My mother has severe dementia. We have the same routine every night. I will take her to the bathroom, get her ready for bed and she takes her meds. Every night when I go in her room to tell her that I need to help her up so I can help her to the bathroom, she gives me a mean look and just stares at me. She doesn't like to stand and walk because it hurts her back and knees. Once I get her up she's pretty good at walking, just slow. However, getting her to cooperate is horrible. She fights and struggles against the chair, refusing to help me. She pushes back with her feet and hits and kicks. She's very strong. I have to get her into the bathroom so she doesn't have an accident. What can I do? I get extremely anxiety filled every evening when I know that the battle is soon to begin. I try to be as nice and comforting as possible. She's fairly cooperative in the mornings and pleasant during the day. It's the evenings that are so horrible. Is there a way to overcome this? Is there something I could do different? She only uses the bathroom twice a day now because I can't get her to go. She says she doesn't have to when I ask. I know that she has to go in the evening. We barely get her on the toilet and she's going. I will take and suggestions. I am at my wits end and a stressed out wreck over this.
Best of luck to you.
I know that you already likely know that you may be looking at a time when this isn't doable by one person in-home, so I will surely spare you that whole talk until you come to us wanting to discuss it.
I surely do wish you the best of luck but the only recommend I have for you, being you are pretty much a pro at this, is to discuss with the Doc. I hope you'll update us.
Yes, ask the Dr for something to calm her.
Agree regarding meds.
She is no longer able to bring her broken mind to a place of cooperation and acceptance because she isn't able to figure out how to communicate her feelings and needs, so it is merciful to help her with this. It may not be a perfect solution and it may require trying several different drugs at different dosages before you find a good fit.
You will need to readjust your expectations and pick your battles so you don't burn out.
I also agree to maybe tour some facilities and figure out the financing of such so that you never have to do it in a crisis.
If you're only taking her to the bathroom twice a day, I'm sure you're already having to change her Depends in-between those visits, so what's a few more times if it saves you and her the aggravation?
Mom wore Depends at night. I did put a bedside commode next to her.
DO NOT worry about addiction or what 'the neighbors might think--we're drugging mom to keep her manageable'.
Do what you HAVE to to get her to be cooperative. My MIL takes Ativan in the day and Xanax at bedtime. (Why the combo, IDK). Without the Xanax at night, she is completely incapable of cooperating with her kids who are her CG's.
I joke with DH as he tries to make her 'understand' b/c he can't. I said "Give a Xanax to Mom and you take one too". I'm joking, of course, but the point is, they BOTH get agitated and upset when she's not cooperative. And once she gets to raging--well, forget it, she is impossible.
She does toilet herself, but wears Depends all day. They are pretty well soaked, but she can change herself.
There's no way in the world she would put up with a commode in her bedroom. I bet a lot of seniors feel that way. (I would.)
At night, I also use a bedside commode so she doesn't have to walk to the bathroom. Easier for both of us. I use commode liners with pads that I buy on Amazon or Walmart which make cleanup a breeze. Here's a link:
https://www.amazon.com/OUMEE-Commode-Absorbent-Portable-Disposable/dp/B0BQWLVGBW/ref=sr_1_1_sspa?crid=36LY34X7OEQKI&keywords=commode+liners+and+pads&qid=1705072160&sprefix=commode+liners+and+pa%2Caps%2C590&sr=8-1-spons&sp_csd=d2lkZ2V0TmFtZT1zcF9hdGY&psc=1
hope this helps!
If you get injured 'helping her' through these evening ordeals, who will be there for her? - and you? If you keep going, you will burn out and not be able to care for her - or yourself. You are at your wits end so it is time to stop and find an/other way. Even if it means placing her in a facility. And see below.
Medication?
Get a strong/er caregiver in at night to do this.
Don't argue.
There is nothing you could do different wherein she will be 'nice' and agreeable to what you are doing. She hurts physically. Mentally/psychologically she may believe that you are (wanting to) hurting her so she is rebelling. And, she may 'just' be so confused that she is angry and/or in a self-protection mood.
The one behavior you do not do is 'push against' / argue.
This makes everything worse.
Get a caregiver in there asap for the evening needs, including showers.
Do not ask. She cannot make these decisions. Introduce her to your NEW FRIEND.
Gena / Touch Matters
I will be speaking with his Dr on adjusting meds. at next appt. He takes Sertraline and Bupropion (antidepressants), Mematine (for Alz) Rispiradone (antipsychotic) and wears the Rivastigmine patch (also for Alz). He has Alzheimer’s and was diagnosed almost 4 yrs ago.
I’ve always heard the main caregivers are the ones who take the brunt. So far, it is the case with me. He is cooperative with anyone/everyone else. Of course that could change.
Speak to Dr first to see about some meds. Also look into Hospice help. It’s not just end of life…there are people who’ve been on hospice for years. Medicare usually covers Hospice. They have nurses who come and check vitals and aides that help with showers. Between hospice help and meds, that should give you both some relief.
Disposable bed pads are also a good option, you can roll her on her side to place and remove them.
Or can you place a bedside commode close to the bed, so it's just a matter of helping her stand and pivot?
Can you hire an aide to come in and help with getting her up and to the toilet?
From what you describe, I don't know that medication would be the answer.
If her mood is pleasant except when she needs to get up, it must really be hurting her. And if she is medicated, you run the risk of her being too drowsy to be able to stand and walk. You both could be injured!
I would try and get help - either from professional aides, or a hoyer lift, and ask if she would rather use an incontinence product so she doesn't have to get up and walk to the toilet.
one caregiver uses a urinal at the bedside and if he’s already wet himself, she tears the sides of his depends to remove the wet diaper( it tears off easily) then she slips another one on him. Serves several purposes: doesn’t have to get out of bed, his diaper isn’t full at night so he can sleep longer and avoids any UTI from breeding). Not sure if you’ve tried any of the female urinals found on Amazon.
Finally, take care of yourself. Find a way to get away for a couple days. Have another family member give you that short respite. It’ll work wonders.