After mom died and dad had to move out of his place due to no money and falling and being lonely, well I stepped in. My one sibling lived close by and worked with dad and was single and had a house, but no offer to help. The other sibling lived 5 hours away and made a paper-thin offer to take dad but dad called me and asked me to help (I am 7 hours away). Me having one child still home I made the best of it. Sibling #2 said "you take dad 6 months and I'll take dad 6 months. After the cleanout and move nothing. A few trips to #2s house once a year for a week or 2 for a few years but that was it. Now 8 years in and covid and I am stuck. #2 retires soon but has a grandchild on the way. So I ask for #2 to take dad for a month so my wife and I can go on vacation. Nope, "Covid" Dad gets his shots soon, She is retired and the baby is not due till summer. Nothing, "nope there is Covid here". But number #2 can drive 5 hours to get a haircut in another state because the state they are in does not allow the same way due to covid. Then another trip to the same town 5 hours away and will be painting a grandchild's room in their child's house (grandchild wants her grandmother to do it) in another state but that is OK, I guess no covid in that state? Did I mention #2 is a nurse? So it's OK for #2 to travel and go to all these places but not for our father to spend time and see his great-grandchildren some he has never seen.
I'm just tired, our marriage is suffering, not bad but we are stressed and I am asking for help from my sibling. #1 is a write-off so we don't talk. #2 said will still work a couple of days a week after retirement so to have travel money. Funny, I can't travel because our father is a fall risk and can't be left alone for a weekend. #2 calls dad every other day and plays doting child all the while I have to deal with meds, dr appointments, dehydration, altered mental status when a UTI appeared, falls, 3 surgeries, rehab daily visits after surgeries, cooking and shopping, technology support paying for the roof overhead and no financial assistance at all. Anytime there is a funeral I have to drive him many hours to it or in one case flew across the country with him and a wheelchair through airports. At the airport #2 went and got a wheelchair so he didn't have to walk back to the car from our gate after our flight got canceled and #2 ran back to her gate to fly to vegas and left me there having another night in a hotel and meals to get a flight back the next day.
Didn't think this one through when I stepped up to the plate.
Just burned out that siblings do not care one bit to help.
I am so sorry that you are in this position.
Let me tell you, our siblings don’t have a clue what it’s like unless they do it themselves.
I took care of my parents. Daddy died in 2002. Hurricane Katrina hit in 2005 and mom moved in with me. I had her for 15 years in my home!
It’s extremely difficult to be a primary caregiver.
Long story short, I burned out. My brothers didn’t help either and sadly mom expected me as her only daughter to do it all!
Well, after mom stirred the pot for so long and I heard nothing but criticism and spending many hours on this forum and lots of additional time at my therapist’s office, I finally threw in the towel.
My brother and sister in law stepped up and took mom in until she needed hospice placement. Hospice is doing a wonderful job caring for her.
I got the shock of my life when my brother apologized to me. He saw first hand how hard it is. By the way, so did his wife. She helped him care for mom.
It’s a common issue and I really feel that one person can’t do it all without becoming emotionally and physically exhausted!
If placement is feasible, it truly is the best option for everyone that is involved, including the parent. My mom has settled into hospice beautifully.
I am so grateful that her hospice house is there for mom and our family.
Dad got his first shot and now he wants to go places. That is going to be a problem. He went to church for the first time in a year. I dropped him off, his friend brought him back after they went to lunch, It's fine I just don't like her for a myriad of reasons. I got home and she was in my house helping him bring flowers in, a quick beep on my horn to let her know she was blocking my way in my driveway to leave. I guess he thought I wasn't home time to sneak her into the house. NOPE!
I did tell my sibling we are going on vacation for the month and she will need to take dad.... nothing. She will be retired so she has no excuse but I am sure she will come up with one. My backup plan is if she doesn't take him then SHE has to tell him which NH he will be going to while I am away.
My other sibling supposedly has some medical issues but he is a waste. He called my father the other day but was incoherent. Oh well, you reap what you sow.
It is just hard, he is somewhat able. When he wanted to go to church yesterday he was up 2 hours early, dressed down the stairs, and waiting in the driveway for me to take him to church. If someone comes to pick him up he takes his time to get ready but when he wants to do something he is Johnny lighting.
It's just frustrating. Thank you for all the positives. I cant call 911 because I am (Fire/EMS), I can't put him in a home with no money and I cant mentally do that yet. Trying to make my home more handicap accessible is hard. I am just in a bad situation I got myself into. I understand someday I will look back and say I did the right thing it's just now I am in a place with no help.
The truth is that we place entirely too much importance on what others think and not nearly enough on what matters the most in our own lives.
Focus solely on making arrangements for the proper care of your loved one that doesn’t include direct care from any family members including yourself.
One step at a time, one day at a time, things will fall into place.
Once you step away you will breathe more freely and be proud of what you have accomplished in spite of any bumps in the road.
It’s normal to grieve for what could have been. You’re entitled to those feelings.
Perhaps this all seems easier said then done. I know how hard it is. Difficult challenges are resolved everyday by people all over the world.
You have taken the first step by reaching out. Stay focused, trust your instincts and move forward in your life.
If you need help, don’t hesitate to speak to an outside objective individual such as a therapist or another caregiver who has let go of the primary responsibility in caregiving. They can help lead the way.
Speaking to others will help you gain a proper perspective and receive new insight.
Best wishes to you and your family. There is peace after the mayhem.
There are 4 other siblings, here's what I finally figured out worked best.
I would send the laundry list of everything going on in a month and then put DATES of appointments or times/vacations I need siblings to do or take Mom. I would also note that if for some reason they could not take her at the last minute, it would be their responsibility to re-schedule her or find her caregiving.
As expected, there would be silence on the text for awhile, until finally someone would cave in and say they would take that appointment.
If your Mom is like most Senior citizens, their finances are very limited, so in-home care is difficult. However, make her Doctor declare them unfit to live without ADL services and Medicare will pay for it. You can get assistance with bathing, medication, feeding, dressing, etc.
Finally, it it gets to you not being able to go on a break for vacation or sanity, then you may have to consider putting your LO in Assisted Living, if Medicare won't pay for in-home 24 hour care for a week or so.
This is such a hard dilema because if everyone is honest, there is not one of us who would prefer to go into a Nursing Home, well because I've seen a lot of them and most of them are terrible places for the elderly, especially for those who have Alzheimer's or Dementia. So, we hate to think about putting our LO in a place we wouldn't even want to go.
I suggest putting the dates up that you need assistance. If no one steps up, you will have to decide if you will continue to take on the full burden or place them where they can get care.
My prayers to you and your family.
Why do I say this? I am also in the boat of FT care to my Mom who is mid stage Alzheimer's. Mom has three other children who do not care. I have accepted this and moved on. We are currently awaiting the vaccine. Once it is safe I am going to take a good long well deserved trip in order to recover from living as hermits during the pandemic. Mom will be going to respite care. I see this will happen sometime late this year or next year. Once we are both vaccinated, I am getting home care so I can have time for myself to do what ever I want. Sounds selfish ? It is not. Even the Sisters of Charity of Mother Theresa take one day off a week to recover from their work. So in order to keep my sanity, and relationships and physical health, YES ! I will be getting help so I can continue to give my Mom a decent and a life of dignity which she and we all deserve.
God bless you and your wife for all that you do.
Im the youngest, there were 5 older siblings that didn't do nearly half of the things I did, and spent almost no time helping out until the very last few days of my parents lives.
I was angry about this when it happened, but since then, most of my family has passed away, leaving me with one sister that I also almost lost due to an exploding brain aneurysm that left her in the ICU for months, and permanently affected thereafter.
Just after that, my brother died in the ICU (52 year old) because of a drinking problem.
I guess what I'm getting at here, is if I could go back in time, I'd rethink the situation, and calmly figure out how to gracefully/peacefully take care of my dad, with or without my siblings help, knowing it's hard, but it's the right thing to do, and also understanding that my siblings may also have deeper life issues that make it hard for them to do it (you can agree it's not easy) and I would be patient hoping that eventually the situation will change and they will be able to do more to help. Most importantly, I learned that they could ALL be gone some day, and when if you find yourself alone like I have, you'll likely wish for them all to be back, quirks and all, help or no help..........I hope things get better for you. Do your best, and be patient.
You sound very healed (despite your name) and wise.
YOU are doing the right thing and try not to worry about your siblings. You will NEVER regret what you are doing for your father nor will your father. Isn't that what matters the most?
Bless you for all you are doing. YOU are a great person and have a heart of gold.
Is there any way you could get your siblings to chip in for an at-home carer to stay so you could go on your holiday?
It sounds like Covid or no Covid, you could really use a break.
I took a 3 day weekend away and hired 24/7 care while I was gone. It was necessary for my well being.
That made a world of difference to me in every way and Mom was so happy to see me when I came back. We both needed the break.
The woman I hired was so wonderful, I used her occasionally, and continuously throughout the rest of Mom’s life. Mom loved her and so do I, to this day.
Even though Mom has passed away, this woman is like a sister to me then-and now.
Shortly before this, I told Niece #1 that my Mother left everything to me in her will (which means Mom dumped everything on me to sort out!).
I'm very disappointed, I THOUGHT they cared about Mom, haven't seen them for 1 1/2 years.
This so-called family, there's not one thing we caregivers can do about it. We are alone and we have to seek help elsewhere, be it hiring people. Don't expect any help if they haven't already offered it now. There will always be excuses and they only want to live their lives and not have it taken up by family.
I know this is not something you want to hear, but honestly, an assisted living facility is a really good option. After a fall last fall, mom ended up in the hospital for several weeks, then into a nursing facility for 20 days, then home for four days when I insisted that mom go back to the hospital. It was a good choice because mom was diagnosed with congestive heart failure during that visit. She did not have it five days before when she was in the nursing facility. Mom is 91.
I think mom was in the hospital for about a month, then she went into another nursing facility for the customary 20 days. From there we moved her into an Assisted Living Facility. It wasn't an easy decision, but turns out it was good. Good for mom, and good for the family. We can't visit mom's apartment, but we can visit in a freezing cold patio. They attempt to heat it, but it doesn't do much good, but at least we can visit.
Yes, there are family issues, and in the long run, I am prepared to not see my siblings after mom passes if it comes down to that. You need some time to yourself, for yourself. I see that money is limited, but there are a lot of options out there. There are VA benefits and Medicaid. My mom did not qualify for any benefits, but after my dad died 25+ years ago, she took out a long term care policy. Where it doesn't pay entirely for her long term care facility forever, it does cut the bill in half. What a blessing.
Good luck to you.
They are either really great or they suck, there doesn’t seem like much in between.
So yes, its very common for one person to take on the task of elderly why the rest sit back and watch from a distance.
Oh, my birthday was a few days ago on the 19th. He "forgot" and the only thing he had for me was a grocery list and mail he wanted me to handle. If you can get out then do. Do it for yourself. Like greed, there is no end to it.
My sister was doing all the care for my mom and I could hear the stress as she dealt with my mom on her own.
I was 1,000 miles away and still working - mom's house had no internet, preventing me from working from her house. I bit the bullet had internet installed - $100 a month - and bought the router etc my self - when I traveled - I installed and then stayed and worked from there for 6 weeks - I had to come home but am going back to just give my sister some relief and as I left - she cried, I am not the only child (I felt so bad for her and promised I would be back) I am now preparing for a return trip. I have a home that has to be maintained and can not stay there full time. but the burden is hard.
The only son refuses to help - but he comes by and mouths do you need anything and when asked - oh, I can't do that. The other daughter only comes by occasionally.
You are a very kind and caring sister. Reading your post put a smile on my face. Both your mom and sister are fortunate to have you.
Great you are getting your Masters degree. You seem to be doing quite well. I am glad you are working and moving on with your life. It difficult I am sure, but good that you are keeping busy working and going to school. Wishing you the best in life and many blessings.
I really sympathize with you. I am not a caregiver to a parent, but to my husband. I know that I am responsible for my husband, but his siblings live near us and doesn't offer to help. My husband has Parkinson's and I do it all for him. The times his siblings have been out here is when he's fell or somethimg else happens. Even then I have to call them for them to come help or even see their brother. I am to the point if I have to call his family to come see their brother, I say forget it. Anyway, I didn't mean to get off the subject, but don't expect anything from your sibling because it's not gonna happen. I'm not trying to sound like a debbie downer, but I have found out when it's time to depend on siblings, most of them disappear or find some excuse not to help. I would give anything if someone would give me a break caring for my husband. I don't mean a couple of hours either. I mean all day. Oh, before any of y'all say anything about an aide, forget that, aides cost money and we're on a limited budget. Plus, I am not impressed with home health care either.
Ok, with all that said I wish you well in finding an answer in helping your dad. It's not easy and you're to be commended for loving your dad enough to take him in. Caregiving is one of the hardest jobs I've ever had. I'm still trying to figure out the rewarding part. So far, I haven't found any reward in it. God bless you!
She's extremely difficult, and also has constant doctor appointments. She has a continual string of demands all day long. When she isn't at dialysis or doctors, she demands to go places meaning much preparation and a walker and scooter. As soon as we get there she wants to leave. The only help I get from my sister is about four hours a week when she takes mom somewhere. We also bear all the expenses for her care, my sister pays for nothing. I know how you feel, it's so unfair and lop-sided, yet many people in the world seem to just look the other way and justify their lack of fairness when it comes to elderly parents. Her excuse is simply "she can't do it". Then why can I, despite all the obstacles I have? My own retirement is ruined while my younger sister enjoys hers. All I can say is I believe God puts it in our hearts to "do the right thing", and we must hang on to that daily...and find our moments of peace when we can. I make the best of any little time I have.
STOP taking him to funerals. Stop catering to him. Next time he falls, call 911, he goes to ER and tell the social worker you can no longer provide care for him.
And you need to nean it and not give in to his whining.