We are in our 30s and until recently, my MIL lived with my husband and I for a little less than ten years. It was supposed to be temporary, but over time, it was clear she wasn't leaving. She recently moved out for a short period of time, during which she began showing signs of dementia. She is hallucinating and paranoid. She has always been extremely needy and demanding of my husband's time, but she now says that she needs him there with her all of the time because she's paranoid. But she will not take anxiety medication. She will not enter long-term care and will not move in with my husband and me. My husband is contemplating moving to her place. As I said, we are in our 30s, need to work, and have our own lives too. She is newly diagnosed and this could go on for years. How do I kindly suggest that bringing in care is the better solution than him moving in with her indefinitely?
The husband should not be guilt tripped and coerced by incompetent mother .
Seek counseling for you both to support needed decisions.
Mother with granny flat in our yard. And key to our house. As her dementia worsened, she progressed from “visiting” 3-6 hours per day between 9am and 9pm, to demanding more attention, to demanding attention whenever she wanted, whether it was 2am, 6am, noon, dinner time, or whenever, until she demanded that I leave my husband and children to move in with her. She said we were to be together, 24/7, or else. She stopped eating and drinking unless I complied. I became her hostage. But she still talked a good game to anyone else. The moment she wrote a suicide letter, and made another attempt, I phoned EMS and she was taken away for an evaluation. That’s how I got her placed.
That is your husband’s future.
BTW, my mother is still very much alive at 97.
So it doesn’t matter what she wants. What matters now is what she needs. Anyone delusional and paranoid cannot live alone, it’s not safe. And she certainly doesn’t get to move into your home and inflict that onto your children. Your husband also can’t move in and help her.
Is your husband a medical professional? Because that’s what she needs, at this point in her life. She needs 24/7 care, not someone who leaves to go to work (because she can’t be left alone). She needs a structured environment, with medical staff who can control her delusions and paranoia. Her health needs are now beyond what you and/or your husband can give her in a home environment.
She won’t like it, she’ll pitch a fit because everyone does. That’s ok, it’s where she needs to be to get the help and care she now needs.
Your MIL should be consulted about what choice she would make among living situations that are ON OFFER. No one gets to choose where your DH lives except him.
If you have children, then your children absolutely need your husband more than your MIL needs him to live with her. There are many mental health issues in young adults associated with abandonment by a parent. And, yes, your husband is abandoning his children by living with mom. Your MIL can have a happy life living in an AL that cares for residents with memory needs. I cared for my parents at home with a young daughter. My daughter kept coming in second because of the safety needs of my parents. As hard as I tried to do the right things for my daughter, my parent's needs ALWAYS interfered. Five years after my Dad passed away, I moved Mom into a care home. It took some adjustment, but she really enjoyed being around her peers.
I highly recommend that you and your husband get counseling before making a decision. Your husband is in a tough situation trying to meet the opposing needs of the people he loves.
Couple's therapy could help immensely.
I say this because you never know what life is going to throw at you. A friend, in her 50s, just lost a husband to a heart attack. They were getting ready to go out, he walked into the living room and had a heart attack that killed him. And you, as Mom gets worse its going to be 24/7 care. How can u do that with 3 minor children to care for who need a parent. There does come a time when trying to transport a person suffering from Dementia is very very hard. Incontinence being the main problem. Don't wait till too late.
She will only decline further until her care completely consumes both of you. Best to get her into a facility near you where you can visit lovingly and others — a team — can deal with the day to day care, which will continue to require more and more effort. And the sooner the better for her to get adjusted and create her own life there. Your husband does not owe her his. And saying “no” to completely unreasonable selfish demands—seemingly designed to sideline you—does not mean he is not a loving son. He obviously is. He could probably use some brief counseling to help him get clarity on the situation from a neutral party.
It occurs to me the above is about your husband’s choices. But he has not written to us. You have. And you only have control over what you do. I would focus on that. Know what you can and cannot do and lovingly tell your husband. The rest will be up to him.
Wishing you the future you and your husband deserve.
My 2 siblings and my Aunt are all involved in some capacity of support in the situation. There are plans in place that were considered with both of my parents before my dad passed away and we are working to that goal and taking things as we can bc medical tx is important and it is important to finish all we can here with doctors my mom trusts. (As much as she trusts anyone...)
Alot has happened in the last 18 months and while I'm no expert on my mom's illness, I am 100x's moreso than when we embarked on this adventure. There is no homehealth care where we live to speak of, and it is a shame. It is a very rural state and care is expensive. She does well for short periods of time on her own and ADT is an amazing tool.
My husband has been here to visit with the boys 4 times in the past year and we went home 2 times. So much is different but we are making it work. We didn't ask for any of these life changes but to us, we met the challenges our parents faced with love and the support we have been able to put forth and it was our choice to bless my parents this way. It isn't easy, as my dad mentioned it wouldn't be. I've seen my mom be frustrated with losing different freedoms and not understanding some changes in her life because her dementia won't allow her brain to understand or recall different, important things. l have learned I take my memory and brain function for granted and have learned to simply be present with her for like I hope will be done for me if I face this one day. We have had 3 grandbaby girls born back home in the last year. I miss our other 7 children and their growing families of 8 other grandbabies immensely. There really are no good words to describe the loss we feel not being together as it was and will be again.
I wrote this because someone may gain something from this brief description of what we have made out of a situation noone knew would come along. We could have placed mom in a home but that's not where our hearts are. Difficulties come and go. Watching my mom's face light up at the various parts of the deer herd that stop in her back yard, or the bunnies... so sweet. Watching her stand and ponder what memories may come and go as she looks out her north window at this mountain my parents raised us on and know she feels at peace in the home she and our dad made with their love for us is beyond words. It is in that where I find my peace.
Whether you bring in aides to help her or put her in a memory care facility, the cost of care is outrageously expensive. Does she have the funds or some type of insurance that will cover the cost of providing care? Would your MIL qualify for Medicaid? When I had to find caregivers for my mom, I found the range to be $32-$50 an hour and this is not for a CNA. They also don’t touch meds, can only remind a person to take them. These are things you need to know about. Contact your local Department of Aging for more info.
You are both in your 30s. This disease can last for 20 years, or longer. Just be prepared for this to go on for a long time!
You may just have to let him go. He must also understand, that he cannot quit his job because he has financial responsibilities to you that need to be met. Just make him realize that the care of his Mom is all on him. If he quits his job to care for her, your job will not support him and you to.
Really, how well has this marriage gone with Mom living there. You get your ducks in a row. Don't lose what you have worked for because of her. But also, don't hold on to what you cannot afford to keep. If he picks Mom over you, then I would count the marriage over. If he is moving in hoping to get her care or get her into Longterm care, there maybe hope for your marriage. Take it slowly for now and see where things go.
THAT is the question to pose to your husband and see what the answer is. That answer will determine the future of your marriage.
I hope he has the right answer and your marriage stays on track.
Your husband should know what dementia looks like and how it progresses; what he's in for moving forward, also. For him to believe he alone can be the answer to his mother's future care is to suggest he has no idea what he's in for. Literally.
I suggest you read this 33 page booklet which has the best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia. The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
Insist that DH read this brief article and then see what he has to say. I had my mother in Memory Care AL for 3 years when her dementia became moderate; best idea ever. Why? B/c she had doctors and nurses ON SITE to treat her for whatever issue arose on the SPOT (including the infamous UTIs that she had ONCE in all the 7 years she was living in managed care!). Caregivers working 24/7 in shifts to accomplish what your DH thinks he can do alone, while working a full time job? It would be funny if it wasn't so sad.
Best of luck.
You've already given 10 yrs of your marriage to his needy mother and enough is enough. If he does choose her and her needs over yours, then you've no true marriage and you need to read the writing on the wall.
I'm sorry for your marriage if he chooses life with mother over having a married life with you, but many marriages fail and in your 30s, you can start over again. You very likely need time to heal and recover from the low scale trauma of 10 yrs given to his aging mother, but you can be whole again, all on your own.
If he decides mother over marriage, serve him with divorce papers to make it formal and move on.
You deserve to be loved and cherished, not set aside for a demented, needy elder.