This probably isn't a very big deal in the scheme of things. My mother has hugely improved after her stroke. Her family and POAs are controlling bullies and dismissive of her, but legally there is nothing I can do. I am not allowed to talk to lawyer, nursing home, doctors, nothing...and if I interfere in any way, POAs will stop me from having any relationship with my mom. My mom wants to go to a movie. She is totally ambulatory, barely uses a walker, and has very much recovered from 3 strokes...can she live alone, no. But she is basically being held prisoner, as her POAs want all the control but none of the work. They won't take her to the movie, let her leave the facility, take her anywhere, allow anyone else to take her...so how does it work? They have to sign off on letting her leave, which makes no sense to me as she isn't declared incomp and there is no guardianship, but again, I am not allowed to ask even one question. I think maybe some kind of medical transport could drop her off and pick her up. Perhaps there are caretakers who do this kind of thing? Any suggestions about how to let my mother see the new Stephen King movie? The cinema is about 2 miles from her nursing home. Unfortunately, I am 2500 miles away.
From 2500 miles away and over a phone line, it is almost impossible to evaluate your mother's competence or functional level. My mother recently attended a cousins' luncheon with me and conversed with family, many of whom have known her for decades. She enjoyed herself and appeared very normal, if you didn't notice she asked me to order her meal or that most of her contributions to the conversation were comments about how things were years ago (how the bus system worked in the 1950s or how she liked the Winn-Dixie grocery which closed almost 20 years ago). One of my second cousins walked out with us and as we pulled away, my mother asked me "Now who was that?" Just the oldest daughter of my mother's best friend since high school, who Mom has known and seen every month or so literally since her birth nearly 70 years ago.
My biggest worry is Mom standing up and trying to walk without her walker. Since a fall permanently damaged her knee, she needs a walker and with her short term memory problems she forgets about the injured knee until she attempts to walk and it gives way. I had a major scare just this week when she stood up from the toilet and starting walking out of the bathroom without the walker. Fortunately when the knee collapsed under her, Mom was able to grab the vanity and didn't fall.
Is it possible the POA has aggressively limited your access because you have become a "problem" by continuing to be dismissive of your mother's true limitations? Perhaps the POAs know your mother would be unable to function in a strange movie theater, so the idea of someone dropping her off and picking her up is appropriately rejected? As my mother's short term memory declined, Mom began to see me as a "security blanket", allowing her to function well in strange environments. Until she became accustomed to the adult day care she attends 3 days a week, she was very anxious about being there without me. Even now, she has a mild level of anxiety in our home when in the care of her son or another care giver. The NH facility, along with it's staff and routine, are now a comfort zone for your mother; she may not function well outside it anymore - something that's almost impossible for you to see from 2500 miles away.
I suggest you either accept the POAs determination that your mother needs to remain in the facility or travel that 2500 miles to spend at least 10 hours a day with your mother for a week or so to develop your own sense of her functional limitations. Please stop telling or implying the POAs are bullies and neglecting your mother. Instead I suggest you call (or maybe email if that lets you better consider your wording) the POA and tell him/her about your mother's desire to watch some movies and _ask_ how the NH shows movies. Is there a viewing room with a DVD or does your mother have access to a DVD in her room? Could you send a DVD player and/or some movies to Mom? Does the TV in her room have an HDMI connection available?
You need to start becoming a supportive member of Mom's care team (and that means supporting the POAs too) instead of a less informed but always critical outside voice. You might even want to apologize for some of your previous behavior, explaining your phone calls with Mom had you thinking she was more functional than she really is. You are not the first family member to make this mistake, most make them from a lot closer than 2500 miles. The only way forward that doesn't risk your access to Mom and your relationships with the POAs is to become far less combative. Good Luck mending your fences.
omg that part oh so perfectly captures a moment that anyone who caregives &/or has spends time with LO with dementia finds themselves in. It would be the perfect title for a column.
I would expect that the POA has been enacted because she is not competent.
You state "her POA won't give permission". That's it. It's not going to happen. It does not matter if you find someone to provide medical transport and supervision to a nearby theater; the trip is never going to happen because "her POA won't give permission".
Your mother chose her POA and let that decision stand for 20 years. Your mother chose this person(s) to handle her affairs. She did not choose you.
When your mother had a stroke, her POA was there for the doctors' assessment of the stroke's impact and your mother's ability to SAFELY live alone. You state your mother is not able live alone and your mother was on Medicaid within 2 weeks of placement. Medicaid does an investigation of finances during qualification so it is highly unlikely the POAs did anything to exploit or steal from your mother since it would have been revealed and prevented qualification You could report your concerns to the state Medicaid office and if misuse of funds or resources has occurred your mother would be disqualified. Who would pay for her care then? Would losing Medicaid be in your mother's best interest?
I am truly sorry you find yourself so vexed over your mother's circumstances and your own inability to provide her with the gift of an afternoon movie. Several people provided you with good advice to help you better understand and cope with your frustration, guilt, and anger over your powerless position and to assist you in finding a different way to gift your mother with a happy afternoon diversion. They do not deserve your angry venting because they could not help you achieve the impossible, but they all understand it and forgive you for it. We have all to one extent or another been there and done that.
Your latest post makes it clear you have serious personal problems with the POAs that have nothing to do with your mother's current living arrangements. You are extremely lucky to have any contact with your mother. The POAs appear to be acting in your mother's best interest (allowing continued contact with her daughter even when contact is causing problems) and possibly with compassion for you.
The reality of your situation is the legal options at this point are few:
(1) Mend your fences with the POAs. Bury your personal contempt and treat the POAs with respect and courtesy. Stop fighting against their authority. You may have some influence if you are a pleasant and reasonable person. Accept your mother is in NH and will not be leaving. Try to make her experience within the NH better. Send cards and small gifts of skin cremes or favorite foods. See if the NH has a commissary or a hair dresser and gift your mother with a weekly wash and set or some other small gift that reminds her of your love and affection. Visit her for a few days as often as you can.
(2) Lose all contact with your mother. No phone calls, letters, visits, or medical condition updates. In most states, not even any legal requirement to notify you of her death if there is no estate to settle. If the POA can show your phone calls to Mom telling her how badly her POA is treating her or your interference with the NH is causing problems, not even APS will intervene to help you maintain contact privileges.
(3) _If_ the POA is springing, prove your mother is competent and the POA should not be empowered to make decisions for her. Almost impossible without access to the POA document and the medical assessments which the POA controls. Your mother can engage an attorney to pursue this if she has the funds, which is doubtful considering she is on Medicaid.
(4) Obtain guardianship to override the POA. Expensive and nearly impossible since you need to prove the POA document is fraudulent or the POA's actions impair your mother's health or safety. Denying quality of live trips outside a safe facility does not meet the standard.
You might ask the attorney if a person recovers from a medical condition such as a stroke if the POA then becomes inactive again. I think it does.
good luck.
Being incontinent makes for another factor to consider when taking her out for several hours.
I appreciate you wanting your mother out on the town for her own good and joy, but (no excuses, honestly) sometimes taking out our elders is utterly exhausting for the caregiver.
Once she is there, can she transfer from a WC to the seat in the theater? I don’t think they will allow wheelchairs in the aisles of the theater due to a possible escape route. However if she can physically do it, then why not? She should be allowed to if her safety is assured and she won’t be alone. Her safety needs to assured - theaters are dark and difficult to navigate in, and the floors are a mess with sticky soda spills. Also the CG would need to know evacuation procedures just in case something happens, like a fire.
Have you explained to the POA that you are willing to work and pay for her to be able to go to movies and provide the transportation and supervision she needs?
Sounds like there is some discord amongst your mothers POA and you. I sense bitterness there. I hope you can work out your differences.
But it if your mom’s health care team feels mom is stable enough to go to the movies provided her safety is assured, then why not?
My mother loved movies. She watched TCM, AMC all the time. Last movie we took her to was “Titanic” & she loved it.
I hope all the logistics work out for you.
Any chance of repairing your relationship with mom’s POA?
You must understand we are getting your version here, and the "Redneck" has no defense, except that we do know that the "redneck" was chosen by Mom. You say Mom has no wheelchair and Mom has no dementia. If Mom has no dementia, needs no help navigating, isn't incontinent, and all the things you say above I not sit wondering why Mom has a POA and is in a NH at all.
You have done nothing but attack the people trying to help your mother with accusations and namecalling; now you are angry at us and attacking us.
I understand you are in pain, so I won't be attacking back, and I did the writing in caps thing to show you only what it is. It can be, with one word, a way to stress something, but when it is sentences it is a verbal rant meant to connote extreme anger.
I am sorry. I know you are stressed. And some disagreements on care have clearly led to family trauma here.
I will leave you with one thing only. This family drama is hurting your Mom a whole lot more than not seeing a movie. You may disagree; I am certain you do. You will likely tell us Mom has no idea there is any trauma-drama. I assure you she IS aware. This is just purely sad. But there will never be any convincing you that the world does not turn on the latest Stephen King movie. There are many things I cannot do now. I would kill to get on a plane and go back to Europe to visit. I can't. That's life. I must accept the good luck I have to be able to do the things remaining that I CAN do, while I can do them. We do not always get our way in life.
I am wishing you healing for your heart and soul, because you are clearly angry and in pain. Anger eats us away from the inside out. It is much more destructive to us than it is to any perceived enemy, backwoods type or otherwise.