early Lewy's by his symptoms. After admission to ALF and my taking over all financial work for him, he only improved in the symptoms, which is unusual in the mind of his doc, and common in the experience of his very GOOD ALF. He died of sepsis after one and one half years, so there would be no knowing where things might have gone, nor how long it would have taken.
I have wondered the same. My mother (98) has been unable to do arithmetic for about 5 years, state the day of the week or year, or her town, or state which of her siblings are living, which are dead for 3+ years, unable to consistently ID me 2+ years, unable to write for 1.5 years, fully incontinent for 1.5 years, asking for her parents daily for 1.5 years, bedridden 1+ years and refuses to feed herself (unless she is very angry) but has good fine motor skills for gesturing and manipulating things. She is very articulate, with a broad vocabulary, and speaks in lengthy, descriptive sentences.
Seems she’s all over the place in terms of stages.
My mom never seemed to fit in the “predefined stages”. I read that in the late stage they lose the ability to walk, swallow etc. My mom was walking and swallowing three days before she died, I know I SO wanted to be able to predict, to have some type of timeline not only for her but for me but, as my friends on the forum taught me, “if you have seen one person with dementia, you have seen one person with dementia”. They all have their own timeline. Some of it may be other chronic conditions that hasten it. Who knows. I drove myself crazy trying to plan it and predict it. It was impossible. Take one day at a time. Enjoy the moments you can.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
With Vascular dementia changes can happen literally overnight. (my Husband went from walking one day to not walking the next. One day he was able to shave himself, the next he couldn't)
I think many of the stages overlap. My Husband was able to do some things he should not have been able to do and other things he could not do. He was non verbal very early one in the journey with dementia and was able to feed himself far longer than I would have thought.
My advice for what it is worth.
Rejoice in what can still be done, mourn the loss of an ability but do not let it get to you as there will be other declines that will happen.
Whereas Alzheimer's which can go on for 20+ years the stages will take much longer to get through.
So like already said just enjoy each moment with your loved one best you can, because there will come a day when you will wish for just one more day with them.
And then you have the individual, who is as individual as his own thumb print.
Your best guesswork will come from your loved one's neuro-psyc, but it is a guess.
People on Forum can give you their own experience of the disorders after dealing with them. My own brother was diagnosed with probable early Lewy's by his symptoms. After admission to ALF and my taking over all financial work for him, he only improved in the symptoms, which is unusual in the mind of his doc, and common in the experience of his very GOOD ALF. He died of sepsis after one and one half years, so there would be no knowing where things might have gone, nor how long it would have taken.
Seems she’s all over the place in terms of stages.
My mom had Parkinson’s disease with dementia. Parkinson’s disease also affects everyone differently.
Focus on her as an individual rather than comparing her to others.