I’m having trouble understanding why my mother never expresses any gratitude or a thank you for taking care of her daily. She asks me why am I mad, I tell her I’m not mad I’m tired. I don’t like being a caregiver, I need help putting her to bed at night, getting her up in the morning, making breakfast, lunch, dinner. I’m tired and getting very depressed.
My mother lives in Memory Care Assisted Living b/c I could never care for her in my home; I just couldn't and wouldn't. Maybe now is the time for you to either bring in hired help or look into placement for your mother. There comes a time when a person has to Cry Uncle, and this may be your time. Burn out is no joke; please don't become a statistic where your mother outlives YOU b/c of all the stress you're under! God forbid.
Wishing you the best of luck looking after YOURSELF now! You deserve to.
Sounds more like your mother is the "glass is empty AND dirty and you left it for me to clean up!"
Maybe it’s personality (for instance, was your mother always a taker?), or maybe it’s the dementia. I’m not sure.
I am more concerned that you are tired and don't like being a caregiver. It isn't as if you have to love this role, but it should not be pulling you down. I suspect you do all the work and do not get enough "time off." Every person needs enough "time off": to get 7-9 hours of good sleep every day, to eat 3 healthy meals at a reasonable pace, to take care of daily hygiene and own healthcare needs, to socialize with friends/family doing things they enjoy. Please ask family members, friends, members of your faith community, and paid help (sitters and home health aides) to help take some of the weight off your shoulders - at least weekly, but daily would be best. It might also be a good idea to research adult day programs and respite options near where you live.
If this is the way she was, it isn't likely to change now. If she was the thankful type before, maybe she's just beyond all that now. You list her age as 96 and she has a host of medical issues. She may not be very thankful at this point in life!
Could you one time just ask her if she's thankful you are here to care for her? Maybe she doesn't realize how much it takes out of us to do all this, esp since YOU are likely a senior now too, with your own physical issues. If she can't thank you, then just let it go. YOU know what you do for her, so you can pat yourself on the back, when you aren't too tired to reach back there! If she does thank you, maybe it will bring out a little more. If she's asking why you're mad, it may get in the way of thanking you, thinking you are angry with her.
In your profile you mention this:
"I have to take her to the grocery store and it takes 1 to 2 hours because she can barely walk and won’t let me buy groceries for her."
Where is the "let" in this? Why not just do it? At least get the usual items, when she's not with you. Before going, check items and make a smaller list of things to get, because "we have these already." If she can't be left alone at home, then for that reason AND to take some of the onus off of you, perhaps you could hire some help.
Additionally, although she may be slow, why do you have to "make" breakfast and lunch? Can she not eat simple items for those meals, things that she can manage, such as hot/cold cereal, toast, sandwich and/or soup, pre-made salad, cottage cheese with fruit, etc?
Time saving: In order to save some time in food prep and cleanup, I make a full meal, as if for the family, and then freeze it in single meal portions (obviously not everything can be done this way, but it saves me a lot of time AND when I'm not up to preparing something, I can pop these in the microwave. It doesn't take more time, really, to prepare and clean up for this, but it means doing it once instead of multiple times. Maybe use some for lunches too, in a pinch?
* She expects you to do what you do.
* She doesn't possess the emotional response to feel grateful/gratitude or appreciation so she cannot express a feeling she doesn't have.
* She may have narcissistic tendencies - its all about 'me, me, me'
* It might help if you talk to her more directly when she asks why you are 'mad' - clearly you are expressing frustration, disappointment, lack of feeling appreciated, and I suspect - as you say, tired and depressed.
* It may (or may not) help her to know that by saying "thank you, I appreciate what you do for me," would make a world of difference to you.
* I believe most people do not like being a caregiver, especially when thrust into the job without much or any choice in the matter, one's life likely totally changes, and some of the duties are difficult and unpleasant. On top of this, there is no training on how to support someone with their physical needs (changing disposal underwear, cleaning sheets for instance) nor any knowledge or experience in interacting with a person who has dementia.
- I would suspect most people 'do this work' because it is a family member or a parent. Some seem to feel honored or responsible without questioning their circumstances; most seem to be overwhelmed and tired, and not setting personal boundaries/limits of what one can and cannot do.
* If I were you, I would tell your mother how you feel. It is an exercise for you to assert yourself and what you would like from her (a thank you). It will be valuable for you to speak up regardless of how she responds, although be prepared for any response.
* This work is very difficult. When it also involves a personal relationship, it adds more stress or emotional/psychological expended energy (draining perhaps).
* Lastly, I would ask you to really look at how you do feel inside. You might not identify as feeling 'mad' although you might feel angry - at all you 'have to do' / are doing.
Gena / Touch Matters
My Husband was pretty much non verbal he made noises but rarely talked and never a conversation for the last 7 or 8 years of his life. He loved going to Costco and Sam’s. I liked taking him there because he could walk around easily with the taller carts and when he had to start using a walker the aisles were wide enough that he would not get tripped up. Well he loved the samples they used to give out. And it blew my mind that when he would get a sample he would always say “thank you”.
I could make his favorite meal, would shower him, change him, put him to bed, get him up and NEVER a thank you.
You do get burned out. You do get frustrated. You do get angry at the situation. I do hope you have the help you need. It does make things easier. Even a few hours away can help.
Contact your area agency on aging and see what services mom might qualify for.
You need assistance. Mom has to pay for the assistance. Have them in twice a day if mom can afford it - otherwise 2 or 3 times a week to assist you in the morning and/or evenings. Their duties could include meal prep as well as looking to your moms care needs. If that is not helpful, maybe its time for mom to be placed in SNC.
While they are there take time for yourself to run errands or just take a break from mom.
Prayers that you are blessed with peace.
Every evening, when he has been fed and bathed and is safely ensconced in front of a screen (TV or Computer), I go take a walk. Mostly I shoot for a mile or two. I listen to music while I walk and by the time I get back home, I feel relaxed and happy. It may only be 1/2 hour or so, but it is a valuable part of my day.
Both are pretty self-centered at their respective ages and utterly clueless that the other is tired and would like a little recognition.
Consider yourselves even at this point.
hope you’re well :).
i do understand what you mean, but i disagree.
we can just agree to disagree :).
my opinion:
parents chose to have children. it’s not correct to think when a baby is born, “welcome to life! and when i’m elderly, you’ll take care of me! your future has already been decided! yipee!”
no.
parents chose to have children. when a man/woman get together, they know a child might happen. and they’ll have to care of the child.
not all children are brats.
some children are very polite, say “thanks” to their parents all the time, while growing up.
some elderly parents, however, are brats. some are even sadistic:
intentionally not saying “thanks” to make you angry. they know very well they should say thanks. they want you to be mad, angry, frustrated, tired, depressed…
playing dumb, “why are you angry?”
normal would be:
“hey i can see you’re getting very unhappy. i want you to live your life. you’ve done so much for me. i don’t know who else can help me, but you’ve done enough. i want you to blossom, live your life.”
hugs.
I understand your situation. Don't take it to heart and always remember one thing "Take care of yourself so you have space to care for others". I hope everything turns out ok for you.
I feel (from personal experience) that when we are stretched thin due to care giving, our minds become vulnerable to seemingly small things (for example, she did not eat something that I made for her specially taking into account her diet restrictions) take on greater significance. I feel only setting boundaries, and getting help will help restore a balanced perspective.
Ingrates
Before your mother is put into the ingrate category, let me ask a question.
Is she thankful when someone other than yourself does anything for her? Can she show gratitude to other people?
If the answer is 'yes' then on top of being an entitled ingrate your mother also has no respect for you.
Either way, stop being her caregiver. You don't want to do it and no one should be forced to. Hire paid help.
and i’m in the same boat.
in my case, the answer to your question is “yes”.
courage to us all. burntcaregiver, flowerpots, all of us!!
bundle
Best response after brining her pizza -- her favorite food -- for dinner to her bedroom [every meal was eaten in bed] was "I cannot eat this, it was cooked in your dirty oven." Nothing was every done right in her mind. Her "good daughter" she would tell me "would do it better." LOL, there is no other daughter, I am an only child.
About a year ago, she had a bad fall and was in the hospital for two weeks. Thereafter, she went to rehab and then thankfully that transitioned into a permanent long term care stay at the same facility which is an awesome high quality facility. I do not expect any gratitude or understanding from her at this point. With lots of help from my husband, my adult kids and a therapist I am starting to get over this -- it will take years. My mom is a narcissist. Add in dementia, immobility and other medical/mental conditions (diabetes, arthritis, COPD, clinical depression, OCD) it was a total "sh__show."
My advice is get outside help ASAP OR really consider a permanent nursing home or assistive living/AL placement (if there are funds for the later). Get POA and other legal docs in order if you do not have them. Talk with an eldercare attorney so these docs can be executed as well as to get advice on how to prepare to spend down for Medicaid long term care coverage (assuming there are not sufficient funds to cover AL which is largely only private pay). Your local "area agency on aging" can also be helpful to navigate things (adult day care, respite care for you, etc.). If your mom ends up at the hospital at some point for any inpatient reason, the social workers at the hospital can be helpful about "best placements" post discharge and argue for a rehab discharge which Medicare can pay for, for at least some period of time. If that rehab facility is also a Medicaid-qualified long term care facility, a transition right there to a permanent stay may be possible. Carefully review the rehab/nursing facility contract, and DO NOT check the box that you'll take her home upon discharge from their facility AND DO NOT check the box that you agree to be financially responsible. Again, an attorney can help you execute that contract so that you are: 1) not financially responsible yourself and 2) that you do NOT have to guarantee you'll take them back and to review other aspects of that contract doc. If you are considering AL (if you or she has the funds for that as it is private pay -- that is about $14K a month where we live for those needing near nursing home level of care) also carefully review that contact. Some private pay AL facilities when the money runs out, discharge them -- then where does your LO go????
At the end of the day, you need to help get your mom the care she needs but THAT DOESN'T MEAN that that care has to come directly from you. Setting boundaries is very hard, but you have to protect yourself so that you can find a pathway forward to both live your life while assuring you mom is cared for most likely by others. Few among us can handle 24/7 care sans outside help. And when that LO is nasty, lacks gratitude, and/or has impossible behaviors (often part of dementia); sustaining one-on-one care w/o help will lead to burnout, your own depression, and resentment. You can be a good daughter while letting others care for your mom, even if that is a permanent placement somewhere.
Good luck. This is a very hard journey.
I'm sure your mom is thankful for all you do and that she is home and nor in a Nursing Home. She may not even think about saying thank you.
If mom has the money then you need to use it to hire help.
If there us no money to hire help then you need to discuss with mom about putting her in a home.
That's my Opinion You have to find some way to put yourself 1st because I'm searching because I refuse to go down God says honor your mother and father You can't stop searching for a way to find help for yourself I'm going to get help for myself
Your story sounds just like me my mom was so into her sons
I say those same words that you're speaking right now
More important is that you are burning out from care taking. It's time to stop "doing it all" and get some respite. Can you solicit other family members to give you a break every week? Can you use your mom's resources to hire some part-time care - even if it's 2-3 hours a day - once or twice a week? I can assure you, you will be less depressed and tired. One thing I will stress is that you insist on outside care even if your mother objects - which she will. She will get used to it and you will get the self-care you sorely lack. Please think about it.
If you have siblings it is time for them to pitch in either helping take care of her or helping pack her bags for her new home, a seniors home.
Do not get depressed. Rather take it to Jesus. He has been there done that. He will calm you down, restore your energy and bless you with peace. He may also suggest you move on down the road and let momma take care of herself.
Like father like son. Her constant "I'm sorrys" were because she lived under such condemnation from her husband, she was never good enough, never did anything right, so she lived a life of constant apology. I recognized that when she was with us in 2010 and determined that "I'm sorry" would not be said to my husband unless there was actually a reason to apologize. My husband is way too much like his father, maybe even worse. He does eek out an occasional "Thank you," but it is rare.
If your father ignored you and your family for the last 20 years, you owe him nothing.
He chose his wife over you his daughter and his family.
Your family owes him nothing.
You're a better person than he is for taking care of him for the last three years.
Not it's time to put his ungrateful abandoning a$$ in a nursing home and be done with it.