Is this going to be the future from now on?
Bedrooms and bathrooms are upstairs, my grandmother is 98 and still wants to spend days downstairs in the living room, she still has full control of her bladder and bowels, but has stopped going upstairs to the bathroom during the day and call me what you like but didnt even figure it out until afew days ago, because shes been sneaking into the kitchen and peeing in cups, just caught her pooing in her hand and putting it in the bin and washing her hands.
it isnt incontinence as she will wait till i pop to the shops or go into the garden.
she had poop all over her hands/fingernails(she cant even see well enough to clean her hands) just pretended that i needed to wash her hands.
how do i confront this behavior or modify it?
This is not the job for you and neither is kind of care good for your grandmother. Do yourself and her a favor, fine her a good ALH, NH, or someone who is trained in assisting her. I have a feeling you left out a lot of information do to our lack of understanding your situation. Please get you & her the help that's needed. Prayers for you both.
As for Grandma peeing in a cup, I think it could be a generational thing, people of that Era, especially Europeans, often had under the bed pans, and thought nothing of going pee into a container, and pouring in out, and many people even put there excrement into the garden for free fertilizer, and I kno6, because I grew up in a British family, and heard many stories about the "old days". You say she has full mental faculties, but just the fact that these changes in her behavior indicate that something is slipping, and don't we all to dome degree at an advanced age?
There nay be a sliver of her bring, still triggering the Old days, where these things were common place, but to us in this new century, are completely uncommon.
What you need to do I'd find a solution that works for you and your sensibilities, as Grandma doesn't find these things abnormal., in whatever capacity she now has, as obviously something has changed. Perhaps to her it just makes sense to do things this way. Perhaps she is embarrassed to ask you for solution because she is ashamed that she is unable to make the climb to the second floor to the bathroom, and this is what makes sense to her.
The main thing is that you are uncomfortable with it, and need and alternative solution, that works for you both, and a commode seems to be the best one yet.
Hey, I currently have my 87 year old FIL dying and on in my home, there are Many things going on here that I am Extremely uncomfortable with, but it all comes down to your ability to cope, and when that gives out, and you are Burned Out, then frustration and Resentment kicks in, and you are simply no longer a good option for the primary Caregiver, as you become short tempered, depressed, snappy at other and sometimes even to the one you really caring for, I know that I have!
Listen, I would never have chosen to do the end of life caregiving for my FIL, if there wasn't an end in site, and that's the God's honest truth. The only reason I'm doing this is for my husband, so that he feels better about his Dad having the best care possible, to the end of his life. It's a B*@#H of a job, and an unpaid one at that.
So my advice to you is to listen and think about all the great advice you been given, by the many folks here that have been in your shoes. No matter how much we love them, this job Sucks, and you've got to make the best of it. I often have to remind myself to put my self in their shoes. They don't want to be dependent on us, they hate to ask for help, and they often think that there way is the only way, so they are stuborn as H*LL.
As caregivers, it is a job we've taken on, generally out of Love, but we do have the Right to have them cared for in a different environment, or by a team of caregivers, if there is money to pay for it. It a choice, and not an easy one. And there should Always be an out! Things change as the years advance, on Both ends! Many caregivers are taking care of someone in their 90's and above, which makes the Caregiver in their 60's, 70's, and even in their 80's! Burn Out is Real! Make sure you always get time for You, and I know, easier said than done!
Numbers 6:24-26.
... one thing; All must realize they only allow a specific number of characters per question posted so most questions or issues are having to be condensed, therefore leaving much detail out. (Posters in their own defense need to come back onto the thread and explain a tad more to stop the witch hunt ... because now this site is full of paid bloggers that never return after a post is posted leaving commenters in the dark and feeling foolish) ... By the way, Im the one that assumed you're in Europe ... (ps~ we also share a name but mine is spelled with a "y" ~)
I hope gram's doctor has some good advice for you.
I think perhaps our definitions of incontinence differ. My is "when the patient can no longer urinate or defecate in the appropriate place".
Yours seems to be "as long as gram is AWARE of the fact that she is urinating or defecating, she is NOT incontinent".
Good luck dear.
im amazed how many people ignore most of what ive said and just say it is an incontinence issue when ive said that it isnt and ofcourse you lot know the issue better than me(sarcasm).
she is fully compos mentis as ive said before, but nobody wants to listen.
as for help, we had a nurse who would help her dress(she didnt want me to do it)
but now she doesnt want to get dressed and gets around in a dressing gown.
today i spoke to my GP and and mentioned how everyone thought im doing a poor job, he said he would pop round tomorrow and have a talk.
he also said i should not bother with this forum as it sounds toxic.
As for "trolling," I don't know. The OP did respond most unfavorably to the first suggestions that came through, despite the fact that they made sense. But, to be fair, sometimes the sensible sounds unduly harsh to people who are new on the scene.
#1...who even brought up the whole issue of a "troll" anyway... I've read back and don't see anything referencing it before.
#2.. who-said "homes always have at least a 1/4 bath on the main?" (Sorry Charlie you're wrong ;)
#3... to those of you who said you are "picking up on things from this poster as being a troll.?
.... ok, then I'm going to assume you picked up on they're not from the US right? .. if you didn't then let me help you. Poster used two words that are used in Europe or East Africa (the queens English) ... the words they used were "bin" = trash ..and "garden" = yard. Now perhaps the poster will let you know where they're from .. and the logistics of their housing may likely have no 1/4 baths (or any other fraction) on the main because of the year (as well as style) a large percentage of older two or more level homes in Europe (or even the US) are originally without toilets on the main .... (and hate to further burst your bubble, but I was raised in a home in the Midwest (in the US) that was built in the early 70's .. a multi level, and guess what, no john on the main. (Just sayn
Strangest thing to stick in my mind, but I couldn't picture it. The only floors of any house that don't have at least a half bath would be a basement level, or an upstairs bedroom level. I think. Strange.
They don't address the answers in specifics but complain about them or their alleged abusive treatment by posters. They "stir the pot".
Look back through the first few pages, make some mental notes of suggestions, and see the OP's responses, how they avoid the issues but just complain about the treatment, singling specific posters out for attack.
The signs were there by the time the OP posted the second time.
There are times when a poster just wants everyone to agree with his/her situation, when in fact, that is not the case. Experience wins every time.
I remember when I first came on this forum years ago, I got tough love from one writer. Sure I was taken aback by it, but lo and behold, she was 100% correct regarding the situation. She was able to see the forest for the trees.
In any case I think the OP has heard enough, I know I have.
Unfortunately the issues really is ours, because unlike a child they can not longer learn what we decide is proper behaviour.
The suggest everyone is offering is to help you deal with this new symptom of her dementia in a way that does not belittle your grandmother for being wrong (which she will never understand) and for you not to have to have pee in your cups.
I know it was hard for me to see the signs of my mom's decline in mental state and a few times it took an outside perspective to realize she was showing further decline and was not OK.
I am sorry you did not get the answers you wanted but the truth is she really might not be in control as you think (her mental decline does not always mean she can't go up and downstairs. She honestly doesn't think it to be necessary).
Hugs it does not get easier.
I try to get her to sit on the toilet after each meal. I sit there with her until she attempts to have a bowel movement 10 15 mins. sometimes it works sometimes it doesn't . I have to clean her because she's forgotten how to clean herself we've had some extraordinary episodes where she literally finger-painted my furniture herself her clothes her hair her face with poop. Your grandmother is in her late 90s ! I would consider myself blessed if my mother would have waited till then to start with this . Climbing steps at that age is dangerous . I agree with the advice given about placing a commode on the main floor . This is part of the dementia process and if you intend to be her permanent caregiver adjust or look for other Solutions .
It's clear you are frustrated, and that your Grandma's dementia is progressing and that you are not prepared for it, or haven't yet had the time to educate yourself on what's currently happening or is to come, and that's understandable, your working, you have no additional help, your BURNED OUT! It's loud and clear, and coming accross in your posts!
Please believe me, the posters here on this site will be your best friend in the coming days, weeks and months, so don't give up now! You've told us more, and more helpful advice will be on the way, so take a deep breath, and try to understand both sides of a community advice and friendship column, where the written word does not always come accross as understanding as it could have face to face.
I personally do not have a lot of experience with dementia, but I too am beginning to have some difficult issues with my FIL who is bedbound with lung cancer and on Hospice in my home, and is losing his mental faculties, possibly due to the cancer spreading to his brain. After 6 or so years, I learn something on here everyday!
This is a different journey for all of us, but I promise you, the good people on this site will be a godsend, when you really need it! Try hard to really explain your questions and responses, so that everyone gets a clear picture! Don't give up here!