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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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Parkinson's is a progressive disease and we watched our dad lose control of his body for a 7 year period after having many years when the Parkinson's was somewhat under control; some deterioration was slow; some was fast; when he had trouble swallowing, deterioration moved pretty quickly. Remember that the caretaker can remind patient of things to do to stay safe; ask dr for recommendations and be vigilant. Blessings to you and your family.
The stage is not as important as the rate of disease progression. If she went that far down in 6 months, the outlook is not good and you need to talk to her MD about when a Nursing Home would be needed or if it is time for Hospice. So sorry, but that is just my opinion.
That is a rapid rate of progression. Pamstegma is giving excellent advice. Start looking into nursing homes and hospice now, so that your ready when the time comes.
Since this form is rare, there probably isn't enough data to identify typical stages, and even when stages are described in the literature they don't apply to every individual.
Mom may be at a plateau and stay at this level for some time. Or the next six months might see a continuing steep decline. I know that is not very helpful for planning, but it is just the nature of the disease to have unpredictable timelines.
I agree with Pam. Start now to plan for the more severe level so you don't have to do it under even more duress. But take each day as it comes. Right now focus on the quality of life; the quantity is out of your hands.
Parkinsonism refers symptoms that mimic Parkinson's but are not caused by that disease. The symptoms and progression would depend on the cause, and there are no "stages" such as with alzheimer's. It is always wise to be proactive and plan for future declines when caring for our elders regardless of the diagnosis.
Look online at: www.ninds.nih.gov/disorders/parkinsons_disease/parkinsons_disease.htm mayoclinic/diseases-conditions/parkinsons-disease/basics/definition www.parkinsons.org/ Learn what you can about the disease, make a list of questions for her doctor so when she goes in for a check up you can get them answered. From what I've seen, when there is a rapid progression the prognosis isn't good. I'm sorry this has happened to her. Maybe a physical therapy consult would help her maintain what skills she has, at least it doesn't hurt to consult with a therapist.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Mom may be at a plateau and stay at this level for some time. Or the next six months might see a continuing steep decline. I know that is not very helpful for planning, but it is just the nature of the disease to have unpredictable timelines.
I agree with Pam. Start now to plan for the more severe level so you don't have to do it under even more duress. But take each day as it comes. Right now focus on the quality of life; the quantity is out of your hands.
mayoclinic/diseases-conditions/parkinsons-disease/basics/definition
www.parkinsons.org/
Learn what you can about the disease, make a list of questions for her doctor so when she goes in for a check up you can get them answered. From what I've seen, when there is a rapid progression the prognosis isn't good. I'm sorry this has happened to her. Maybe a physical therapy consult would help her maintain what skills she has, at least it doesn't hurt to consult with a therapist.