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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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The 36 Hour Day is a classic. I don't think there is anything too difficult for teens to take in, they are more apt to be frightened by misinformation and uncertainty than anything that helps them understand the true nature of dementia.
If you look up "Alzheimer's books for kids" in a search engine of your choice, you will get a nice list of books. You can also look here: www.alzheimers.net/6-03-16-books-for-children-about-alzheimers-and-dementia/
I don’t have a book suggestion, just wanted to say that it’s great to see you wanting to have them better understand and be involved. It’s refreshing to see this reaction vs the all too common shying away and loss of relationship. When my mom was in nursing home, my children were younger and we took them very frequently. They learned a ton by being in that environment. They remember today with compassion the people who were there, their grandmother among them. My brother wouldn’t take his children, he said it was frightening. I think it only frightened him. Children are much more accepting and resilient than adults. Good for you for wanting more ways to explain.
I too just wanted to chime in on giving you kudos for doing this. I didn't think twice about having my young son around my grandmother and I know it has had a bigger positive affect on his life than the relationship with his great-grandmother which was wonderful for both of them. He loved helping to care for her and would take her breakfast tray out to her whenever we visited, I think he was probably around 5 when he started doing this and both she and my mom, who was her caregiver, talked about the vision of this all the time, Mom still does! Now it strikes me just how interesting it is that this vivid "vision" was something my grandmother never forgot and now my mom also still remembers (though it's in the distant past for her so not as surprising). My grandmother was diagnosed with Alzheimer's, though we were lucky that it was "mild" and she was able to remain at home with live in help. But my son, the eldest great-grandchild spent lot's of time over the years sitting on the bed and spending time with her, he was never afraid of her or thought any of her medical needs or sometimes hard to follow conversation was anything but natural. All of her great-grandchildren spend time with her sitting and playing on the bed or the floor and as far as I know it was all very natural for them as well, probably because their parents didn't have any reservations about it and the time/interaction was just treated naturally. I think the only thing we all insisted our children do was to say hello and goodbye at both ends of every visit, we didn't force the relationship by requiring they spend time or manufacturing it we let visits happen at everyone's own pace. It just so happened that my grandmother was interesting, interested in each of her grandchildren and great-grandchildren's lives (she asked questions and listened attentively), was never judgmental and generally fun to be around as a child. Thank you She1934 for reminding me of this time, your question has led me down memory lane with a smile on my face.
Hands down, The 36 Hour Day is the go to book. There are some great movies out there as well that are good to get a feel for dealing with the disease and how it affects family members: “The Notebook” and “Still Alice” are two that come to mind. Best to you....
When I was first in college I took a class on death and dyeing, and we read a wonderful book called Gramps. I still have it and it still speaks to me. You can find it on Amazon. I just looked, and it is still available, by the Jury family.
On internet you can print free or buy the bk, Understanding the Dementia Experience. ..also Creating Moments of Joy by Jolene Brackey. Teepa Snow Google her.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Always My Grandpa : A Story for Children about Alzheimer's Disease
by Linda Scacco
Your friendly former children's librarian!
When my mom was in nursing home, my children were younger and we took them very frequently. They learned a ton by being in that environment. They remember today with compassion the people who were there, their grandmother among them. My brother wouldn’t take his children, he said it was frightening. I think it only frightened him. Children are much more accepting and resilient than adults. Good for you for wanting more ways to explain.