I just realized yesterday that my father is laying one heck of a guilt trip on me. All this time, he's been telling me how unhappy he is, how he just wants to go home, the food is horrible, this place is horrible, you get the idea...
On my way up to his room yesterday, one of his CNAs got on the elevator with me and began telling me how great he's doing - participating in activities, going to the dayroom, playing dominoes with others, interacting and engaging with other people! When I get to his floor, I see him out in the dayroom, playing dominoes and seeming to be enjoying himself UNTIL he sees that I am there. Almost immediately I see his attitude change, he starts getting pissy with his playing partner and with me. So I take him downstairs to see my uncle and within two minutes, he's saying he wants to go back upstairs. As we are going to and fro, he's telling me how much he hates this place, etc. By this time I've realized what he is doing and I start to become a little detached and when he clams up and won't pay attention to me, I decide it's time to go. So, as I'm leaving, I run into another CNA and she begins telling me the same thing - about how he's engaging and going to activities...and it really begins to sink in that he's putting a guilt trip on me because he knows how I feel about him being there. I am the one that cries when it's time to go cause I don't want to leave my father someplace he's not happy.
So as this realization came to me, I begin to get angered that he is taking advantage of me like this! So do I say something about it to him or just let it ride and just keep in mind what he's doing? I feel so stupid for not seeing this earlier!
Even in a good new life, you may still be reminding him of his losses, just because of your past connection to them.
You have the Blessing of observing and knowing that he IS happy in his new world, even though he still reacts to a reminder (you) that there was once something else.
SO- less reason to react to feelings of guilt. We all have them.
Most importantly, let yourself off the hook, deep down you know he is where he should be and you have done the right thing for him, sounds like he's thriving, your the one grieving his change and you have every right to but experience it as grief not guilt.
One other thought, has he always been a complainer? I mean my FIL wasn't happy unless he could complain about something but only to his family not as a general downer to the world, some people are just like that or feel insecure or not recognized or think they are supposed to suffer to be good people or something throughout their lives and it's their way of making sure the people they love know how much they sacrifice or suffer.
We do what we have to. He is 83. Why is there more Dementia? Because people are living longer. When I graduated 50 yrs ago the life expectancy was 65 to 70. Its now Seniors caring for Seniors. In ur situation, u probably work.
You did the right thing. I heard an aide say "they brought him too late". This was concerning a man who was brought to the AL in his later stage of Dementia. All he wanted to do was get out. Maybe if they had placed him in an earlier stage, he would have adjusted and as he worsened more likely to except the place as home.
In a perfect world it would be nice to have a parent in our homes. TV always pictured people with senility as just sitting quietly. Where in reality, they have to be watched like a child. Bathed, toileted, and messes cleaned up. Always on ur toes. The minute u sit down, ur needed for something. It takes a special person to caregive. I was not one of them.
Your dad's dementia is what's making you sad and cry. You would be crying even if he were still living at home. You miss the man your father was just like my husband misses the man his dad used to be.
I agree that you should not interrupt his activities. Get the schedule and visit him when he's not in the dayroom but rather in his room or before a nap.
I guess we're all doing the best we can, huh?
Good luck!
But thank you all for coming to my aid, it means a lot to have such a group care enough to explain things to me in this new world I'm dealing with.
But I am so glad that you have!
I doubt if your father is consciously or deliberately doing anything to make you feel bad. Maybe, I don't know, the two of you got into a sort of negative feedback loop - your caring about him is important to him, he gives you these little yelps of dissatisfaction, you respond, he continues the yelps. But actually - he's fine! He just wouldn't want you to think he no longer needs you at all, or that he hasn't noticed that *you* have anxieties about how he's doing; and of course he can't admit that you and everyone else were right all along, and he was wrong, and he should have made this move years ago..!
Say nothing to him, just nod and smile or look concerned, as applicable, and be glad to know that (at least when you're not looking) he is thriving. It's all good!
Try accept the situation you can't change it. Try to change your thought patterns. You know his ok safe and engaging with others, this is all positive. Put your hard hat on, take the guilt trips on visits them put them into a virtual bin in your head when you leave and get on with your life.
I have been dragged down by my mother's manipulation for years and now I'm seriously ill. I wish I could have changed the way I dealt with it and let it affect my health a lot sooner.
Good luck x
Most elderly want to be back in their homes, luckily for you he is at least getting involved there instead of laying in bed all day.
I's just part of the process...
Now I'm looking forward to my next respite because now I feel like I can actually relax......... Thank God for Hospice.
As far as Nursing Homes, the local ones in my area are terrible, mom hates the nursing homes and personally so do I, If you got into a good one count your blessings, far too many nursing homes are way to overcrowded and understaffed.
Listen to the Nurses they are on the front lines they know whats really going on.
It is helpful to remember he is say 83 acting like a 3 year old .... they are all into get what they want [or think they want], when they want but with some added life experiences to help them do their manipulating to a degree that a 3 year couldn't
She loved all the activities & mixed with the other residents!
I just would play a long with her & say are you not having fun, your playing bi go, watching movies etc.
You would be very lonely by yourself & leave it at that!
The nursing home & staff were so very good to her &
that was all I could ask for!
I wouldn't bring it up as the conversation probably won't get you anywhere and it'd be just a circle of frustration for you both. The important thing is that he is happy there...when you're not there to trigger his petty side (we all have that side). More than the aides telling you he's happy, you have witnessed it for yourself.
No need to call your father on it; won't do any good. Don't react, as much as you can help it. Take the complaining in stride, be matter-of-fact. Take comfort in knowing he's cared for, happy and doing well in your absence!
I see that you now realize most/all of this is bogus. Good! You obviously found a good place, where, despite what he tells you, he IS having a good time! Whatever the reason is, many elders do the same thing, complain complain complain, but meanwhile, when you aren't there, they are having a good time, enjoying food and activities, companionship, etc. You are not crazy or stupid. Until you hear the positives from staff or can observe unseen for yourself, how would you know? Previously you only had his "word."
Before even moving to MC, suggestions for Meals on Wheels (wouldn't even consider eating it, because it is crap!) or AL (Paugh! I wouldn't live in one of those places, even though before dementia this WAS part of her plan!!!) were met with disdain. She was convinced that she was "fine, independent and can cook." We tried starting out with 1 hr med/sanity check aides (minimum for service) and planned to increase when needed, but after a few months she refused to let them in, so off to MC mom! We had to come up with a ruse to get her to go (used the cellulitis she got just prior to the move), and she was STILL madder than a wet hen, wanted to know why they don't help people who need it and leave her alone! She IS/WAS the type to complain about whatever to me/us, but not to the outside world so much.
You: "I had already decided not to say anything to him because he wouldn't remember 10 minutes later."
This IS the right way - saying anything to contradict or correct him will not sit well, won't be remembered and will have to be repeated each and every time (maybe multiple times in one visit!) Best to let it slide.
Since you are now aware of the "game", it will be easier for you to let the guilt roll off, or avoid it altogether. Even non-complainers can fall into this charade. Something you can work on is to deflect his complaints. If he says the food is terrible, reply with a tsk-tsk and say you'll check with the chef about the food, then change the subject to something unrelated to the place, perhaps something he enjoyed doing prior to his dementia? Same thing if he complains about the care provided, activities, etc. Commiserate, say you'll ask about it and change the subject. Very often (not always) redirection or refocusing them onto something else can derail those negative rants. It might take some time and effort, but if you can get him on another more pleasant track, it might help. This is very much like dealing with a toddler who won't comply or behaves like everything is bad!
"... in this new world I'm dealing with." The brave new world, definitely a NEW place for most of us!
((((as for the person who wrote we are seeing more dementia because we are living longer... this may account for some cases, but my paternal grandmother was into her 80's when she died, my maternal grandmother was late 70's, neither with dementia, my dad was about 83 when he passed - he *may* have had dementia, but it was probably related to medical/heart issues he underwent several times, mom was over 90 when her stint with dementia started - and hers can possibly be attributed to long time need for BP meds AND serious hearing loss. The jury is still out on why so many are suffering from this affliction.
"In 2014, there were 72,197 Americans aged 100 or older, according to a report from the Centers for Disease Control and Prevention. That number is up 44 percent from 2000, when there were only 50,281 centenarians."
MANY of these centenarians are still quite capable and still have their mental acuity. The saddest part is seeing those who are late 50s/early 60s or even early 70s developing some form of dementia. This has NOTHING to do with living longer, as the life expectancy in the US is just under 80! Try telling those family members how their LO is suffering because they lived too long.)
Your dad will thrive ! My mom has always made me feel guilty about everything. It’s taken me, and it still bothers me, a long time to to accept this. Our relationship is so much better now because I can walk away and breathe. Appreciate the time you spend with him. Cherish the good days and forget the bad. That’s really all you can do to get through this. ❤️