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Newtothis54, my Dad had Sundowner's and he would climb into his time-machine and transport back to the 1940's. He would call me from the senior facility and tell me he wouldn't be coming home that evening as the meeting ran long... thus he missed the last bus home... so he will stay at the hotel (which was his memory care room). For me, I just played along as I didn't want to frighten Dad. If he was content in that time-era so be it.
As for your Mom, one suggestion would be to get some "night lights" for her bedroom (I have them as a totally dark room can be unnerving) and tell her these special lights will scare away the monsters under the bed. If that works for children, hopefully it will work for your Mom. Worth a try.
My mother said the same thing!! She'd call me, before she forgot how to use the phone, to tell me she couldn't make it home that night. She was ling in Memory Care Assisted Living for 2 years by then, and AL for 5 years prior. She'd say she was staying at the "hotel" too. As things advanced, she'd tell me "her girls" were taking her to a "new hotel" every night, but what she couldn't figure out was how all her STUFF made it there too! Isn't it wild how their brains work in a similar fashion with dementia?
I administer 3-6mg of Melatonin. Works in just a few minutes to calm and present a different attitude on the part of upset or confused patient. Also useful is a modest dose of Inositol powder. Similar results.
Try keeping the room well-lit. You want to disguise the fact that it may be night time. And, the dementia can cause the person to "see" things in the dark shadows.
I agree with Daughter of 1930 - This must be very frightening for her. Talk to her doctor about medication for anxiety.
I tried a lot of different anti-anxiety meds for my husband before finding what worked. Be careful of some which are habit forming. Once the patient gets used to the drug, they will start to act out because they are craving the next dose. Especially if a dose is missed, or is late. What we finally settled on is Trazodone. A small dose is enough to relax him which helps him sleep, and it is non habit forming. I use it only at bedtime, unless he is particularly unsettled during the day.
My mother would hallucinate, paranoia until she received the right medication. Please see a doctor. Her sundowners dissolved with meds. She lived out her last years in memory care facility with a sound mind. She was there for 12 long years til Covid came, and you know the rest but it was time to go and be with the angels.
This is a very difficult thing. Remember you are not alone, even if you feel that way.
Toward the end of her life, my mom had some difficult difficulties with sundowning. She would see or hear. people in the house, cars trying to park in her bedroom, and children climbing on the walls were just a few of our adventures/crises. I had to develop a bag of tricks because I never knew what was going to work from time to time. Redirecting worked sometimes, but I often had to find new and unusual ways to redirect her. Showing her that things were not as she seemed was only occasionally effective. For example, I could turn on the light take her out of bed and show her that there were no cars. Sometimes it worked. Sometimes after the light went off, the cars came back. Sometimes it helped to have someone else come over to the house for a visit. But in the late evening that was often not possible.
Medication for anxiety did make the hallucinations less frightening for mom which made it easier for me.
Good luck! Know that you are doing a wonderful job! And never forget that you are not alone!
Can you move the bed to show her there is noting under the bed? If she goes to bed before you do you could check out her room while she is getting into bed and "declare it safe". If mom is a religious person you could give her an item that would make her feel safe. A Cross, a Rosery, a Picture. If she is not religious maybe a blanket or a doll that can comfort her.
Can you talk to her doctor about meds that will help with anxiety? It can't be comfortable for her being scared.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
As for your Mom, one suggestion would be to get some "night lights" for her bedroom (I have them as a totally dark room can be unnerving) and tell her these special lights will scare away the monsters under the bed. If that works for children, hopefully it will work for your Mom. Worth a try.
Also useful is a modest dose of Inositol powder. Similar results.
I agree with Daughter of 1930 - This must be very frightening for her.
Talk to her doctor about medication for anxiety.
I tried a lot of different anti-anxiety meds for my husband before finding what worked. Be careful of some which are habit forming. Once the patient gets used to the drug, they will start to act out because they are craving the next dose. Especially if a dose is missed, or is late.
What we finally settled on is Trazodone. A small dose is enough to relax him which helps him sleep, and it is non habit forming. I use it only at bedtime, unless he is particularly unsettled during the day.
Toward the end of her life, my mom had some difficult difficulties with sundowning. She would see or hear. people in the house, cars trying to park in her bedroom, and children climbing on the walls were just a few of our adventures/crises. I had to develop a bag of tricks because I never knew what was going to work from time to time. Redirecting worked sometimes, but I often had to find new and unusual ways to redirect her. Showing her that things were not as she seemed was only occasionally effective. For example, I could turn on the light take her out of bed and show her that there were no cars. Sometimes it worked. Sometimes after the light went off, the cars came back. Sometimes it helped to have someone else come over to the house for a visit. But in the late evening that was often not possible.
Medication for anxiety did make the hallucinations less frightening for mom which made it easier for me.
Good luck! Know that you are doing a wonderful job! And never forget that you are not alone!
https://www.agingcare.com/topics/19/sundowners-syndrome
I also recommend Teepa Snow videos on YouTube, and meds for anxiety.
If she goes to bed before you do you could check out her room while she is getting into bed and "declare it safe".
If mom is a religious person you could give her an item that would make her feel safe. A Cross, a Rosery, a Picture.
If she is not religious maybe a blanket or a doll that can comfort her.
Can you talk to her doctor about meds that will help with anxiety? It can't be comfortable for her being scared.
Try redirecting
Try ignoring, some see they are getting attention,
And read read read , all the information you can get about dementia
YouTube Teepa Snow, learn all you can, for the now and for what to expect in the future
You did the first step by asking for help.
Best of luck, any other questions, we are here.