Hello, I'm looking for advice on how to approach my father regarding the bathroom situation.
For the last three or four months, my father has been having some kind of difficulty using the bathroom. Usually once a day he will have a bowel movement, and when I go in the bathroom after, I will find feces smeared on literally every object in there. It's also outside in the hallway, on the light switch, and on the washer and dryer and inside the rim of the washer. Tonight, I cleaned the bathroom twice. Once because it was dirty from yesterday's bowel movement, and about a half an hour later after tonight's bowel movement the same disaster happened. I bleached the whole bathroom and everything else again.
Before I went to bed, I had to change his bandage and I realized that he has feces smeared on his bare feet, as well as all over the front of his pants legs up to his knees which is now smeared on the bed also because he doesn't care about having dirty feet all over beds or couches.
I didn't say anything to him when I cleaned the bathroom either time, nor have I said anything to him in the past about it, but I did mention that if I was him, I would wash myself and change my pants before going to dialysis tomorrow because there is feces smeared all over him. He looked at me with a shocked expression and said really?! There is?! I didn't say anything else...
I'm not sure what to do about this. I don't know what kind of help he could need in there. There are flushable wet wipes as well as toilet paper which I had to throw the toilet paper roll out because there was feces smeared all over that too, but neither of my parents will use the wet wipes. I don't know why.
I don't know what else I can do, but this is extremely dirty and I'm not sure how to approach him because I don't want to embarrass him. I also don't want him mad at me and I don't really know how to present it to him...
This is very concerning because my mother also uses that bathroom and if he's got feces wiped all over the toilet seat and lid, the handles to the sink, and in the sink itself, etc, my mother is without doubt going to get it all over her also, and she has dementia and refuses to shower so that's a whole situation that I am really not wanting to have to deal with 😖
Wondering if anyone out there has dealt with this and what they did.
Thanks in advance for any responses♥️
The smearing of crap all over the place and on the person themselves is not unusual with dementia.
I've had many homecare clients who did this.
Your parents have to be placed in AL or managed care, or they need a live-in caregiver who will toilet them both and clean the bathroom continually. They cannot be allowed to live alone without supervision anymore. Neither of them possesses the mental ability to handle the activities of daily life independently anymore. Crap smeared all over the place in only the beginning.
Their feelings and not embarrassing them really isn't important at this point. Their living environment is a biohazard. A danger to them both and to anyone else in the house.
If you don't have POA or conservatorship over them, petition the probate court in their area to get it.
Then speak to the state's department of social services and ask them what their options are.
They cannot toilet themselves independently anymore.
How long does the adult child (the OP) have to spend their life 'rushing in' to clean up the parents' crap? That's not a realistic expectation to have of anyone. They should start looking at a managed care facility.
I could NOT tolerate this situation. It makes my skin crawl just thinking about it! You stay there? It is completely unsafe! Poop is literally EVERYWHERE since both of your parents are touching it and touching everything else. They have absolutely NO clue about hygiene, germs, etc. E-coli. What if someone has c-diff infection and everyone else could get it? Just not right.
Is there a POA for either of your parents? If not, that ship has sailed but you will need to make decisions somehow and get them moved along in to memory care ASAP. Talk to someone there and see what they can suggest. You might have to call APS or and/or an attorney to get things moving ASAP.
If I were you I would mention it to his doctor and let them both have the discussion with him and address any possible cause. If your dad lets you or your brother a company him to doctor appointments maybe the doctor can start the discussion one on one and then invite you in to be brought up to speed, dad may be more willing to open up to the doctor and then if the doctor is any good he or she will set Dad at ease about it not being his fault and including you in the discussion about remedies. You may find that indeed Dad is very concerned as well as embarrassed by this new development. Then you may not and will know there is more to be worried about than his bathroom habits.
Now for another pressing issue, bathroom problems aside there is a reason you are spending Tuesday through Friday at their house as well as your brother living there and I doubt it’s because you feel they are able to care for themselves for any length of time. If Dad hasn’t actually been diagnosed with dementia and seems of sound mind most of the time I would urge you to find a non doom and gloom or threatening in his mind way to bring up at least POA with him. Maybe bring it up from the direction of the issues you have all the time getting stuff done because you don’t have POA, explain that as POA you are only able to do the things he is ok with and nothing can change when it comes to the ways you help them with bills and medical appointments. Then maybe another time bring up your concern that without MPOA you won’t be able to get medical information should he not be able to tell you for some reason (say an accident) and if there are decisions to be made it would be the doctors or the state that would make them while you stand by powerless. Maybe go to the place where you might not be allowed to care for Mom or be able to take care of her financial needs if he were in the hospital or something happened. Whatever it takes to get him to actively participate in getting at least those things in place. The hump may be the durable or springing (depending on your state) portion of what you need to have and I might leave that up to the attorney to suggest.
Then once you have POA/MPOA/DPOA in place it will be time to start action if you haven’t already by then. Start investigating your options now and try to have a plan in place but you and your brother can’t be the solution for your parents increasing needs, it’s already too much and probably not enough. They/you need help wether it’s aids coming in, another living situation or both a change needs to happen soon. I know how hard this is, hang in there.
Fecal matter can get into the most amazing places--having cleaned a bathroom or ten in my career, I can say that once a patient became clueless as to WHY they were covered in feces, and didn't care--placement in a NH was almost an inevitability. It's not out of meanness--it's out of care for the healthiest living environment. And the sanity of the CG's.
My FIL was on antibiotics all the time. He would not take them b/c they gave him explosive diarrhea, but if he didn't, he'd ramp up to pneumonia within days. Cyclically, over and over. AND the day I realized he was having blowouts and then just letting his clothes 'dry' on him and then just going about his day--I had to peel his pants off of him and cut the 'thong' underwear he had on, off. That, and scraping at the feces with a tongue depressor--DH was mortified but was so busy gagging he was useless. Forcing him into the shower when I knew I'd be doing the exact same thing the next day.
That day, his thongs were all thrown away and the best I could do was to get him to wear 'tidy whities' --in the hospital they insisted on depends, but at his home, briefs were the only thing he'd accept.
He died before we had to have him placed. The Dr. told him he could not longer live alone and we had just begun the task of finding a NH for him and he passed away. He would have hated it, but I hated walking into his condo and smelling what my day was going to entail.
As to your father's toileting problems, I think you are way past worrying about embarrassing him. You can address this issue as kindly as possible, but the situation you describe is definitely not ok. If it requires your or someone being in the bathroom with him, that may have to happen.
Start with getting an idea of any bowel movement issues.
If he has a Trust then someone should be listed as Power of Attorney. There are two types of POA. One for healthcare and one for finances. If the agencies, businesses, etc. are sent a copy of it, the POA will be able to take care of things. You can also talk to the Trust attorney for some guidance. The attorney put the Trust together. I had to call my dad's attorney many times looking for "lost" documents.
My dad had Alzheimer's and colon cancer both late stages and he had bathroom issues A LOT in his final days. He was in AL and I hired caregivers for 24/7 care. I still had to clean up a poo trail on Christmas day last year...long story but the caregiver on that shift couldn't get down on the floor to clean it (bad knees?) and AL refused to help.
Also, call the Department of Aging for your county. They can offer some guidance. I would highly recommend at least getting a caregiver to help out especially if you parents have long term care insurance to help with the costs.
On a side note...Assisted Living doesn't always "assist". At least not in my experience. It's better if they can stay at home with additional assistance.
You are right to clean thoroughly and to worry about their safety. Maybe it would be a good idea to hire a CNA to drop in if you are not able to stay with them. Regardless of the cause, he needs help in the bathroom and this may not get better.
He needs supervision with bathroom trips and most likely in other ADL's.
The big question is can you care for 2 people with not just dementia but with medical issues also.
my dad was a mess his last few years and my mom did nothing, it was so gross.
I cleaned up after Mom when she had an explosive BM. It was all over everything. It took me 3 hrs to clean up. I said then, if it happened again, she was going to be placed. I cannot take the smell. It actually makes me nauseous.
Q. Can your folks look after themselves?
If no - they need emergency care, either A. assistance in home or B. be transported out.
I think people worry too ,uch about what's preserving dignity and what isn't.
It's not dignity to let a person pee and crap themelseves and get it all over the place because they don't want to use diapers or pull-ups.
Sometimes you have to force an elder. I always say nothing will get a senior a one-way ticket to a nursing home faster than being stubborn.
No one wants to go into diapers or pull-ups. I had one client who was adamant that she was not wearing a diaper or pull up. No way. We tried a portable commode nearby which worked for a while but then was no longer safe for her because of balance and mobility issues. The family really wasn't around and somebody had to make a decision. So I made it. The commode got put away. I got rid her underwear and replaced it with diapers. She had tantrums about it and was absolutely awful to me for a while. I ignored her verbal abuse and insults because I did what had to be done for her own good.
It's hard, but that's what caregiving is.
Managed care for both of them is your only real choice. The caregivers in a SNF will clean up the incontinence issues and dress dad in disposable briefs; they'll use wet wipes to clean him up properly after a BM, and they will shower mom 2x a week. They'll dress her in clean clothes, and make sure that both of them eat 3 meals a day.
If they refuse to go into managed care, you'll have to back off on the care you're giving them Tues-Fri, then call APS and report them as vulnerable adults, and have APS place them, which they would likely do if they find feces all over the house, your mother not showered and suffering from dementia, the house in serious disrepair, etc.
You're in over your head, your parents are in worse shape than you realize, and a chat with dad about his lack of hygiene is not going to fix the myriad issues that are going on here, I'm afraid. Dad's declined dramatically all of a sudden, meaning there's probably something organic going on; a stroke or something of that nature that hasn't been diagnosed yet. Meaning he's incapable of taking care of his hygiene now, and mom surely cannot take care of herself either.
I'm so sorry you are facing this situation. I'm sure you feel helpless, I would too, but I think the best way to help your parents is to stop helping them..........let APS take over if they are fighting you on placement, and that will likely ensure their safety moving forward. Or, if either one of them seem to be in dire straits, call 911 and have an ambulance transport them to the ER where you can get the social worker involved for placement.
Wishing you the best of luck and strength as you forge ahead with all of this. Hugs and prayers being sent your way.