Mom has been in hospice about a month...have not had any communication from hospice unless I initiate. I am there almost every day and have only seen a volunteer chaplain once...I was told nurses would check on her twice a week, social worker every week, etc. When I signed her up, I agreed to their offered complimentary therapies such as music therapy, pet therapy, massage , etc and have yet to see that happen. ...unless they come at night when I leave. AL is not providing activities either unless I transport mom to bingo, etc. Granted, she is getting very weak and may not want to participate , but it would be nice to know if they are at least trying. Every day I find her depressed and staring out her window. If you have a loved one on hospice , how much communication have you had with hospice agency ?
As for them calling you, what do you want them to call you about? At the very least they should be giving you an update on Mom's condition after every visit.
I'm a big advocate for putting your wants/needs into writing so it's really clear what your expectations are. Put it all down, send it to the hospice caseworker in an email and ask for some clarification on your expectations and what they're providing.
If they still fail to step up, fire them and hire someone else.
Some Hospice have Apps that can be used to communicate with the Team. They are secure. General Texting is usually not secure.
But you are entitled to answers to your questions. If you are not happy talk to the Supervisor and if that does not work you can contact another Hospice.
This is such a difficult time for you.
Sending many hugs your way. Please keep us updated.
The AL facility does not sound that great either. Can you speak to a director? Ultimately it is up to the resident to partake in activities but it would be nice if staff could make suggestions to residents. It may be that Covid affected the level of activities but it should start to open up. You really need to speak to a director to get better answers.
If your mother is receiving hospice is she still able to attend activities? Please reach out to get better assistance.
You are a wonderful advocate for your mom.
I wouldn’t hesitate to ask for clergy to visit again. Yes, they are busy but they should respond to you.
My mom’s hospice was extremely responsive to our concerns and my mother’s needs.
Best of luck in getting this situation resolved soon.
It’s really hard waiting for a cancer diagnosis. My husband was diagnosed with prostate cancer. He was fortunate to catch it early. He had the choice of surgery or radiation. He chose radiation and is in remission now.
Will be thinking of you during this difficult time. Sending many hugs your way.
It sounds like you don't live with your mother but stop in to see her every day. Does she mention any visits from Hospice or is she unable to remember things like that? My MIL lived with us while on hospice so we were always there when they came and we definitely spoke up when we had questions. I'm not sure how much communication they would have initiated with us if we weren't right there. If they are fulfilling the basics, that may be all you can expect.
another aL any now. Im
documenting every time I have to
reach out to get basic info. Tomorrow will be requesting ,
in writing, a joint meeting with AL Mgr, DON for
facility and Director of Hospice.
Its hard enough to deal with
loved ones imminent passing
without people who claim to care not doing their jobs.😡
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