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Lots of people are saying your MOM will have to hire help, as if she would be COMFORTABLE doing that on her own. That is like asking for magic to happen. Again, you need help in the way of information and referrals from social workers, doctors, and even maybe a lawyer. The easies way is to, as some have said, MOVE FAR AWAY and leave her TOTALLY on her own. But, I don't think you would be happy. The BEST advice I heard to help you is for you to GO BACK TO WORK AND GET A LIFE of your own. Put your mom into your life as "Here is what I AM ABLE TO DO" and make a list for her and stick to it. ANYTHING ELSE she asks for, say NO, that is not on the list. That is something you need SOMEONE ELSE to help you with. Explain when she is ready, you will help her FIND SOMEONE ELSE to help on those other things. If she had a computer, she'd be responsible for ordering things and sending them back all on her own. She is NOT YOUR CHILD, so please do NOT treat her as if she were. She is an OLD person FACING HER OWN DECLINE and UNABLE to do so. That is psychological.
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"My husband and I also help his older sister who is not well".

I do feel for you. I also feel lined up for multi-fam members (both sides) & am worn out & done with caregiving. I want a little puppy to love & a shack by the sea & that is it! 🐕
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Talk with mom's Dr ND get the Dr to write that mom needs supervision, ect and talk to the Apartment Management and tell them you are mom's POA and mom isn't able to continue with a new Lease as she is no longer able to live by herself and with her dementia and you would hate for something bad to happen to your mom staying there alone and I'm sure you can get her out of her New Lease.

Take her to look at a 2-3 Assisted Living Places and tell her she has to choose one and don't take no for an answer.
Or....
Sounds like you're about all used up and should not have let it gone this far and this long.

You need Me Time, You Need to learn how to say No and You deffiently Need to know how to set Boundaries!

Take some much needed Time Off!!!
Let mom know you're not feeling well and are run down and you're no longer able to keep it up.

Let her know she made the decision to stay where she was so she'll have to pay for Care help and that includes going shopping.

They have rides for Seniors even ones in Wheel Chairs.

Have the Caregiver take her shopping or her son can take her.

Stop cooking for her, she can order in or buy really good frozen microwave dinners like Lein Cuzine Meals.

Grocery Shop On Line and have her groceries delivered.

Let mom Hire a maid as husband doesn't need to mop the floor.

Tell her from now on, she'll have to keep what she buys that you'll no longer be returning things but she can ask her son to return them, after he opens her pickle jar.

Let you mom know that you will still be seeing her but only for Fun things like Going out to Eat, Getting a Manicure or Pedicure, Getting a Massage, Going to see a Movie, ect.

Life is too short to live it all for others and in the end, you'll either die before the ones you take care of or you'll get sick and No One to Care for You.

Prayers.
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I found that my Mom refused to accept help from anyone but her kids as a way of forcing us to spend time with her. It was like, "If I don't take care of myself, don't get professional help, and don't allow anyone else into my home except my kids, then my kids are forced to take care of me and they can't leave me". Then I estranged from Mom and she was forced to start acting like an adult to survive. Now I get to enjoy my life. Everyone guilts you into taking care of your Mom because they're selfish and they hope their own kids will feel responsible for them one day. It's not your responsibility. You'll find that once you firmly decide to drop the responsibility, no-one will pressure you into doing it anymore because they'll see how strong your resolve is and they will no longer expect it from you.

What I've seen from my girlfriends who cared for their mothers is that their moms never appreciated it and it was "Never enough". This is purposefully used as a manipulation tactic. By being permanently dissatisfied with their daughters, they ensure that their daughters will keep trying to win their approval and make them happy, and their daughters just worked themselves until their Moms died, but Mom was never grateful or happy with them.
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luaneZ Nov 2021
You are so right! I'm one of 3 but mom wants me to do everything and exhausts me. Now I just tell her I have 3 -12 hour shifts with her a week and I will drop in once with groceries per week. She cries and baits me but I just say that is the schedule I can manage and the rest of the week I'm with my family. She keeps threatening to move away and I tell her I'm not stopping her but since she has dementia its just a fantasy. No one else will take her.
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I read in your profile that your H (and you?) would really like to move to be closer to your only child. You wrote that uprooting your mother and your H's older sister would be too difficult.

Why? Why can't both of these elders move into a facility near where your son lives?

The other alternative is to just move your H's older sister and let your brother deal with your mother. I bet in no time flat she would be moved into a facility.
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You need to set boundaries...
You need to remind your Mom, you are her daughter not a caregiver.
She sounds like she needs a dose of reality, that you have a life and family, and that doesn't mean you don't love her, but remind her you are aging as well and can not handle both households anymore and that maybe you can talk to the caregiver or if it is state funded talk to them about needing more hours for your Mom.
It is not fair for you to go home exhausted and probably crying because you have compassion fatigue.
Compassion fatigue is real it is described as physical, emotional, and psychological impact of helping others.
You should talk to your Dr. about it.
And do some relaxing time for yourself, take a long bubble bath with epson salts, go do something fun with your Husband.
Try to get back to a life that was comfortable before you took on your Mothers needs.
Your Mom seems to be taking advantage of your kindness and the fact that you are her daughter and she expects you to jump every time she says jump.
I really think you need to sit down with her and have the conversation and by you setting up the help that she needs, should obsolve you from feeling guilty and give you a sense of relief that you have set your Mom up to have a good quality of life, so you can move on with your own life.
Let her know you will visit her and call her and that you are not abandoning her, but it is your love for her that you are setting things up for her.
I wish you the very best, I know you can do this, you are doing this for both of you, not just your Mom.
I will leave you with a quote " God will give you Grace for your place".
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Dear Ann, Your story sounds familiar and I totally get it. Can you and maybe your husband sit calmly and talk to her about “independent living”. If she is independent she should live as if she is. Be honest about what this doing to you. It is challenging and frustrating, but you cannot keep at this pace. Her pickiness is probably her way of being in control and getting you to visit. I had similar situation with my Mom and even though it was difficult for awhile, I had to make a change. It is physically and mentally draining you! Your Mom may be angry at first, but without you, she will have to hire a caregiver. Be loving, respectful but direct. Practice conversation beforehand. Write down what needs to be said. You can do this! Lastly, mostly- pray! I struggled with this, too. Dreaded the conversation but after praying, God worked it out. My Mom was open to the conversation and we came to a compromise.
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I truly hope you have durable POA and all your mother's finances are in order with Health Care Proxy, Will/Trust, etc. If not do it now before it's too late.
I know you don't want to hear this but stop being a doormat. Returning things 3+ times to suit her is ridiculous. I am all for CARING for your mother, but you are CATERING and she is used to it and feeling entitled. Start putting your foot down and setting boundaries. If your Mom can cook for your brother and clean her own apartment, she is surely more independent than you are making her out to be. I understand you do need to go shopping, pay bills, and drive her where she needs to be. However, if you need help doing any of these things, or any other thing for her care taking, insist on hiring someone for that purpose. Why are you letting her call all the shots? When you buy her something tell her to enjoy it because it can't be returned. If you think the blanket is ok and not too heavy, leave it there. Stop making work for yourself by trying to make things perfect for your Mom - it's impossible. You are a caring and loving daughter who wants validation from your mom, but she is too busy controlling you to appreciate all you do. Please re-consider your role in this equation.
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Santalynn Nov 2021
Yes, there is such a thing as 'overfunctioning' and folks with big hearts easily fall into this type of dysfunction; protect yourself and refuse to be used up. I hate to say this but it can be a twisted form of 'entertainment' for narcissistic types, to see how far another person will bend over backwards to 'please' the controlling person...it's truly a 'power trip.' Don't play!
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Your mother told the doctor the truth: You don't have time to meet her every demand. You are exhausted for good reason. Now take her at her word, and let her find a solution that doesn't involve you.
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do what lealonnie says: put your foot down HARD. and don't you feel one bit guilty.......you have done more than enough
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Lots of great suggestions. I have one caveat - be sure that her documents for medical care, management of her funds (if /when she is not able to manage them herself or an MD states she is not capable) are up to date. If they are not done, or are not reasonable (names your brother as sole decision maker, for example) I would suggest getting those in order FIRST.

When you set limits on her - she will be angry/resentful/manipulative - and having that overflow into the document process may get much much harder.
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NO. Say it. This may be the hardest word to say, but say it. Mean it. You are your mother's daughter, not her slave. Say no and stop doing all the stuff. If you do not do those things, she will then decide how to get the things done another way. Visit her, talk to her, just do not do her bidding. When she asks you to do something, say NO. Do not explain or equivocate. Just say no. Then leave or hang up. She will get the message very quickly. Tell her JUST ONE TIME that you have pressing needs in your own life and that you will no longer be available for her errands. Your pressing needs? Peace of mind, control of your own life.
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I hate to say this but you have let your mother take complete control of your life. You are an enabler and unless you stop immediately, she will put you in an early grave. Start refusing to do certain “jobs”. Learn to live with the guilt, you’ll live longer. You’re a young woman. Take control.
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NancyInSc Nov 2021
Amen! Amen! Amen! Her mother is killing her. I took care of my parents and they lived into their 90s. The last one died a almost two years ago. Now I am dying. I will not make it to my mid 70s. Terminal cancer is very common among former/current caretakers. I was looking forward to my golden years, but...
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If I could do it over again I’d insist and I mean INSIST that I get a relief helper no matter what! 💗💐
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God bless you sweetie. I hospiced my dad at 92 and it is very hard. He was my best friend. I hope you can give yourself time to rest. all your feelings are normal; let go the guilt; it doesn't serve you. I am sending you a virtual hug.
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I am thinking a little tough love is necessary. You need to be gone for several days at a time & let Mom experience day to day living without you being right there ready to fix it. Sounds mean, but my husband’s family had to do that with his dad. It shook him up and scared him. He then agreed to having help. They were always at the ready had he gotten into real trouble, but he needed to struggle to understand how much help he n ended! Good luck!!
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I was there with my mom a couple years ago. She was in independent living near my home, I am retired, and still I couldn’t keep up with it! Grocery shopping, clothes shopping, keeping up with 12 medications, taking her to multiple doctor appointments, managing her sundowner syndrome- it was literally all I did. She would never participate in any of the activities offered, and couldn’t figure out how to make use of the transportation service the facility provided. She just sat in her apartment all day long waiting for me to stop by. After several scary falls I moved her into an assisted living facility with memory care. It’s been the best decision I ever made, for both of us. Here is the conclusion I came to: if a person can’t take advantage of all the perks an independent living facility provides without substantial outside assistance, that is not the appropriate level of care. They call it independent living for a reason! Sending positive thoughts your way - best of luck.
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The brother isn't seeing day to day, 24/7, activities that mom does or doesn't do. He sees mom able to get up and cook (which is actually good for her to do). She probably appears quite capable in his presence.

She allows someone to handle caretaking chores if you are out of town. Sounds like you need to be out of town right now (as far as she knows) and let caretaker come in for more than a week or so. Cell phones travel with you, so just because she can call you won't give it away that you're really at home. Tell her you will be out of town for several weeks and caretaker will be coming. After you get back, go visit a few times as though things are back to normal, then you could have a little episode of being down in your back - caretaker needs to come again for about a week.

She's used to you providing everything she needs and as long as you continue to provide, she has no real need for caretakers she has to pay for. Perhaps being unavailable for a short while will break her dependence a little.

As for her signing a new lease, they will let you know when her abilities are no longer compatible to care they will provide in that setting. You might tell her that she must let others come in to help her because she is really no longer 'independent' while you're doing all the work. Caretakers can help you keep her there longer, but if she refuses caretakers and starts calling for help, the facility will not let her stay - they will move her to section that provides more care and she will have to pay more for that anyway. Better to get paid help now if she wants to stay where she is for a longer period of time.
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If Mom has a cell phone put in an Uber app. Then she can go shopping whenever she wants, wherever she wants. And pay for it.

How about an app to get her groceries ordered and delivered? She can pay for that too.

Add the number of a local dry cleaner who does alterations. They can hem and repair her clothes. Make sure they pick up and deliver, and will do her laundry. At her expense.

If she is in a seniors building they most likely have cleaning services available. Schedule them to clean her apartment either weekly or biweekly, and they can add that to her bill.

Schedule her doctors' appointments when it is convenient for you. If it isn't convenient, remind her to use the Uber app.

Now that you have that all arranged, visit no more than once weekly, and make it a social visit. Talk about old times, special events that were memorable, look at pictures together. Maybe bring in carry-out for a meal. Then share a hug and kiss and say good-bye.

I bet you will feel better! (And afterwards you and darling husband can go out for a quiet evening together...)
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babsjvd Nov 2021
Great advise
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Don't want to be a naysayer here but this sentence stood out to me - "She is 88 with only short term memory loss and problem solving issues which are normal for her age."

If she has short term memory loss and problem solving issues, that is a huge problem and where you need to start. You cannot reason with someone who has either of those issues. There is no explaining or waiting for her to understand. All of that is gone.

How is she when the hired caregiver is there with her? Have you asked the hired caregiver her perspective on your mother? Has her doctor evaluated her for cognitive issues?

There is a difference in a difficult parent who doesn't respect boundaries and a parent who is having cognitive issues.
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Riley2166 Nov 2021
Whether it is narcisstic behavior or dementia does not matter, This woman cannot expect to behave like she is the Queen of the planet. Something must be done whether she understands or not. This simply cannot be tolerated.
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Your mother wants to live independently then let her

Just inform her she can shop on line (just the thought of her arguing with the staff when she want to return something is sweet justice).

She can pay for her own cleaning staff from now on. She can pay a taxi to take her to her Dr.'s appointments.

Freeloaders never appreciate your help and only pay you back with abuse. Believe me know from being a care giver with my mom. I have taken a few online courses in how to handle narcissist's and it has helped me out tremendously. The abuse in this house has gone down considerably.

When she belittles you in public just inform her she gets what she pays for. If you do not like my help then get it somewhere else. Get up and walk out on her. When she calls to b**** at you just inform her that her attitude is not appreciated nor tolerated anymore. Inform her you need a month to discuss any further assistance you MIGHT give her. Before any assistance is given she must apologize. If she refuses to apologize it is because she is not sorry and the abuse will continue. Hold her accountable for her actions.

A man or woman only has as much power over you as you give them.
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Don’t feel guilty
Break the lease, how much is a penalty? If you can afford to do it, do it

I like the online ordering. Get yourself an Amazon account ,easy returns…Or just don’t change the things out that she isn’t happy with. Start declining.

I know the frustrate and hurt , when your mom lies to a medical professional. It’s insulting….correct her as kindly as possible.my mother told a visiting nurse I hit her … I did not. ..my mother hit me.

Get your life back. I know that people will say you should be happy that you have…, I hate it when people say that to me, The stress of everybody’s caregiving path is different
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My mother was certain she could live independently. All she needed was a wee bit of help from me to achieve it: handle her finances, clean her house, do her laundry, manage her meds, book her appts, drive her around, plan her meals, cook some meals, buy her groceries, and keep myself available 24/7 in case she felt like talking or needed me.

No outside help allowed. Only me.

I burned out. We discussed her “independence” and I made a list of what I could do for her. She was to account for the rest, either by doing it herself, or hiring help. That made her very angry, and she accused me of being selfish.

Long story short: diagnosed with dementia, incapable of caring for herself or making decisions. Please do not make my mistake of accepting that some short term memory loss and selfish behaviour are normal for her age.

Like me, you will never do enough. Suck it up and let her rage at you while you set up an assessment for a diagnosis. You cannot keep her happy so focus on keeping her safe. Shift the power. I’ve transitioned from useless daughter to welcome visitor. She has zero memory of the 18 years she lived with us. Best of all, I am a wife and mother again, loving life with my own family.

Edit: If your mother is certain she’s living so independently, give her a chance to do so. Tell her you are hurt or ill and take a week to recover. Her reaction will speak volumes. (My mother was merciless when I was post-op, pounding on my bedroom door, ordering my kids to get me out of bed. Some display of independence.)
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Beatty Nov 2021
"a wee bit of help from me..." LOL 🤣

But seriously, your real life trail-by-fire experience gives excellent solid advice.
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No is a complete sentence.
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I would get more hired help to check up on her anyway so you can get the break you deserve. It sounds like she is narcissistic and using you. Ge her help now without delay and don't feel bad about it. As a last resort, you might have to terminate her apartment contract and put her into a facility.
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MY GOD, this woman and her selfish behavior is going to destroy you and you do NOT deserve that. You, at your age, have gone far beyond what many would do at the expense of your own peace, sanity and health - and all unappreciated. First of all, do you have a Power of Attorney in place? If not, speak with an eldercare immediately to see what you can do since you obviously are responsible for her. Second, at once, sit her down and in no uncertain terms tell her the new rules and boundaries - take it or leave it. This includes she treats you with respect and cannot demand or complain; she must allow caretakers and others to step in for you as you can't do it all and won't. Also, secretly go to the independent living and discuss the entire situation. I do think there are ways you could break that contract. An eldercare attorney can help. Also talk with social services local Office on Aging or get help "who" from the local hospital, etc. Talk with them and ask for advice. This has to stop at once for your safety. In the meantime do NOT enable her by giving in over and over to do this or that and tell your husband the same. Enough is enough. There are solutions to this but you need professional advice. I would never put up with this - couldn't and would't. Good luck.
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Those who say you should be thankful should try a month in your shoes.
Do not keep trying your best. Walk away, She does not appreciate all your sacrifice. She expects it. Feels entitled to it.
News flash—you have a right to your own life. It is not your job to be her step-and-fetch-it girl. Sure you want to help mom. But that help needs boundaries. Her conduct shows no regard for you. She signed a new lease, that’s her problem. Stop letting her use you. Stop letting her make it all her way. Decide what you can comfortably do—doc appointments, shopping once a week, whatever work for you—not her. Let go with love.
Good luck.
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Debstarr53 Nov 2021
I agree: "Those who say you should be thankful should try a month in your shoes."
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You say: "She only lives independently because I take her of all her needs."

This is why you are frustrated.
S T O P - although you need to understand why you are behaving as you do otherwise you will continue the cycle.

"IF" you are too tired and 'sick of it" you would stop the repeated behavior.
There are reasons and feelings underneath your behavior. Until you understand what is running you, you will continue the pattern of behavior (both your mom's reaction to you) and how you respond to her. This is a rat chasing its tail.
You need to be able to stop for things to change.
It sounds like therapy would help you.
First of all, hire caregivers and YOU stop working w/your mother - at least for a week or two (after you train someone). If you mom refuses their / other caregivers, this is her choice and you need to tell her that ALTHOUGH YOU DO NOT keep doing what you have been doing.
Her choice is:
[ ] caregiver(s) from agency or elsewhere
[ ] no care
[x] daughter on strike / time out
[x] things are going to change if you want me to support you.

Gena
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You are a saint and so is your husband.

Please make an appointment with her doctor to have her checked for mental competency. It appears she is running you ragged with her inappropriate demands and shopping. Please make a list of everything that she needs help with. Her doctor will tell her and you that she needs to move to assisted living or allow more help into the home.

In the meantime, please read any of the "boundary" books by Townsend and Cloud. They are very successful in helping people with creating healthy ways of dealing with problem behaviors - this is called creating boundaries.
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Ann123 Nov 2021
I love to read thanks for the book titles !
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Ann123: Imho, this dynamic must be amended by ANY means possible.
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