My Mom is still fairly young but has been diagnosed with Lewy Body Dementia so I have her in a very nice ALF where she is just starting to get a tiny bit acclomated after a couple months, but she has fallen 3x and two of those times resulting in me being called in the middle of the night and taking her to the hospital. Thank God no major damage but I am petrified of her breaking a hip next time. Or worse! She is embarrassed to use the Walker I bought her and even has the aides put it up in her closet so she doesn’t have to see it. She told me she is too young and those are for old ladies. Any suggestions? 90% of the resident use a Walker so that’s not the issue.
Ask her if she likes the place she lives in. Then take her on a tour of a crappy nursing home. While you are there, let her know that if she falls and gets hurt, she says good-bye to the nice place she lives in now. The nursing home will be her new home.
Tell her that nothing will get her a one-way ticket to a nursing home faster than being stubborn.
She'll start using the walker.
The Drivers loved it and had big smiles!
Try making it sound "sexy" and "sporty" or mention it reminds you of a Corvette!
Get one in her favorite CAR color?
I plan to get a Glossy Black one with GOLD trim, like my 1988 Corvette I had for 26 years (if I ever need one), especially with some BLING...to coordinate with my hot purple RayBan aviators!
Emphasize STYLE, SLEEK, SPORTY....and that she can be sporty, PLUS it may prevent a broken hip and a NH!
* Anyone with LBD, falling, you being called in the wee hours of the morning NEEDS to (1) use a walker and (2) a cane and (3) HAVE THE WALKER IN SITE.
- Are they calling am ambulance to get her to emergency room? (They can do this).
- They could call you in the morning instead although I understand if you want to know immediately when these things happen.
By allowing the walker to be hidden in the closet, you are supporting you mom's decision / behavior which will lead to potential - very likely - falls.
IF you do not want to spend $ for outside round the clock personal caregivers, you must insist she use it OR SUFFER THE CONSEQUENCES, which might be what happens. You cannot control everything.
* Get volunteer(s) in there to be with her as much as you can for 1-2 hours/day.
There are volunteer organizations, as well State College Dept Heads: geriatrics, nursing, counseling. Most students need this kind of volunteer experience - and/or it surely will look good on their resume.
You will need to learn how to deal with her resistance (I know, that is why you wrote us here ... )
* Expect resistance
* Do not re-act to it
* Tell her what she needs to do for her well being (she may not care).
* The walker STAYS in sight. Period. No argument or discussion.
When you visit, you sit in it - that may or may not make any difference although if she sees you sitting in it, she might think, 'oh, okay, I can sit in it too',
IMPORTANT:
* Focus on her emotional feelings of 'embarrassment' - Her her 'got it out' and provide reflective listening i.e., "Oh, okay, I hear you saying XXX" - just listen and encourage her to talk about how she feels.
* Talk to her with authority mixed with compassion. In other words, do not ask her what she wants. You tell her this is how it is and then offer lots and lots of emotional support (i.e., I know this is hard for you ... I love you and want you to be safe ... will you just try it once and see how it goes) or talk to her however / whatever works.
You must tell the administrator of the facility that the walker is NOT to go in the closet; it is to stay in sight and used (as is possible). In other words, aides are not to listen to your mother telling them to put it away.
Your mom may be 'too' depressed to care if she falls, breaks something.
Get her checked out medically.
Ask her. Talk to her about how she feels.
As you say, she is just starting to adjust to this new living arrangement.
Try not to make a big deal about the walker. Just have it there.
Put ringers on the mattress - will alert others that she is (trying to get)ting out of bed.
* Get 1/4 railings on the bed which are legal. More than that is not allowed (i.e., half, full railings).
* Get a body pillow to put near the railings. It helps support someone to stay in the middle of the bed / keep someone from falling out of bed and a pillow is legal / it is NOT railings. (I did this for my friend-companion after he fell out of bed at a nurse home, twice.)
- Be sure (?) the bed is against the wall to avoid falling from either side.
Lastly, get emotional support. from the local / county LBD Association.
Go to support group(s) if available. They hopefully will help you.
Lastly ... I wonder if you have art work put on the walker if she would be more inclined to use it ? Photos of family? collage? Just a thought ... to personalize it.
Gena / Touch Matters
With the holidays coming, maybe you can decorate her walker and make it the envy of the other residents.
Re-branded!
I'll use this on my future myself. When I am walking along in my frail bent body my mind can be picturing my sturdy, firm (yet curvy) body striding accross the landscape. Probably wearing uber-cool Nordic fashion. I may add a ski hat 🤣
My mother’s doctor called her walker her Bentley!
After nearly killing us both, me trying to hold her up to "walk" into an MD office for blood work during year the COVID shut down year; I said that is it we are getting a rollator for whenI have to take you to the doctor as I cannot try to hold you up and then we both "walk" without us both falling. The ONLY time it was used if she had an MD appointment. Unable to "walk" to the bathroom "in time" even with the cane became the routine, so I suggested a "potty chair" could be put by her bedside, "NO NO NO" was the response. Instead, soil the bed, floor, clothes -- that "is better" -- SURE.
Eventually, she had a really bad fall and laid on the floor for hours until I found her the next morning and that landed her in the hospital for 2 weeks, and to rehab thereafter and finally to a permanent nursing home long term care placement once the Medicare post inpatient rehab benefit ended. She of course had dementia, and a host of other things. And I was clear with the hospital, the rehab facility and LTC facility that I "WAS NOT" taking her back into my home where she had been living before and where I was doing the one-on-one care solo (Maddening!)....
Sorry for the rant, and sorry you are dealing with this. If they are oppositional to doing what they need to do in order to care for themselves OR to help those trying to help them/care for them; then the chips will fall where they fall. One cannot control what other people do generally and that is for sure true when the person has demential (regardless of the form). There is no reasoning with them, no rational explanation that they understand ever sticks and their behavior changes also make cooperation with what makes sense -- what might help them -- all goes out the window.
All one can do is to try to offer supportive devices that might help prevent falls; but some will just refuse. In the nursing home, my mom now uses a wheelchair which she calls her "go cart" as she does not remember the word for wheelchair. Sad
Wishing you the best of luck with this. Do what you can and importantly do what you can to care for yourself. This is an exhausting journey, and it is a journey not us want to be on.
Don't apologize. Your "rant" as you called it is nearly identical to what I faced with both of my parents (ages 89 and 88 at the time). They were still living at home (not Assisted Living). I received calls from them or Life Alert at 2:00 a.m., 3:00 a.m., and throughout the day stating one or the other had fallen.
I ultimately injured myself with the fall prevention or helping get up from a chair which resulted in my needing EMTs to assist getting them up after a fall. Still, they were adamant they didn't need a walker or cane. It was as though I was talking to the walls rather than my parent.
Like you, a serious fall that put them in the hospital and then rehab was the only way to get through to them. It's sad, and I've heard like stories from other people. Seniors (especially parents) don't want to hear the mantra "use your walker; use your cane" from loved ones. It has to be social workers, EMTs and Doctors who tell them, they can't be on their own and LC is the only solution.
ErinFlorida, I wish I could offer you and the others who are or have faced this situation with a solution. If there is one, before the serious fall, I too would like to hear it. And one last thing, DO NOT feel guilty when it comes down to placement in a long-term care facility for their health and safety.
" level of care needs " assessment completed during which time you will also provide the info regarding falls, ER visits, and non compliance using walker. After getting the official PCP level of care needs assessment report, you can go from there with regards to her safety. Emphasize safety as key word and, also request PCP to assign a Geriatric Case Mgr or Licensed SW to her case to visit her in ALF to provide additional eyes on assessment, as well as emotional support for her, and you for coping strategies.
One of my favorite memories as a child growing up in New Orleans was when we had enough snow to build a snowman with my dad. That was so much fun!
Snow is beautiful! It would take getting used to for me to appreciate it.
My daughter wants to do snowboarding when she returns to Denver. She has a friend in Vail that goes all the time.
She has another friend who goes skiing every weekend during ski season. Her beautiful Siberian husky loves playing in the snow.
My MIL Is 100% housebound, She doesn't even take one step 'down' or 'up' at all. Has quit even going out to the back porch b/c there is one step down.
Started with a wheelchair and threw a fit and had it put in the garage.
Had a rollater---threw a fit and had it put in the garage.
Got a walker--threw a fit and had it put in the garage too.
She shoves a kitchen chair around when she feels she needs support.
Says walkers are for old people--well, she's 93 next week. If not for people like her, then WHO? She also says it makes her look like she has dementia. Which she has. Shoving a kitchen chair all around the house is BETTER? In her opinion, yes, and that's all that matters.
She falls a lot but never gets hurt, so the kids just leave her be.
Your MIL must have undiagnosed mental health issues. Either she is mentally ill or she is pure evil who wishes to make everyone else totally miserable. She has brought the majority of her misery upon herself.
She will continue to not use the walker, will fall and yes will probably break a bone. Prepare yourself for that eventuality. Maybe at that point she could be eligible for NH care. .
I had a friend who needed a hip replacement. She used a single crutch. When she went out, the crutch went with her in her tiny low slung sports car. She NEVER let any of us see her w/a walker. I never saw one at her house. She had the hip replacement, had a full recovery and even though she passed from her dementia, she had excellent posture and walked just fine.
I had an aunt who died of Parkinson’s with Lewy Body dementia. She had some terrible falls. Never used a walker. On good days she could dance. Look into the Rock Steady boxing classes. I’ve attached a link. My aunt was amazing with those classes. Exercise is very good for your mom.
https://lewybodyresourcecenter.org/lewy-body-dementia-rock-steady-boxing/
Hopefully these sorts of things can help reduce her falls. But realistically, even with all day supervision she could fall. Even using the walker.
If Mom is not willing to use a walker staff can prompt & encourage - but not force her. My Aunt uses hers but will push it away as she enters the bathroom & sees the handrail.. very common.
Do what you can.
Unfortunately when insight is lacking it's past your control. All dementias effect the brain, various effects on insight but will eventually steal balance & ability to walk. I am truly sorry for this awful disease.
Do you take your mother out? I’d suggest that a condition of any outing is that the walker comes too AND IS USED.
We went through similar issues with my mom. She happened to LOVE the attention she got with any ER visit. (Sigh.) For this reason, in case that happens with your mom, I'd advise to take your own sweet time before showing up to keep her company in the ER. I well remember those days! Let her sit there and get tired of not getting what she thinks is enough attention. No hovering over her in the middle of the night, bringing her juice, making sure she is warm. There are other people for that, so she won't suffer.
Tough love is not just for teenagers.
As far as walker use, you might drop casually into the conversation that if she thinks she's too young for one, how does she feel about being bed bound for the rest of her life after she breaks a hip? "Too young for that too? Mom? What do you think about that? Mom?"
And of course with her dementia she is no longer thinking logically anyway as "logic doesn't live here anymore,"(one of my favorite sayings from my support group)so it doesn't really matter what she thinks or doesn't think about her walker, because even if she was open to using it she more than likely would forget anyway.
Older people fall....a lot. And people with many of the dementias fall a lot too, and there's not much you can do to stop them.
My late husband who had vascular dementia fell a lot. As in a lot. And I was always here with him in the house and usually not too far from him. And he used a hemi-walker as his right arm was paralyzed after his massive stroke many years earlier, and he still fell.
So there are no guarantees that if your mother starts using her walker today that you still won't get a call saying that she's fallen once again, as falling is part of the disease.
When mom falls, I hope you have the facility call 911 and have her transported by ambulance. I would not transport an elder who has he ad an unwitnessed fall.
If your mom doesn't have dementia, consider telling her that you will only meet her at the hospital if she starts using the walker. It's called "tough love".