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How do you find yourself with no time off. I care for my spouse and 2 grandchildren . I have done this for 5 years. How do you find time for yourself, so depression does not consume you.

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You realize your limitations and you stop. If you have a sick spouse, your children should be helping YOU, not you helping them.
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You find time. You create time. You realize that you can't do it all and that trying to do it all will make you sick.

Hire a caregiver for a couple of hours a day or have family help a couple of hours a day. Do whatever you can to take care of yourself. You're making sure that your spouse and your grandkids are taken care of. Who's making sure that you're taken care of?

And I agree with Pam. With a sick spouse why are you caring for your grandchildren? Where are their parents?
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I care for my grandchildren 12 hrs a day due to the death of their mother. I have had them for 5 years. One is 5 12 and 1 is 11 1/2. My spouse has heart disease and has had 9 surgeries facing maybe another in oct or Nov. Has defib implanted and not doing well, Married almost 44 years. I think I am having a hard time facing what I know is coming. The childrens father works long hours , my son and takes the children 4 to 5 nights a week. The older one can be a help. Thank you Bjeanette
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Darling girl. Big hug.

My guess is that you are reluctant to admit to your bereaved, hard-working son that you cannot give him as much support as you would dearly love to. I expect you are also very anxious not to introduce further upheaval into the children's lives. You have been a rock, and it must be very hard to back down from that. But life goes on, and things change, and it's time for you to make necessary adjustments.

I'm sure you are finding it hard to face up to your husband's condition, especially with 44 years together under your belt. Keeping busy, aka sublimation, can be very helpful; but at this particular point you instead need the time and mental space to focus on him.

The little one, presumably, sees you as his/her mother? This is really difficult. Any other family members you can call on? The thing is, while it's good that the older sibling likes to help, it isn't good for him/her to have more responsibility than is appropriate.

Your son deserves to be consulted, and for that to happen effectively and honestly he needs to understand the truth of the family situation. Which is that it is more than one person of, forgive me, around 65-70? can handle unaided.

However you all decide to arrange it, you need more hands on deck. Family; a very carefully chosen nanny, housekeeper or mother's help; the children's friends' parents; whoever: more important than the status of the people you involve is that you do, without demur, call on others to help you.

You're not abandoning anybody. You're not going anywhere. But you cannot continue to do all this alone. You MUST be frank with your son and unembarrassed about asking for help. The presence of the children, and your critical role in their lives, make it essential that you all, together, find ways to make this work. Best of luck to you x
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Both kids are in school? I've never understood the "grandparents get to raise the kids" thing. Lordy. But to them? You're their mom, I'd think.

Try to think of what MIGHT work. For instance, dad takes the kids more than just 4 or 5 nights a week. Maybe he picks them up earlier. Keeps them longer. Maybe every night of the week during the school year, he picks them up right after work and brings them back early in the morning ready for school. You feed them breakfast and send them off. Feed them dinner; then dad picks them up. Or dad feeds them dinner. Keeps them all day Sunday; brings them back Monday morning all ready for school. Whatever. Something.

When the kids are with you, I hope you're teaching them responsibility by putting them to work on some level. Setting the dinner table/clearing the dishes. Emptying waste baskets on schedule. Oh, you know, some small 30-minute tasks every time they're with you that lighten your load AND nurture them into acceptance of responsibility.

Quite possibly, the responsibility that's breaking your back, so to speak, is that of your grandchildren. And that, my big-hearted friend, is your SON'S responsibility.

I assume he pays you to watch his children? Why do I make the assumption that he's hooked up with someone? If he's got a two-person family at home, he should have the kids every night for dinner and all weekend long.

In short, I guess what I'm saying is that I know darned well you aren't going to shed the children. They love you like a mom, and I'm sure you love them back more. You can't shed the responsibility of your husband at this time; because you both promised 'for better or worse.'

I'd start looking at my organizational skills. Poke your son to take the kids more to give you just plain old down time . . . get everybody helping out . . . if your son can't really take the kids more because he's working long hours, maybe he has to shed some of that overtime . . . if he's not paying for your caring for the children, then trade your watching the children for 8 hours a week of his helping you in your household some other way -- even if it's just grocery shopping from a list for you.

Become a benevolent dictator. ;) Since I think you're just in a funk right now because of your husband's upcoming surgery, be proactive to grabbing free time by asking those other four people -- two kids, your husband, your son -- to step up just a little more each. Lots of "man hours" there.

I wish you well. I think you're doing angel's work.
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Unlike most contributors I think taking care of your grandchildren is probably what's keeping you going - they are bringing you another slant on life so you're not totally wrapped up in your husband's situation which is probably what will cause you to experience depression. In my opinion you must sustain your relationship with your grandchildren because through this you also sustain your relationship with your son who may be much more inclined to take care of you when you get older and need it - as also maybe will be your grandchildren. They key to your problem is not to push your grandchildren away - you should enjoy being a grandparent - but rather to get help in to relieve you from the constant care routine you have with your husband - you're not a nurse and unlikely to gain pleasure from trying to be one, but you can certainly get many rewards from being a grandma
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I have to agree with Daughteronduty. I've been taking care of my mom almost 5 years and have 6 grandchildren (5 and under) that are here (in varying numbers) 6 days a week. It's exhausting, but the kids are a welcome distraction. As for the depression- I went to 3 therapy sessions. First session I wa diagnosed with "situational depression". Second session we talked in lenghth about forgiveness. Third session began-"I really don't know what else I can do for you. To lift the depresion, you have to change the situation." Needless to say , I'm not going back, but I did take away from it the need to change. I put her in a week of respite for a break. I'm working on arranging more volunteers and agency help. I signed up for a Bible study (haven't gotten there yet, but I'm at least trying.) Hang in there, sister! It's never going to be a perfect situation, but keep evolving the help that you are getting. Just having extra people come in for me to talk to breaks up the day. And keep coming back to this site to vent. We are all in the same boat. Hugs!!
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Bjeanette, first of all depression is common among caregivers. You are not at all alone. You have complications many don't have so don't be hard on yourself for struggling to see this through.

You've gotten several opinions here and all have some validity. So much depends on your personality.

I agree that grandchildren can be a wonderful gift but caring for them as much as you do seems a lot. Please re-read CountryMouse's contribution. You're a mom and you want desperately to help your "child" with his own very difficult situation. However you have a lot on your hands with your husband and as you wisely point out, some of your depression may be about what you know is coming. You can only do so much.

I do think it's time for you and your son to figure out some options that will give you some breaks. I also think that some counseling could help, but as with any self-care, this can seem impossible when you already have so little time for yourself. Just the idea of attending a support group can seem impossible. Yet, you have to do something for yourself or your own health will suffer even more than it has. If that happens, then what? Your son will be scrambling for help with his father and his kids - and maybe you.

See a doctor for yourself. Try a caregiver support group or seek a few sessions with a counselor about your depression. You can't be last on the list or you'll be lost.

Blessings,
Carol
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I know what you mean. I have been hospitalized 2x for depression since caring for my parents. I have since learned to set my boundaries and ask my family for help. But, as a nurse, that is really hard for me to do. So, I am now doing Equine Therapy for my depression. It seems to really be helping. It is one hour every 2 weeks, so I don't feel like I'm totally selfish. I also do a lot of crafts that I enjoy to provide some respite. I still feel like I am on call 24/7, but it feels more manageable now. Take care of yourself, so you can take care of others better.
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DoD, I hope you don't think I thought the children needed to be shipped off somewhere?! - because the opposite is the case. Especially for the older one, continuity is vital - another shock to his system doesn't bear thinking about. But what I do think is that BJeanette needs more in the way of practical help and support so that the whole household doesn't collapse under strain. That's all I meant.
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Hey! Your situation sounds almost like mine...but no husband here, so one less to care for. I care for my mother who not only has dementia, but is on oxygen and uses a walker.

My divorced daughter and I live together, (co-own a house) and since she works 12 hour days, (4 on and 4 off), and works the graveyard shift, I'm needed to care for my very active (ADD) grandsons, ages 7 and 10. Often they come to me even when she is awake.

My mom and I never got along when we were younger, which made it tough, as she was always putting me down. I found myself snaping at everyone and crying a lot.

I went to my doctor who suggested this group, and sent me to a psychologist, who, after 2 visits, dismissed me, saying anyone would feel this way in my situation. Then my doctor decided to try me on anti-depressants. WOW! What a difference! I'm taking Cymbalta. I had to go through a couple of weeks of feeling like crap, but after that, I was a new person. My mom and I get along better now, as I'm able to laugh at her snide remarks, which has her laughing back.

I'm luckier than you, though, because, just as I watch the grandkids, who are in school now, my daughter also watches mom if I want to go somewhere. The grandkids even help when Nana goes without her oxygen or walker. ...and when she 'loses' something, (which is often), the kids can be offered a quarter, (or dollar, depending on how important the lost item is) to scour the house looking for it. That was one thing that drove me bananas, was hunting for her things as soon as she can't find it....she is very impatient. I try to tell her to just sit tight, as it HAS to be in the house, but nooooo...she needs it NOW...lol

I feel for you, and I hope this helps. I've been caring for my grandsons since the older one was 2 1/2, and was really looking forward to them going to school, so I'd have some time to myself. Wouldn't you know, that is when I was notified that my mom could no longer live alone, and I had to move her from her FL home, to here in PA.
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I have the same question as Maggie Marshall, the son must be in what his 30s or at most early 40s? His wife has been gone for 5 yrs, I am betting he has a girlfriend.

I would have a chat with the son and ask him does he want to play the role of the father or be someone's boyfriend? If he wants to date women fine, but find one who is willing to be a step-mom.

I don't buy the "long hours" excuse just by itself, the son is using you to have some time to "play around".

They're his kids, his responsibility first.
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Yes. Very easy to get depressed. I can't wait till it's over, but don't want to lose dad at the same time. It's hard to care for multiple people and have no time to do thingscthat are healing for yourself. Hang in there!
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You're the only one who knows if caring for your grandchildren is a blessing, or if it's too much. It's hard to be objective in the face of responsibilities that can be overwhelming. There is no shame in stating that it is too much, and it certainly doesn't mean you love them any less! Caring for spouse may be more than any one person can realistically handle. I've struggled with caregiving depression for literally decades, and the best I've managed is an anti-depressant negotiated truce.
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It is time for your physician to prescribe an antidepressant.
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You set aside time for yourself and tell the other three, they can fend for themselves for one day! I allow myself Sundays off to go swimming, take in a movie if I like or just get out of the house by myself. No husband, no two dogs, just me to think alone with my thoughts and to talk with new people. You can do this. I don't get depressed (what good would that do, I would still have to take care of all of them?), but everyone who is a caregiver needs space and time alone. Take it, they will survive...
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If you are a primary caregiver for your spouse and 2 grandchildren, I understand you are over worked and it would be easy to fall into depression.
Not sure where the parents of the grandchildren are and why they need to be cared for daily by their grandparents and not their parents. Are their parents deceased? Are they unable to care for the children? I think taking care of the spouse if they need caregiving is enough for you. If the grandchildren have lived with you and your husband since their birth, then they are part of the family. I would try to devote most time to the spouse but the children will normally grow up faster in such a environment. They will recognize your need to help their grandfather or step grandfather.

Even if you were only caring for your spouse, you need to have time to experience life outside of the home with other adults. If you have the funds to pay for a home health aide to regularly give you that opportunity, you need to do it. I would have a regular routine which could be followed with paying for home health aide coverage. Without a chance to regroup mentally you are likely to be overwhelmed.

Good luck. Take care of yourself because without you this family can not function.
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It doesn't even take being a caregiver directly. My loved one is in a nursing home, but I am the Medical POA. I get no support from my siblings for decisions I need to make. I no longer convey all info to them any more because I stopped getting a response; and they don't ask. I feel so very alone with this huge responsibility. It is depressing. And you do need to take care of yourself. If there is a respite care facility that you can take your loved one to for a day or even a few days per week, it would make it easier for you. And sometimes it's better to turn their care over to professionals. You can see that their needs are met, while providing you and your family the time you need together.
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