Hi all - My mother is 86, has been in assisted living for a year+ now, and has increasingly been losing mobility. Her knees are bad and she's fallen several times there. She's been in rehab once and is going back today, but I know this will be a temporary fix at best, if at all. I am worried the assisted living facility will eventually say they can't care for her any longer and I'll need to move her to a nursing home. She's pretty sharp still mentally so this will be devastating for her. I'm unclear on what the defined levels of care are there - her agreement does not define them. I know she's currently rated at a level 3 out of 4.
I'd appreciate any advice from those of you who have been down this same path.
Such a tough time when they start failing, it can happen so quickly at her age. Be prepared for anything at this point.
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Are you attending PT with her? It's not a bad idea; you can get a list of the exercises assigned to her and do them with her when you visit, then have a celebration afterward so she looks forward to working out. You can also play her favorite CDs, or other music, to make the workout seem more enjoyable.
They said they'd take her in their Memory Care building due to her compromised mental condition AND her compromised mobility. I had a choice of either agreeing to that arrangement or leaving her at the SNF she'd been at for rehab.
OR..........finding a different ALF that would accept her as is, like Morning Star which is a franchise. They are noted for taking 'more difficult' residents who really belong in a SNF but want to stay in an ALF. Of course, they will charge SNF prices at their 'gold care plan' or some such thing, which is astronomical. But..........Morning Star would have taken her. If you have a Morning Star in your area, check them out.
In the meanwhile, talk to the ED and the nurse in charge of your mom's ALF. Ask them what their criteria is for keeping your mom vs. asking her to leave. Tell them you do NOT want ANY surprises nor to be blindsided one day. You want to know so you can have your ducks lined up to get her placed elsewhere if they're thinking of asking her to leave. This has been one of my BIGGEST worries since placing my folks in AL in 2014. When my father became too much to handle, I KNEW they were going to kick him out and they wanted to..........but then he got a hospice evaluation and was accepted, so they agreed to keep him. That's something to know, too.........to keep in mind for future reference. Generally, if an elder is accepted in hospice care, the ALF will NOT kick them out but will allow them to stay until they pass away. Which was a godsend for me b/c my mother and he had been married for 68 years and I did not want to separate them at the 11th hour.
So.........if you don't have a Morning Star ALF nearby, and the current ALF wants to ask your mom to leave, call an agency that specializes in placements for elders. Tell them the situation and that you're looking for another ALF that will take your mom WITH her current conditions as follows; ABCDEF........etc. Let THEM do the homework and find her another ALF. That's your best bet. Or you can even ask an advisor here on the AgingCare website.......I'm not sure exactly what they handle, but I DO know they have a list of ALFs and places they deal with.
*I've had Physical & Occupational Therapy ordered for my mother at least 15x over the past few years, including a daily stint of it in Rehab. It did her little to no good; for some people it works wonders, but for others, they're too far gone with their mobility issues to get any real benefit from PT. Not to mention, she hated it and the level of complaining she did about getting it every day, and the incredible excuses she'd invent as to why she 'couldn't' do PT that day made the whole endeavor a giant waste of time & $$$.
GOOD LUCK!
I’m so sorry that she has fallen so often. It’s so hard to see a person suffer.
Best wishes to you and your mom.