Hi, I'm new here. I just moved my 74 year old mother across the country and into my house to live with my husband and I. Things are not going well to say the least.
I moved her in because she is requiring full-time care, which she wasn't getting from her husband. She has fallen several times and has suffered traumatic brain injuries, broken bones, fractures in her neck/back, lacerations to her head and ears, destroyed her knees, etc. She also has arthritis, fibromyalgia and diminished cognitive function (from the brain injuries). I knew she had been seeing pain specialists and receiving meds to treat her horrible pain for many years (20+) and felt confidant they were doing right by her. After the last time she had a serious fall (in ICU 5 days), her two pain doctors said they were stopping some of her meds because they were concerned and I agreed.
After having her here one week, I realized she is still taking a dangerous concoction of meds and it is the reason behind all her falls and injuries. My heart is crushed. The main one causing the most concern is Ambien. When her two doctors refuse to refill them, she went to her GP and got a prescription, which I did not know about. Besides the prescriptions, she is also taking lots of OTC meds like Benadryl. Honestly, I'm surprised she hasn't overdosed yet. What doesn't surprise me is that she's been doing it and hiding it from me. She is a recovered alcoholic and has had various addiction problems years.
Three weeks ago, I took her to meet her new GP and he refused to give her refills of those meds, thankfully. However, my mom wasn't so thankful. She started crying and threw a horrible fit embarrassing me and herself. Since then, I've been talking to her about how dangerous it is and she needs to try alternative therapies. She just won't listen to me and says nothing works but the pills and that she can't live without them.
She's been falling several times a week between 2-3am because after she takes her Ambien, she's zombie walking and tripping, passing out going to the bathroom and crashing to the floor, etc. Every morning after a fall, I ask her what she was doing when she fell. She'll deny it and say I did not fall! So, I started taking photos of her on the floor so she could see what she is doing to herself. I confronted her once again this morning and asked her how much Ambien she has left. She said two months. My husband and I told her we love her, but she needs to start cutting down and stop taking it. That she is hurting us and we can't sleep at night. I even told her if I had known she was doing this, I would have never brought her into our home.
My husband and I just married two years ago. Earlier this year, my husband lost his job due to Covid and is having a difficult time finding work. We have put our marriage and finances on the line for her. We are at our wits end and we just started on our caregiving journey. I'm wondering now how we are going to survive this situation.
My advice would be to move her home ASAP. She is not going to change.
Please go to Al-Anon. You will learn very quickly there that you do not change others; your only choices are for your own life.
Tell your mother that you are very sorry, but that it is not working for you or for your husband to have her in your home.
Wishing you the very best. I am sorry you made these choices, but you did, and only you can address them. Your obligation is to your own life, and to your husband. I am so sorry about the cross country trip, but you did it once and can do it again.
If your Mother's husband doesn't wish to have her back then CWillie's idea of Nursing Home (I doubt Assisted Living would be affordable as you say you are using your money for her, and please stop that; you will need it for yourself) is a good one.
YOUR MOTHER IS AN ADDICT. and has been one for a very long time.
You can not help her. SHE has to make the decision to change.
Before this ruins your marriage, your life send her back to her husband, she is his responsibility to some degree.
If you can get mom to agree to go into a facility to detox and rehab that might be an option. But are you up for "babysitting" her for the rest of her life? And what if she relapses again? Do it all over? The definition of insanity is doing the same thing over and over expecting a different result...
My brother was an addict. He died in 2013 due to complications of his drug usage.
I had no choice as a small child but to live with him. As an adult he asked to live at my home. I was already housing my mom but even if I hadn’t been a caregiver to mom I would have told him no.
I told him that he couldn’t live with me. I didn’t have a choice as a child but I certainly did as an adult.
I looked at my little girl that was at home, my other daughter was grown and on her own already. I kept thinking about my daughter and knew that I would never place her in the same situation that I was in as a child.
Plus, I did not want to relive the horror of living with an addict again. I feel your pain. I truly do.
Addicts can’t receive help from others unless they welcome it. Some hit bottom and turn their lives around. Some never do.
Some clean up their act and are doing well, then relapse as in the case of my brother. He even owned a lucrative business at one point. Sadly, he relapsed. An addict has a life long struggle.
An addict’s challenges are very difficult. It isn’t uncommon to relapse and addiction specialists say not to focus on relapses but to keep encouraging them to move forward. I feel for them deeply but we cannot allow their problems to become ours either.
My most important advice is, rehab! They are fighting a disease. Addiction is a disease that needs treatment just like any other disease.
Some people would like to punish someone for an addiction. I am not in that camp. Offer treatment without judgment.
If you are able, please show encouragement and support to her to succeed. Many have succeeded, others as much as they try fail miserably. No one truly wants to be an addict. They have underlying issues.
Sometimes the pain is so deep for the families of addicts that we have to walk away. I had to step away from time to time. I was with my brother at his time of death. I forgave him. He led an interesting life. He was a combination of a loving person who could be a terrific guy at times to a selfish, crazy person that was suffering horribly. It’s complicated for sure.
My lowest point was after helping him in the hospital after a horrific accident. He asked me to go buy heroin for him. I stepped out into the hallway and broke down. A nurse saw me as she was walking by. She asked me to tell her what was wrong. It was hard to tell her but I managed to speak to her. She told me that they were used to treating addicts and they would address it and for me to seek help for myself. She was so compassionate. I will never forget her kindness.
Best wishes to you and your family.
I am glad you went to Al-Anon, and suggest you keep going.
Remember, for an addict to withdraw abruptly after long use is LIFE THREATENING IN ITSELF.
Thank goodness the Doctors are starting to see her abuse... if she’s been in recovery before, then hopefully you as her family can appreciate that addiction is a disease (like a cancer). Certainly love (sometimes tough love), balanced with compassion and support are both needed. Frustration and anger adds fuel to the fiery chaos. As her family and caregivers, I hope you would prefer to be or become part of the solution, not part of the problem. Then you can interact in ways that invite her to join you in finding solution.
Take her and all her drugs back to the doctor and tell him what's going on. Then you start the med management. If she doesn't agree, tell her other option is to go to a facility where they will definitely control what she gets and when she gets it. She may require hospitaization to get off some of the drugs. The dr can evaluate how to wean off properly.
It all culminated in a week long stay on the psych ward at the hospital, and a recommendation to put her in a nursing home. We couldn't swing that financially, and with my background working in a substance abuse treatment center, I had a hunch the problem was more benzos than dementia.
We took control of her meds, put them in a lockbox, and dispense them ourselves.
We got her cleaned up (and please consult with a pharmacist about tapering off all the psych meds), she is on antidepressants and a low dose of Seroquel, and while she's still a spiteful, bitter, hateful, manipulative person (sorry if that sounds harsh, but she is), she is physically much healthier, sleeping normally for her (she gets her schedule out of whack and rats around all night sometimes), and at least we're only dealing with her, not all her imaginary friends as well.
I would make sure she signs a release (or better yet, a medical POA) for you to consult with her doctor -- one you trust, not a pill miller who thinks old people don't matter -- and make an appointment for YOURSELF, to go without her. Outline everything she's been taking, all her addict behaviors, and develop a Tx plan. It's going to be h*ll, and she may need hospital detox, but be totally honest with the doctor and things may improve.
I will say that my mom no longer drives so she is not able to go to a new doctor or run to the store to get new meds so my situation might be more manageable.
I am very sorry to hear that her husband wasn't forthcoming in telling you what was going on. He was probably overwhelmed but his intervention and revelation to you earlier could have really helped nip the problem and get her on a better path towards health. (I'm not involved so obviously take my thoughts with a grain of salt.)
I wish you harmony and happiness in your new marriage and know you will make the right decisions for your mom.
No one and nothing can make her stop, everyone including the docs are afraid to stand up to her bc she’s so mean and threatens to sue if they don’t give her the meds.
Seniors are nothing if not manipulative, they lost the influence they once had in the world so they manage to get it another way. I can’t imagine how much harder it would be with pain meds. I’m sure she figures she’s old anyway why stop and suffer bc other folks don’t like it.
She might be falling bc of the new environment too. I’m 55 and take Ambien and pain meds bc of long term heath issues as I’m disability retired. I’m tapering off these meds bc Im clumsy with no meds on a good day and don’t want to add old age to my mix.
If she’s pushing 80 and never realized this she’s not going to change for you, don’t put your future in her hands love.
She is hooked on pain pills. Her Dr should be able to get her records and chznge up her meds to gradually get her to taking less. But,, no one likes pain so they need to do something about it and if mexs is all there is then mexs is what it'll have to be.
Whatever meds that make her fall, that she takes at night, she'll either have to stop taking them or wear Depends, an Adult Pull Up Diaper at night, so she won't have to get out of bed to pee.
Or, you might put a bed side commode next to her bed for night time use.
But, to not destroy your marriage, you may have to move your mom back in with her husband if she can't or won't agree with the new rules or meds.
Juse talk to your mom and see what she wants to do as it's her life.
Id she moves back with her husband, you can have Nest Cameras installed at her house so you can check on her 24 7 and time you want. She can also wear a Furst Alert in case she Falls unless her husband is alert enough to help.
She's been on pain meds for so long, she probably is having to take more ti do what less use to do to control the pain.
Talk to mom
Talk to Dr
This is only the beginning of a Long Long and difficult Road and to tell you the truth, being a newly wed is hard enough than letting your mom or anyone else to move in with you.
Maybe you can get her meds changed and then have her move back in with her husband. She might also prefer this.
Please prepare a list of all her medications and their schedule. Please get the powers of attorney for medical and financial drawn up through a family practice lawyer so you can mange her care. When you have those powers secured, work out arrangements that her primary care doctor manages her medical problems and that ONE - and only 1 - doctor manages her pain. Your mom will not like that you are taking over her medications, but in time she should have a healthier, less pain-filled life.
insurance coverage I know that fibromyalgia is a painful disease as I have it too
My recommendation for you would be to have a talk with her family do ctor or in
ternist and review all the medications and when she is taking them and have her in the room with you always involve her as that is probably most of her anger Some pills may be prescribed in smaller milligrams and ambien could be replaced
with a milder pill and then maybe you can decrease the total amount
Good luck and stay strong but always take care of yourself first
I looked on the internet and found all the side effects of the pills she was on and most of them were worse that what she taking them for.
I quickly got her off of most of them and she recovered.
Being a natural path I can find herbs to replace most of her meds. Her doctor is great and we talk about it before we take off of any meds.
During the first of COVID, I was going bonkers with anxiety, I had just barely finished chemo for NHL and I got shingles. Just a hot mess all around.
My psych doc OKed a ONE time 'early refill' of my clonazepam, and it was only 2 days early. Put me on Seroquel for sleep, which has been a godsend....but as far as chronic pain--the chemo made my arthritis 10xs worse, and my PCP would not increase the amt of pain meds. I had to bite the bullet, so to speak and simply count pills and never, ever take extra.
It was a brutal 6 weeks, but I got through it. Please be sensitive to your mom. Being labeled a 'drug addict' when you are sick, in pain and miserable and feeling judged on top of that--well, what I NEEDED what understanding and compassion. In fact my psych doc said that total withdrawal of benzos can cause seizures and death.
It's easy to point that judgmental finer at people. I'm just saying--be kind in your approach to mom. Life is hard. And chronic pain is awful.
BTW, I never fell down or banged my head or any of those things. I am very aware of what I take, what I need to feel like I can function. Will I ever be totally OFF all these meds? I doubt it, but I hope so.
Mostly I want to live a full, pain free life. So far, judicious use of pharmaceuticals has kept me functioning.
Brittany
I looked it up, I know that's the right term, but it sounds so funny!