My mother was moved from assisted living side of facility into Memory Care 8 months ago. About 5 months ago, one of the male residents, who is an unassisted walker like my Mom, started entering my mom's apartment (really just one room and bathroom) infrequently. There are no locks on doors or security cameras either. Then a month ago it started becoming more frequent. Sometimes he follows her after a meal, but occasionally he is lying in her bed when she returns. Three weeks ago, it escalated with my Mom (mid stage dementia) accusing the man of pushing her (no physical indication and she didn't fall) when she told him to get out. A report was filed with the state, by law.
Last week I talked with both the MC director and executive director about how to discourage the behavior. I emphasized that he's invading her privacy, and I'm concerned for her mental and emotional well being. They only had 2 suggestions: put up a physical barrier in front of her door, a "stop" sign of sorts or a paper STOP sign on her door. I opted for the latter, but said he needs to be monitored too.
Since this conversation, he has entered her apartment twice (I've documented each incidence). Before lunch my Mom was in her bathroom in her apartment, and he opened the door while she was still in there! (This is the 8th incidence!) I feel like somewhere in this gentleman's brain he has an inkling of what he's doing.)
My mother informed a staff member who said they would tell the director on Monday. I will also be calling them again about a better solution and I'll also call our state's ombudsman. I'm furious!
My Mom has anxiety each time this happens. Any other suggestions?
Please make them take this seriously, My dreadful father defrauded his way into respite care, bragged to me that he had sex regularly with a woman with dementia who couldn’t remember it in the morning. Ha! Ha! Big Joke! Her family found out and removed her, from a nice facility where she was very happy, until my dreadful father moved in. Staff talked about ‘rights for sexuality to be respected’. My dreadful father did nothing that needed to be respected, and he knew exactly what he was doing. Just know that this can get a lot worse.
CM and ‘get thee to a nunnery’. There are some threats that are just as bad as a nunnery, eg my dreadful father. Interestingly, when he got himself into trouble just before a trip back to the UK, he booked himself into a monastery retreat, just up the road, to protect himself from the fall-out. A pity we couldn’t have done the ‘get thee’ and also a ‘stay there’.
If there were segregated facilities at her MC, I would have opted for those. Just to alleviate one more fear.
Not that her list of fears wouldn't just substitute another one. Right now, here's the list:
Trees
Fire (Spontaneous combustion, electrical cords, non-working alarms (which, of course, they all work...and on and on.)
People peering in the windows (no one walks on that busy street)
People peering down her shirt (not possible. She only wears turtlenecks.)
Meat being secretly put in her self-imposed fish-only diet.
Not being called to meals (Doesn't happen. Never has. She has ALWAYS had enough to eat, before and after dementia)
Meds haven't helped yet.
This is a long post to say, yes. I would vote for segregation of sexes in MC in our situation.
Try tackling the issue from that end as well.
Some of the responses I read to both our questions suggest moving our mothers to another facility, though, clearly, the AL/MC failed in their duty to keep our mothers safe. What about the "community/move-in fee"? That's a lot of money down the drain! And, then to have to pay it all over again at the next facility. Does anyone know if it is reasonable to expect reimbursement of this fee when the facility has been neglectful?
Clearly, this man's attention is unwanted and the staff in your mother's place are charged legally with protecting her.
I think that having a serious talk to the administrator/director about her safety and personal boundaries as it relates to their obligation and your need for having confidence that your mother is safe in your absence is necessary. The sooner the better. Keep records of all conversations on this matter: whom you spoke with, what they said and when. Sometimes just showing that you're paying careful attention and holding them accountable is enough.
If that course of action doesn't show progress, make sure you document it and take a step to warn administration/ director that you feel you are going to have to take the matter a step further and go to an ombudsman or other legal counsel.
If you do seek outside counsel, you'll have documentation and that will help a lot.
My heart goes out to you and your Mother. Please keep us updated as to how it's going.🌺🌻🌼💮
I suppose the issue is how much of a risk is it and the other issue is do the staff set their standards too low?
Care homes remind me a bit of boarding schools. There is a level of "borrowing" and "visiting" that could equally be termed "stealing" and "intrusion" depending on your perspective and like boarding schools the management may or may not admit there is an issue but they do succomb to external pressure in order to stay in business, so the onus is on you to push for change.
One thing to check out is whether your mum chats to this guy or not in public areas. Are they friends or does she find him a nuisance generally? He may think they are together because their interaction reminds him of his marriage. It is sad but protecting your mum is your priority, of course.
Good luck.
I asked the staff to remove him but they said he was too ornery and difficult, (and he was)
I said if they dont remove him, I will forcibly remove him myself (I am 6 foot three, 230, and a body builder). They sprung into action.
Serious WTF from the higher ups there.
The guy may very well be totally gone mentally except for, perhaps, interest in a woman. It is very, very common for dementia patients to become obsessed about spouses having affairs, believing someone is interested in them, and can go all the way to acting out sexually. They need to nip this in the bud before he takes it to a different level with your mom. Put them on notice that their responsibility it to protect your mother and a paper sign on the door just 'ain't gonna cut it'. Call the ombudsman's office if they can no give you a very clear, detailed plan on how they will prevent this from happening again. They should not have put your mom off until Monday either. It's a repeat problem and they should have called you and the director immediately.
Maybe they should put the paper sign on HIS door that says don't come out of this room. He should be limited to a large group area where someone is watching him at all times and not allowed to wander other halls. Maybe move his room next to nurse station so they know where he is all the time. At any rate, that is there problem to resolve
By they way, ask to see the records for your mom so you have proof they have recorded all 8 of the incidents. You want a copy of those reports.
That said, my mother loves to call attention to herself, then gets annoyed when a certain male resident pays attention TO her. He knocks on her locked door which sends her over the moon with agitation and anxiety. The ED and I decided we'd move a large chair from the common room nearby in front of mom's door so the annoying gentleman couldn't reach it....hes wheelchair bound. It took about 3 weeks or less for him to forget all about his interest in my mother and now, the chair is no longer necessary.
The ED either works with you or you move mother OUT. Signs saying keep out don't usually work because people with dementia don't pay attention to Signs! What may work is buying a round black rug that looks like a manhole cover and placing it at mom's front door. Many people with dementia will perceive that rug as a real hole and be afraid they'll fall into it if they proceed to walk over it. Look on Amazon....its cheaper than moving her out.
Good luck!
She will not cross the yellow banner.
If she asks me about the yellow banner, I tell her the men are coming back to finish the repairs next week. And she shrugs and walks away.
Good Luck.
I was perturbed when I spent a couple (all I could tolerate) weeks in a rehab myself. My "roommate" on the other side of a wall spoke a foreign language and a gentleman resident apparently thought she was or reminded him of his wife...so he at least once a day would wander into our "suite" and head for her side of it, which made her scream GET OUT. I was on alert and would push the call button which usually brought staff who would escort him out. They were quite casual about it and knew about him. IN fact others in the hall would try to redirect him if they saw him heading her way. I asked at one point when they said where his own room was, if they couldn't stop him as he made his way around the corner and they responded that a post blocked their view so they couldn't see him go by. BS. Your mother's safety and comfort comes first. She's lucky to have you as an advocate. Definitely find your local ombudsman and call and if they tell you any other actions you can take do so. I don't know if legally you have a right to install a lock, but that would be my first effort for mom's peace of mind. Just make sure to have duplicate keys and note who has one...mom, yourself the staff....
How would one go about installing the nanny cam when you can't get inside the apartment? Have the maintenance guy do it?? Ha, ha...
Can she keep her room door locked?
This man has to be dealt with before something abusive occurs.
Keep reporting and complaining.
I would plan to move mom as soon as possible.
How do other facilities handle this kind of behavior?
The locks could be opened by staff keys or a quarter, which sounds weird. But, it was a great relief to know we could check on my ILs easily and spontaneously, but it hampered the wanderers and sticky-fingered, while giving a small measure of privacy in a place where privacy is further down the list of priorities.
Regardless of what is happening, I would be concerned that there is no way built in to their facility to keep unwanted visitors out of her room. This is an easy and obvious fix.
On the flip side - and since it hasn’t been brought up yet - is the reality that dementia sometimes causes paranoia and confabulation. Many of us have had our elders share disturbing stories that felt very real to them, but were happening in their head. Throw in rumination and these situations can go on for some time.
I don’t know how compromised your mother is. I also don’t know how much of this you have been able to verify. It is incredibly difficult to verify this type of thing when people can’t get in to facilities spontaneously anymore to check on their parents.
Maybe the facility is negligent. You have much good advice on how to move forward if that is the case.
I tread lightly here, but wanted to throw out another possibility.
I know from our experience how many times my ILs were absolutely certain (and could describe in detail) people who were following them, looking in their windows, watching them go to the bathroom, etc. Each time their minds were playing tricks on them. Sometimes, these “imaginings” stemmed from something they saw on TV or an event that started small (like a caregiver walked into their room) and mushroomed into people watching them as they slept (no one was). They were in our home at the time and we were with them almost constantly and could easily verify what was reality and when the mind was being “tricksy”. Sometimes, we could discern what sparked the delusion. Sometimes, not.
Again, this may be a very real thing. Some of how you handle it depends on your past experience with the facility, etc. Sketchy stuff historically? I would be more inclined to think that the shenanigans are real. But, if the facility has been competent and responsive, I might work to get a little more information/verification from something outside of your mother’s reports. Sometimes facilities get stuck because kids don’t think their parents could possibly be making things up... (the “I know my mom would never...” mirrors the “I know my kid would never...”). But, dementia is like the light bulb with a not-quite-broken filament. The bulb can flicker off and on. Because it does, it can be challenging to discern what is really happening in their heads. With dementia, obviously it isn’t a lie. To them, it is very real. And the facility should absolutely be concerned that she is experiencing such fear and taking steps to mitigate it.
Just food for thought. You are already obviously an excellent advocate for your mom. If you have already ruled this out as a possibility, feel free to ignore:)
That said, I think the staff is being negligent in deterring this man. Let them know it must be addressed and stopped immediately or you will take legal action. Your mothers safety and well being is being violated. Keep us posted!