My mother developed aspiration pneumonia in the nursing home and was taken to the hospital. I OK’d the use of antibiotics but now that she is back at the home, we have had to have hospice step in. She is not responsive, not eating, taking in very little liquid (a tsp a few times a day) and no more antibiotics. She is on Morphine now. It was a shock to me that they can so matter of factly predict her death. It seems so cold to me. She turns 93 tomorrow. I feel on the cusp of breaking down. I’ve been through the death of so many— family, son, husband, but they were sudden. This drawn out suffering is so difficult to watch. OK, maybe on morphine, she is not suffering? How do you even know? I seem to be the only one that even noticed she occasionally stops breathing. I called it to their attention at the home and it was, "Oh! Well, we will start counting her breaths." She is transitioning, they said. Even before she was taken to the hospital I was the only one that insisted something wasn’t ‘right’. They finally decided I was right and called for an ambulance. Why am I the only one noticing these things!!??
How long can my mother live like this?
That is my question of the day.
They are half on the other side and half here, when they're transitioning, is what's happening. I've heard the hospice nurses tell me that twice now, when mom was dying and when dad was dying. We are struggling more than they are, by listening to their breathing and watching their every movement. I remember when my father was transitioning. I was looking at my watch and timing how long it was between breaths.......and I was holding MY breath waiting for him to take his next breath. Needless to say, I was about ready to collapse by the end of his journey myself. When my mom passed in February, I was more familiar with the mechanisms of the end of life journey, so instead of looking at my watch & holding my breath, I was rubbing her arm and speaking to her about how much I loved her and what a great life she'd led instead. I spoke loudly enough to drown out any struggled breathing sounds she was making. I knew that her soul had already transitioned to the other side to be with her family members who had all passed long before her.
I think we daughters know our parents best, which is why we can tell when something about them is 'off' a lot quicker than the staff can in the SNF or the Memory Care. I was practically begging hospice to take mom on before they actually agreed to, b/c I KNEW she was approaching the end of her life, even though hospice insisted she 'wasn't ready' yet in November. Meanwhile, she passed in February, meaning she sure WAS 'ready' in November!! It would behoove the 'experts' to listen to the family members more often than they DO, wouldn't it?
I'm sorry you are going through such a gut wrenching experience with your mom. I know how difficult this truly is, no matter what anyone else has to say on the subject. I also know that your mother will soon be at perfect peace, if she's not already, and for that you can rejoice and know that her suffering here on earth is over. For that I was extremely grateful on behalf of both of my parents; dad who had an aggressive brain tumor, and mom who had advanced dementia, CHF and several cases of pneumonia herself (one of which was aspiration pneumonia).
Sending you a hug & a prayer for peace.
Morphine is given to both assist in breathing and to medicate a patient to a level below the level at which we feel pain, even below the level of breathing, so that the bodies seeming struggles for breath and so on are not felt by the patient. That's the blessing of hospice. While hospice medication may mean an earlier death by some minutes, hours, even days, or not can't be known, but there certainly is less struggle for the person.
I am sorry for your loss. No matter the number of year, the amount of a good life, it is still painful to lose those we love and we all grieve differently. Only time can heal our loss and make our memories fond and happy rather than sad.
Continue to speak with Hospice. They are generally very good to answer questions. If they tell you things like "She is transitioning" then ask them to explain to you how they evaluate these things scientifically.
For myself as a nurse I am grateful you have given your Mom this relatively peaceful death; I hope in time you will recognize the great gift this is.
As to how long your Mom can go on like this, that is as individual to her as her own thumbprint is. No one can be certain; we read the signs we have learned and we make "educated guesses" and that doesn't really address grief and loss.
I wish you the best. I feel my Mom and Dad with me throughout my life, and I am 80, still seeing the world through their lives, still celebrating them. Your Mom will be with you always while you live. I know that doesn't address the grief; allow yourself this grief, for a life is worth grieving as it passes. Your Hospice can guide you in seeking grieving support and health ongoing. Their job doesn't end at the end of your Mom's life. They will contact you. Ask them for support.
Mom isn't suffering, but you are. This is exhausting for her but should not be painful. It's just very hard for her to breathe, much less talk and move. Yes, it is hard to watch but it also gives you the time to talk to her, sing to her (if you are so inclined), confide in her, anything that will give you both peace.
She may also be very worried about leaving you. If you know she can't recover, she might need to be told that you will be OK and she can move on. Even if it isn't true it would be appropriate to tell her if you think this is the case. I had to tell this to Dad, and promise him I would take care of Mom. Then I kissed him goodbye and watched while he slowly took his final breaths.
"she is not responsive, not eating, taking in very little liquid" this means her body is shutting down. The antibiotics were stopped because once on Hospice no life prolonging medication is given. Hospice is for comfort. Morphine is given for pain and ease of breathing. Aspiration pneumonia is caused by not being able to swallow correctly. The food and liquids go into the lungs causing pneumonia. Not being able to swallow can be a sign of the body shutting down.
Why do you notice these things and no one else seems to...I have no answer to it. Why when my Mom was in the Hospital with a UTI was she sitting up and talking one day and the next she couldn't eat her breakfast because she was out of it, why didn't someone notice that. Why didn't the nurse coming on duty after 2 days off read Moms chart and think "this woman can't be released today because she has done a 180." This nurse actually asked me what I thought she should do and I told her call the doctor and tell him Mom has done a 180 and in no way can be released. It was found Moms antibiotic had penicillin in it she was allergic to which was in the Hospital records.
You Mom is 93, her body is giving out and it is a long process. Mom started shutting down 2 weeks before her death. I suggest you don't sit with her all the time. Get out of the room. Go home to rest. Because...you may go to the bathroom and when u come back they are gone. With my Mom it was bringing my nephew to visit. We sat with her for a while. He held her hand and talked to her. I sang her favorite hymn. We left at 1:30 pm. She was pronounced at 1:50pm. Nurse asked if nephew was the last one to say goodbye, I said yes. She said she sees it all the time, they wait for that one person that hasn't said goodbye and when they get there or hear their voice, they pass.
Take this time to tell Mom you love her and you appreciate everything she did for you. Tell her is allright to let go, you will be fine. If she has faith in the hereafter, tell her she is going to a better place.
The medical professionals are not always right, but are speaking based on statistics and their experiences.
The morphine will keep her comfortable physiologically and emotionally.
i am sorry for your pain. Stay near her if you can. Talk to her while you can. Even if she is not fully aware, you will be glad that you were nearby.
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