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I did ask her OT, I do need to ask PT too. OT said since Parkinson’s deals more with nerves rather than muscles, she wasn’t sure what the answer is concerning massage. I asked if nerves effected muscles and she said, yes, somewhat.


She did say if someone did give mom a massage they need to be experienced in geriatric care because some types of massage therapy would be too aggressive for her. Any thoughts on this? Thanks.

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I worked with lots of residents with Parkinson's and massage did help them. Same with residents with MS. The right massage therapist will know what they are doing and will not hurt her. Ask the SNF or rehab for a referral or call around to some of the local massage therapists and ask. Usually they are quite honest about if that is not their area of expertise. They do not want to hurt someone.
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NeedHelpWithMom Aug 2019
Great, thanks so much...
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My mom has severe arthritis, fibromyalgia, osteoporosis and has had several strokes. She receives weekly massages through her palliative hospice services and she loves them. My massage therapist told me it’s a different style of massage that focuses on therapeutic touch. My mom had gone through years of PT and more recently OT which was very painful for her. The massages are very relaxing for her. I truly recommend giving it a try with the right expert.
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NeedHelpWithMom Aug 2019
Good to know, thanks!
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My 75 year old husband - with Parkinson's (stage 4) - diagnosed in 2002, gets a massage every other week. He also still exercises and does stretches (to his capability). The massages have helped and made him feel better (mentally - something to look forward to and physically). We have a licensed massage therapist come to the home. It is so much easier than getting him in to the vehicle - in to the little massage rooms / clothes off / massage / clothes on back in the vehicle and back home, etc. She brings her own massage table and all of her own supplies including battery candles and music.
Please note, she has her masters degree from a major university here in Arizona. She knows what she is doing. When she first took my husband as a client, she researched Parkinson's disease and muscles, etc. When my husband had hernia surgery, she suggested I call the doctor and get his opinion as to how long to wait - or not to massage that area. She is not someone that took an eleven month course for massage therapy at a massage school. I'm not saying these graduates aren't qualified. However, for someone with my husband's issues, I've felt someone with extra education, knowledge and experience - works best for his needs.
After reading the comments below, I have to add, my husband was never a touchy feely type if person. He would occasionally get a massage when we were on vacation, but it was never a priority. He really enjoys massages now.
A personal opinion as to why older people may like getting massages now - is that someone is touching them. It seems as if when people are old - people don't like or don't know how to touch an older person. The human touch may be just what they need (even if it isn't from a loved one).
I have observed when I take my ten pound dog to the assisted living facilities a couple of times a month, the residents love to just hold and pet her. She just sits in their lap and enjoys it too. It is something warm and alive with a beating heart that just seems to calm the resident down.
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NeedHelpWithMom Aug 2019
Thanks, Lexi

Great answer!
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My wife has Alzheimer's and has been in bed at home for the past year, but she has recently started having massages. This has been very successful; and she enjoys it a lot. Of course, you need a professional masseur who knows what they are doing. You want a gentle, calm massage, not a heavy, deep sports massage. I think it is worth a try, because whatever the illness you want to keep the muscles as active as possible. If the masseur is calm and professional, the client will experience that calmness and professionalism.

The mind and the body are a unity. Guy Claxton has written a fascinating book, "Intelligence in the Flesh: Why Your Mind Needs Your Body Much More Than It Thinks" (Yale University Press, 2015). Chapter 9, "The Augmented Body" is of particular interest. It is clear that with neurological diseases exercise tailored to each person is still important.
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NeedHelpWithMom Aug 2019
I have thought about it and feel it could be soothing for her.
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Where did that OT go to school?
Strictly speaking Parkinson's is a brain disease, but that doesn't mean the effects aren't felt throughout the body. What about spasticity? What about rigidity? Does she not think these might cause pain in the muscles?
I would advise you to look for an independent therapist who has a holistic philosophy and bagful of tricks to try and is into alternative medicines like reiki.

Simple range of motion movements can be very beneficial as well, keeping the joints flexible and preventing contractures (which as I distressingly learned can happen even in those who are still somewhat mobile)
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I have a very good friend who has worked in related disciplines all her life although she has never gone to school as a formal massage therapist (she has taken many courses though), the majority of her clients are seniors and people struggling with various musculoskeletal problems. She doesn't follow "the book" and plans her techniques around what people need and can tolerate, that's why she has customers who are willing to come to her even though her treatments aren't covered under their health benefits (she also knows she has to charge accordingly). Ask around and hopefully you can find someone like her.
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Hello, I would check with your local hospital about whether or not they offer massages for seniors. My local hospital offers such a program, you do need to pay for it, but it worth a try.
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NeedHelpWithMom Aug 2019
Nice, will do. Thanks.
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NeedHelp: If you do go the route of massage, I would think that it would have to be very gentle. My 94 year old mother engaged in PT and it was very mild physical therapy, designed for someone of 94.
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NeedHelpWithMom Aug 2019
Yes, mom has PT and OT through home health. It is geared for her age and with a concentration on someone living with Parkinson’s disease.
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There certainly are some massage techniques that would be quite unsuitable for an older person – Thai massage springs to mind. If I were starting off, I would look up foot reflexology, and perhaps the same for hands, and try it myself very gently – more like stroking. Just being touched can be wonderful, and these are very embarrassment-free non-invasive places to start. They also don’t need special massage tables. Many older people are modest by nature, and are also ashamed of their bodies – weight, sagging skin, surgery scars etc. Keep the privacy stresses as low as possible when you start.

If the stroking goes well, then try a trained massage therapist, probably female as males can be so much stronger. I’d first have a session with the masseur myself to find out how it feels, and to give the therapist personal instructions for mother. Best wishes.
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NeedHelpWithMom Aug 2019
Hadn’t thought of reflexology. Thanks. Good idea of testing things out on myself first.

True about equipment. I doubt if she could even get up on a table. Last doctor appointment with neurologist he examined her from her seated in the chair. She couldn’t get on the exam table. They would have to work around that somehow.
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Of course you should be talking to the doctor!! It drives me nuts when I would take my mother to the dr and she'd be moaning and groaning and all that--doc would open the door "So how are you today Mrs T?" and she'd say "Oh, can't complain'. And she wouldn't and we'd leave and she'd say "what a waste of time".

I sure hope this is a thing of the past! You go to the dr for HELP with stuff you cannot do on your own, for meds, for advice. Just tell her what's going on and ask her opinion.

AS far as the massage, trying it would be the best bet. Daddy liked his feet and legs rubbed and his hands and arms. I could not flip him over for a back massage. Sometimes we could prop him up for shoulders and neck. As long as he wasn't in pain--we were given the OK to do whatever helped.
DRs are trained to hear it ALL and make decisions based on what they HEAR. They aren't gods, they are human and need the patient or patient's advocate to step up and TALK.

Yes, you should make a detailed LIST about all your questions. Your dr WORKS for you, and can't do the job if they don't have the info!!!!

(My SIL is a gastroenterologist and he tells me that probably 80% of his patients come in with some complaint and will NOT discuss it with him, so he's playing cards in the dark. He goes nuts when older folks won't use the right language and feel 'too shy' to discuss their gut issues. Trust me, he has seen it all and heard it all.)

Don't know about holistic docs--do you mean osteopaths or 'shaman' type healers? World of difference.
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NeedHelpWithMom Aug 2019
Thanks MidKid,

Just got home from doctor’s appointment. Yep, my mom acts like there are no ‘no complaints’ in his chair too. I hate having to call her how but what else can I do? As you say, they need to be filled in.

The Parkinson's disease is progressing and he agreed that she did need the skilled nursing rehab at the nursing home along with home health and pretty much said the same as you did about the massage. He says we can try it. Trial and error. So I guess I should be calling you, Dr. MidKid! Hahaha. Thanks so much. I appreciate your feedback.

I could try and massage myself too, like you did.

These ER visits are no fun! They kept her and admitted her the last visit and they recommended the skilled nursing rehab at the nursing home, which I agreed to. My poor mom, the rigidity from the Parkinson’s is slowly getting worse.
It took her an hour to get up from her bedside commode. Sure, she’s slow but it has never taken that long before! So off to the ER we went. Whew! Gets mentally and physically draining.
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