Follow
Share

She doesn’t want to go to AL, but says she wishes to “die at home”. I love my mom. My mother is important to me. I want to help her stay in her accessible home, but I am so burned out! Compassion fatigue, really. She doesn’t seem to get it.


She has become very self-centered and doesn’t seem to care about my needs.


I think she expects me to give up my life for her. Actually, I just saw the last BEST years of my life go to HER and her care. I just turned 70. I just want to rest and have no more demands on me. I want to have peace and quiet. I have not had a life of my own since I came to help her. I have no friends, know no one in her town. I just try to persevere. What’s the matter with me? Few people would do this, I think.


My bro lives in Colorado, and does not call often. My sis lives 5 hrs. away, is busy, and relieves me for 3 days every 4 months. Otherwise, I am here 24/7 with no time away. Mom has grown dependent on me, of course. She doesn’t like it when I get my respites, but she copes. She seldom asks about my own welfare. If I get sick, she pretty much ignores it. What is that? She was never like that before in our earlier days. She was awesome, then! It is difficult to let go of earlier concepts of your mom. I want to help her, but, too much is too much. I don’t know how much longer I can go on like this. I am depressed, anxious, and resentful. I don’t want to live my last years feeling that way.


I know I need to place her. I have a couple of places lined up. It’s mostly that I can’t do it because she doesn’t want to. Her mind is pretty good. She would miss her “things”, so, I think I should wait. I don’t know—what about me?


I have sacrificed so much for her, because I love her. I may have sacrificed too much. I don’t feel very good anymore. I know I won’t live as long as she has, She’s almost 91.


I am looking for an inexpensive home or cheaper rental. None exist. In our area, the inventory is low. I can’t find anything I can afford. Been looking 4 yrs.


I thought maybe if I bought something, at least I’d have a place to go, two days a week while I continue to care for mom. I know I am more fortunate than many who post here.


I would like any comments or IDEAS to help me move forward. I seem to be stuck. Thanks. (I have posted before).

This question has been closed for answers. Ask a New Question.
Find Care & Housing
My MIL lived to be 99 years and 9 months old. Lunatics said ‘what a pity she didn’t make 100’. Is this what you want for the next 10 years of your life? If it’s not, you MUST make a different choice, even if it’s difficult for both of you.
Helpful Answer (8)
Report
Slartabart Jul 2023
NO! Not what I want! I know I must make a different choice. I need to be ABLE to do so. I have an appt. with therapist in Nov (soonest I could get in). I always expected siblings to be supportive, but their attentions are elsewhere. I need support through this, I think. Mom will not like it. She will likely blame me, make me feel badly, feel I let her down. Six yrs., and I let her down?

I guess I am reaching the end of it. It’s mom or me. Unfortunately, I have already sacrificed most of me to her needs! I don’t have much of my former self intact anymore! I feel so old. Maybe the therapist will have a cancelation!
Thanks for your reply!
(0)
Report
This is so difficult. It is hard when your sanity is in competition with the love for a parent. My mom was always needy but became much more so as she declined. In my situation I think the clinging came from the need to feel safe. I am not sure she knew I was her daughter but she knew I was someone that loved her. It was the hardest decision I have ever made. I also became so stressed that I could not function. My husband, who was wonderful, had two hospital stays due to heart issues.

i would tell you: “you are important”. Your life and well being are just as crucial as the well being of your mom. While the transition to an ALF may be difficult, the new environment may bring her joy. Put yourself first.

My mom passed 6 months ago. I am just now getting to the point where I am embracing life again. It makes me realize all that I did all of those years and how much I had put my life on hold. I did not do everything perfectly. Mom was not always happy in the ALF but it was the right decision to balance our two lives….enough care for her and relief for me (and my husband).

Be brave.
Helpful Answer (7)
Report

You matter too. What about your feelings and your health? It's time for her to be placed and for you to build yourself up again, There really is no other way to do it, in my view. (((((hugs))))
Helpful Answer (7)
Report
Slartabart May 2023
Thanks for that. I’m trying to get out of my headset and more into reality, I guess. I need people to talk to me and encourage me to be more realistic or at least, out of mom’s world. Thank you!
(0)
Report
See 2 more replies
She doesn’t see you as her daughter with your own needs. She has become accustomed to you being her caregiver.

I went through this as a caregiver for my mom. Until we send the message that it is important to us to live our own lives, they will continue to rely upon us for their needs.

My mom lived to be 95. I spent 14 years caring for her in my home. It’s extremely difficult. The more that you give, the more they expect.

Break unhealthy cycles and take your life back.
Helpful Answer (6)
Report
Slartabart Jul 2023
I recognize every thing you say. It’s me, then. She will keep depending, and I will keep giving, until I break the cycle? Bingo. I think I was looking for ….?
Thank you so much for your help. You DID help me. K
(0)
Report
You have given your mom enough of your time and life already, and it's very selfish of your mom to expect you to continue on with her care when there are other options out there.
If you asked any person they would all say that they'd like to die at home, but often times that's just not feasible.
Your mom has had her life, and now it's time for you to enjoy whatever time you have left as well.
You don't list what your moms health issues are that you're having to be with her 24/7, but it's time for her to go into either an assisted living facility or skilled nursing facility, depending on the care required.
If you don't make the necessary changes to move out of moms house (and place her)and start taking care of yourself, you're going to be in the statistic where the caregiver dies before the one they're caring for. Sadly that happens a lot.
So it's now time to put your big girl panties on and tell mom that as much as you love her that you just cannot do this anymore and that she has no choice but to go into some type of care facility.
She will adjust, and the odds are she will even like it, as she will be around other folks her own age and will be kept busy with different activities.
PLEASE DON'T GIVE UP YOUR LIFE FOR YOUR MOMS!!! If your mom was in her right mind she would not want you to do that either. I know you say that her mind is "pretty good" but I'm venturing to guess that there has to be some mental decline or even dementia going on for her to be so self absorbed.
I do hope and pray that the next time you post, it will be about how great you now feel since your mom has been placed in the appropriate facility, and that you're living and enjoying your life once again.
God bless you.
Helpful Answer (6)
Report
Slartabart Jul 2023
Two months have gone by, and I have read helpful answers, thought about things. Your reply to me was awesome. Every single word you sent resonated with me. I have read many replies you have sent to others over the years, and you are, most often, spot on. I count myself lucky that you chose to respond to ME! Thank you so much.
I have never known with my mom “how much is enough”. That’s another issue, but it speaks to why I keep trying so hard to help her, to make her happy, to keep her safe. I also suffer from incredible self-doubt. So, I have trouble discerning how to know/set boundaries, of course. Mom doesn’t seem capable of the kind of mothering that recognizes “unconditional love”. I could be wrong, but, her “conditions” have always been in the background, and she has most always acted in self-serving ways. Not ever having been a mother, I feel great respect for that role, and think women must also care for themselves while in such a demanding endeavor. I also have great respect for those things I don’t
know. Maybe mom was just caring for herself. But the fact that I never learned how to care for MYSELF from mom, rather learned to SERVE her, makes me wonder (I clearly have therapy work to do). More therapy work.

My mom is VERY fortunate to have me. This, I know. But, I must do what you write of-put on the big girl pants, etc. Maybe she’s just waiting for me to cry “UNCLE”, so to speak. I know we have to talk.

Thank you so very much for your thoughts and words. K
(1)
Report
She will miss her things. Not really. In a little while she will forget. Let’s see if she does. You could be wrong about that. Anyway, it doesn’t matter because You are missing your LIFE. Let’s see, her missing her things vs you missing your life. You win.

You are in a trance. You are on automatic response. Tell sister to come and move her and you will continue to visit her and take care of her business. Or hire someone to take care of you both. DO SOMETHING to break the spell.

Big Hugs
Helpful Answer (6)
Report

It’s time for Mom to be placed .
It’s best for both of you .
If she was “awesome”, the way you remember her to be , she would not want you to continue the way things are . You need to take care of you. She needs more care than you can provide. Let her have a whole staff to care for her . Place her and you can visit .
Helpful Answer (5)
Report

This is very much my story too. My mom had Alzheimer's. What are your mom's health issues? I found a place for my mom and took her there for snacks to see if she liked it. She refused to eat the snacks, was rude to the caregivers, and just pouted. I tried again with them coming to her house to talk with her. She was nice to them then. But didn't want to leave her lovely home. My brother had POA and agreed that she should go to assisted living. It broke my heart that she had to do this, but I made the arrangements, moved her stuff there, then took her. It was an adjustment, but she eventually was fine, confused, but fine. She forgot about her house within months. I visited just about every day, but no longer had to do everything. It was still a lot, taking care of finances and doctor visits and all, but she was much better off. Just do it.
Helpful Answer (5)
Report
Slartabart May 2023
Thanks for your response. Mom has worsening dementia, severe hearing loss,
(she refused to get hearing aids, so, our communication is compromised), she can barely walk to the bathroom, has incontinence. (and has a stubborn personality, but she IS charming!-she is also critical, bossy, and demanding!)

I am having a hard time placing her, simply because I know she doesn’t wish to leave her home. I want out after 6 yrs., but I feel torn about mom. Is there something wrong with me that I put mom first?
(0)
Report
See 1 more reply
Slatbart, if this is an internist and not a geriatric specialist, neurologist or geriatric psychiatrist, he doesn't have the skills to rule out significant cognitive impairment. My mother's VERY skilled PCP saw NOTHING wrong with her.

A full neuropsych workup indicated cognitive impairment to the extent that she should no longer drive, live alone or pay her own bills.

Getting this assessment was key in getting my siblings to understand that mom's fears and anxiety were not something she was bring on herself (something she always told us when we were young and depressed or anxious) but a real condition that had been caused by an undiagnosed stroke.

The fact that mom cannot live alone does not equal "I have to stay".

You need to leave for your own health.
Helpful Answer (5)
Report

Since you and mom have the same doctor, inform doctor of your declining mental health due to taking care of mom. Have doctor tell mom that she must go to a care facility.
At this rate, you could die before she does. Then who would take care of mom?

You've done your bit. Now get out of there. Doing so does not make you a bad child. It makes you a child who is not too beaten down to make good choices.
Helpful Answer (5)
Report

See All Answers
This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter