My Grandad is 87 and has had a diagnosis of dementia for a number of years now. He has started to decline rapidly and has now reached the point where he has talked about different ways he could kill himself. He is very detailed in how he would do it and has a number of ways in mind. He has also, however, explained that it wouldn't be fair to whoever found him, or if he jumped in front of a train or bus the driver might get in trouble and they would have to live with killing him so it wouldn't be fair.
He gets very emotional and is fully aware that his brain is declining and that he will need more and more care which is the thing that makes me think his threats are much more than that and he is trying to prepare us.
He doesn't know who we are anymore but he does know he sees us often so we must be significant.
I don't know what to say to him, how to respond and I know that the last thing he would ever have wanted is to forget us or need care and not be able to perform basic functions like going to the toilet unaided.
Any advice would be very greatfully received.
If you have a religious barrier concerning this methodology of finding relief, then it is probable that your ancestors supported the inquisition in the twelfth century.
Make sure your father reads some of the delightful testimonies of families who participated in touching and loving ways to send their relative to the next life.
My dad told me that it was his job as a man and father to take care of me, not the other way around. The fact that he was also incontinence made the issue even worse. he didn't want his daughter seeing, or touching his private parts to change his diaper. that's all pride, and dignity.
so I can understand how they feel as I think I would feel the same.
when I first started to change his diapers he was so embarrassed it wasn't funny. I stopped and said to him to try and make it a little easier for him to
accept was" hey daddy, is this little thing where I came from" and he busted out laughing and said " yup but it was a lot bigger than" we laughed like hell.
mom on the other hand passed away three weeks after my dad. that was hard for me. my mom was the opposite of dad. she didn't care what you did as long as she didn't have to do anything. diaper change time she would open her legs and say to me "take me I'm yours".
when our family members and or good friends lives are coming to an end, their is fear of the unknown, panic, pain, and other unknowns that must go thru their minds, especially with the dementia and Alzheimers . So what they say might not be what they really mean.
all we can do is let them know we are there for them, love them, talk to them, and treasure the time you have left with the as the memories of them will always be in our hearts.
Growing up, I went with my father to visit sick/capacitated relatives. Later in life, both parents and I discussed end-of-life wishes. So, I’ve known for quite some time how he felt about these issues and not being able to live a productive life.
Years later, he was diagnosed with cognitive impairment. I was able to secure a living will and durable power of attorney paperwork from the hospital library. With a notary of public as witness, we reviewed, answered, and signed the paperwork.
As the dementia progressed, so did his depression. Since I had already removed the guns from the house, he tried to use a pocket knife to threaten suicide. He cried, and begged God to ‘take him now’ several times a week. An antidepressant was prescribed and it improved his mental status.
Last year, he was hospitalized with aspiration pneumonia. Hospice was called and he would now need to have his food puréed and liquids thickened. I know he would not like to exist like this, so a DNR and comfort care order has been done. I know it will be hard for me to see him go through this, but this is about what I know about him and his wishes.
You have gotten a lot of good advice here from others.
When he brings up the subject again, talk to him at length about his wishes about future treatments and ask him if he would like to help you to get paperwork done to follow through with this. Seek out medical and legal professionals to get the proper paperwork done so that you can aid your grandfather (while he is still able to express his wishes) to not prolong his life. I will keep you both in my prayers.
I don't have nightmares anymore - thank God! - about her end, about the way she screamed in pain for 3 days after a slip & fall in a NH when a CNA was giving her a shower, and she broke both bones below her left knee... She was in such pain because the hospital/nurses/doctors said "we can't give her any more pain meds because it could kill her!" I will always be greatful to the hospitalist doc who intervened and suggested hospice as a viable option, and allowed her to go in relatively painless peace. She was 97, she had macular degeneration, and was blind - in the days after the fall, the hospital suspected she'd had a mild heart attack, might have a clot in her lungs, her kidneys were failing, she would never get up again or have any quality of life, which had been little enough (actually no where near enough) for a long time before that fall.
She was in a nursing home after a prior fall when she broke her hip & wrist, and the repercussions of that fall in surgeries, mistreatment, gross negligence from several "facilities" left her disabled and in pain, confined to a wheelchair and absolutely miserable about her "life". I spent those two years right along with her in Hell, trying to comfort her and support her when she consistently lamented about the prospect of this being her "life" forever...
My previous "plans" for my own future options, my opinion about "end of life" quality, were solidified and verified. I live now terrified that I also won't have the choice she didn't have. I fear that I won't be able to take the final step for myself because of circumstances beyond my control. I agree with an earlier answer that we wouldn't treat animals the way we do people in hopeless and utterly inhumane conditions. We would be arrested for felony abuse and neglect... So yes, I think it's approaching criminal that most of this society does consider suicide under any circumstances as a mental illness, a weakness of character, whatever other excuses "we" can find to justify our need to prolong breathing lungs and beating hearts well beyond what nature would accomplish without medical intervention...
I do live in Oregon, with assisted suicide provisions, but even that law has restrictions and conditions which put that option beyond many people. I'm sorry this message is so harsh, but the reality is this should be no stigma to the memory of a loved one, or to those left behind... "Assistance" should be a human right for everyone, and the understanding and availability of this process should be a comfort to people who feel it is their final option and to the loved ones left behind. Everyone should have the right to determine what constitutes their choices and views on quality of life, and the solace of a dignified end to the inevitable...
I have come to the point...after 10 declining years being the main caregiver, of wanting to grant her wish. It is apparent that she has no quality of life. She sits home all day with three nurses taking shifts and I do her errands, cooking etc.
It made me squirm to hear her speak this way...my faith is against suicide. Yet, I look back at the dogs we had who were suffering and how it was apparent that the only choice was to humanely put them out of their misery.
Sadly, if we are religious, we cannot depend on our higher power, to be humane. For whatever reason we mortals cannot fathom...our loved ones suffer and suffer terribly and long. It actually makes me question my faith and want to scream in frustration that more horrible days lie ahead of my mother and all who love her.
Right now, I try to validate my mother's feelings. I say to her, "Yes, you are tired and in pain and it must feel horrible and I am so sorry about this." Then, after awhile of reflection, I try to distract her with family news or asking if she wants to play a game. I know this falls flat but is the only way I can help her deal with her situation.
https://www.oregon.gov/oha/ph/providerpartnerresources/evaluationresearch/deathwithdignityact/pages/faqs.aspx
That being said here is where I stand on this issue. I suffered a car accident in 1987 & believe me 42 surguries it has taken its toll. I do go to pain management every month & hate it with a passion. Everyone thinks that you can throw a antidepressent pill at the issue & that just isnt so. Yes, Im depressed, but mostly I hurt like hell 24/7.. Every single morning when I wake suicide is on my mind. Thats why I choose to respond to this message. Im sitting here now in terrible pain with hopes that my meds will kick in soon & I will feel better. But the issue remains, at what point will I choose to take my own life. Everyone says "O thats soo sad"., Well, yes it is but it is just how things are & they can't be changed. Neurpoathy in my feet so bad I can hardly walk, failed spinal fusion & failed cervical fusion. Yes, I could make the doctors richer by having more surgery, but an honest one will tell you that its not going to take care of the pain. And this Opoid crisis has totally destroyed the real ligitimate pain patients chances of getting help.
Then there was mom. Suffering from dementia & kidney failure. She lived with me & I took care of her for many years. She didnt want to go to a home & wanted to die in ours. I told her as long as I had a say in the matter she would/could do what she wanted. She actually stopped her dialysis on my 51st birthday. I could see it was taking its toll on her. She struggled to get ready every other morning, she suffered, she would often fall, but mostly she was in pain. A pain that many of us will hopefully never know how bad. When the Hospice RN came to talk to her on the day she quit dialysis she wanted to make sure mom knew what she was doing. When she ask that question, Now Miss Betty, do you know whats going to happen now? Do you know your going to DIE.. I about fell over..My heart was crushed..
But as much as we want to keep our loved ones here on earth it really isn't fair that we try and hold on to them for our own purposes. I think the real reason people talk about suicide is its a plea for help & sometimes its just a simple warning they are tired. In a sense mom took her own life by quitting dialysis. I just had to let her know that I supported her with what ever decision she would make while going outside out of her sight to cry over her decision. She passed 4 yr ago this month and she isn't in pain now.
I have some pretty crappy doctors but in a perfect world when I expressed how I was physically feeling they would listen, they would offer to help & not throw a nerve pill at me. Like I said, Im not depressed I'm in PAIN. Well, I guess I am depressed, anyone who suffers from chronic pain is depressed. I'm not suicidal I'm just a realist & I'm tired. I don't plan on jumping off that bridge just yet, for the moment I am planning on buying an RV and hitting the road before I do take that final leap. So when you granddad says things like this again, please PLEASE don't tell him he is being "SILLY", thats the WORST thing you can say. His problems are REAL & so is his PAIN. Perhaps just talk with him about what makes him feel this way & then see if there are things his doctors can give him to relive some of that. It may be that depression is his main problem, But JUST LISTEN & TALK with him not discounting anything he says. I remember mom asking me for a Xanax. I had to keep & give her all her meds. She said "Son, you just can't imagine what I'm going thru". No, even I couldnt imagine. She knew she was dying & had days. So shower him with love & listen to what he is saying. God Bless
I am with your Grandpa.
I have thought about what plans I would carry out. I do have a "stash" of pills that I would consider taking.
Knowing what my Husband went through with his Dementia, what I went through caring for him the thought of sparing someone the ordeal of caring for me is a sound one. The thought of me not knowing who I was, my Grandkids, my friends I can not comprehend that.
There are states that allow "medically assisted suicide" the problem that I see is by the time you are "ready to end it" you may not be able to administer the drugs yourself and someone else would have to do it and that is the problem. So there is the same problem with my "stash" of pills. When I would most need to take them I might not be able to.
As for your Grandpa. If you can talk to him about this it might help. (Both him and you)
Tell him there are a number of things that have to be done first.
He needs to sign a POLST or DNR. A POLST is more detailed than a DNR. Either document needs to be signed by his doctor.
**At that doctor visit you should also discuss this with his doctor are antidepressants a possibility?**
Then the next steps for you to take with Grandpa is..All the rest of the paperwork Will, POA and anything else that might be required. (Is the house his? are there properties that need to be handled?)
Then you need to take him so he can help arrange his funeral. What does he want as a service, casket and burial or cremation, any other details. He should help write his obituary.
If he can accomplish all this I would be amazed. I know my Husband would not have been able to do this.
It is possible that your Grandpa is thinking of suicide because he feels he has no control. Getting some of these things done might put some control back in his court and he may realize he has a lot to do before he takes his life. Also doing these things will take time and we all know with Dementia time is the enemy and by the time he completes these things he may not physically be able to do what he wants to do. Or he may "forget" about the idea of suicide.
I was very surprised when my 90 year old FIL, who is in great health, said recently he would rather die than not be able to continue to do the things he always did. He recognized he was slowing down, which for him meant only walking 3 times around the perimeter of his property every day instead of 6! He isn't depressed at all, he's a happy person who enjoys life so his comment opened my eyes to how it must feel to lose the things that are important to someone's quality of life. He truly believes he has lived a good life and doesn't want to muck that up with a prolonged death. I sure hope he's around for many more healthy years but if not, I know he's OK with it and that makes it a little easier for me to accept.
https://www.nytimes.com/2018/08/31/health/suicide-elderly.html
Grace + Peace,
Bob
I just learned there is actually a pill that can be taken to end your life - the VA makes it available to veterans - I don't know more because I only recently heard about it.
Your Granddad is probably extremely lonely and this doesn't help. If you want to help him, you need to see that he is receiving proper nutrition. I still remember back in the 70's when poor nutrition was linked to what was then called senile-dementia. After that report, you never hear of senile-dementia, it is all about Altzheimer's now. But seniors still need proper nutrition.
My DH lived to be 96 yrs 8 mos and until his body started shutting down, his brain was fairly well intact. He took the "dementia test" annually and still got high grades showing no dementia. But I made sure of his necessary nutritional needs. Sites like AgingCare helped me a lot.
Take a look at the care team and support around HIM and YOU. What are the finances like? Does the family pull together? Are there good family caregiver programs and support around you and him? Explore the care team picture with him. Let him know you have it covered - if that is possible. If you are isolated and the care picture does not feel well supported you really have to check your own heart and intentions. This becomes a really personal decision - if you feel fully committed to changing the outcome and offering empathetic care to your Granddad. It's a slippery slope when you open your heart in that way and without the supports around you that slope can become a rabbit hole and you will not know where you will end up - perhaps a beautiful and or difficult place?
Good luck to you, you are a brave soul.