Last year, my 88 yr old Mother came to live with me and my family. She has been sick throughout the year, in the hospital, then rehabilitation. Currently, I am primary caregiver and handle all transportation to doctors and PT.
During the pandemic, I sold and purchased a larger home with first floor master, so I could move in all her furniture. She insisted she wanted her furniture if she was giving up her own home.
Her furniture and all her belongings are part of her trust so I will not receive her property.
Why is it now, I feel guilty that I have this beautiful home and receive $1000 a month from her to help with living expenses?
I have six siblings that all support this arrangement to varying degrees. However, no other sibling could care for her, plus Mom refuses to live with anyone else.
Help? Do I share this guilt with my siblings? I wish I could have done all this without her help. But I can’t. I know my logic vs emotion are conflicted.
Why on earth do you feel guilty? You had to stop working to do this. And now she's only giving you $1000/month? What does that work out to be for an hourly rate? Is this an official caregiver contract with taxes taken out? I hope so.
Why are you feeling guilty about your house? Who paid for it?
Your siblings should be the ones feeling guilty, because they are getting one heck of a deal getting out of doing anything by your getting the measly pittance of $1000/month for taking care of your mother, "who is 88 years old, living in my home with age-related decline, anxiety, arthritis, hearing loss, heart disease, incontinence, mobility problems, osteoporosis, and urinary tract infection."
Do you think your Mother should receive hands-on care & housing from her offspring - no matter the financial burden to them?
I know my Dad did. So it caused him guilt that he could not provide this. (House still full with children, was still employed full-time etc).
If your “guilt” is because you are receiving the money, consider the fact that however much more help you will need to continue to maintain her level of care, the amount you are receiving is nowhere NEAR what her expenses would (or will) be if she ultimately needs 24/7 care.
Consider also that Mom’s right to “refuse” is based on her ability to make valid decisions and manage her own welfare realistically and lucidly, which can vary/change in a short time span.
Finally, whatever you have done “for her comfort”, may or may not continue to work for her as her other circumstances and general health continue to change.
So the guilt? It doesn’t really serve anyone well, least of all you or your mother. The only real concern is keeping fastidious records concerning where the $1,000 goes, so that it is CLEAR that your mother receives $1,000 benefit from her “donation” every month. Perhaps input from an accountant of financial manager or lawyer can help you with this. Consider your goal to be allowing the guilt to dissipate, rather than whether or not to share it. That’s because what you do with love and research and planning may not result in perfect solutions (there aren’t any) but may be the only choices you have.
What is it that you have done wrong? You bought a larger home to welcome her and provide for what she wanted. You've taken her in and care for her. You've given up your job, which will reduce your own future finances, perhaps jeopardizing your own needs.
If mom is agreeable to this arrangement and your siblings are *more or less* supportive, what's to be guilty of?
Enjoy your mother while you can. Enjoy your lovely home. Make the most of it all while you can! The only caveats are those others have mentioned. Hopefully the payment and conditions for it have been documented legally. IF she is paying for care you provide, you should have a care-giver's agreement, also drawn up legally AND should be having all taxes withdrawn (State, Federal, SS and FICA (covers a lot, but includes Medicare.) Elder law atty can help with documents and perhaps with providing tax information. I use an IRS Enrolled Agent, who has to stay up-to-date with ALL IRS rules and changes. He doesn't charge any more than the local Blockheads AND knows what he's doing! Since you would be considered self-employed, you could probably pay these as quarterly estimates - a good tax person would be able to advise you.
Also, if you manage her SS funds, you should (if you haven't already) sign up as rep payee. While one *can* manage her account where the SS funds are deposited, SS does NOT accept this. I took over mom's account and paid her bills with it, but when we moved her to MC and planned to sell the place, changing address became a problem. Federal mail can't be forwarded and without being her rep payee, I couldn't make the change (POAs do NOT work for federal entities.) Legally it is the only way one should handle any other person's SS funds (clearly spelled out in the documentation that came with the application and approval!)
Try to let the guilt feelings go. You are doing your best to care for her, you have siblings who don't seem to be fighting you or bucking the system, and all seems relatively great - relish it all!!!
(EDIT: also, $1000/month is PEANUTS!!! Mom's MC place is over $8k and NH estimates would be likely double that! If it's for her care, that's only $33/day - you couldn't hire much more than 1 hr/day help, if that, for that kind of money! If it's to offset the cost of a larger home to accommodate her, then she's still getting a GREAT deal! Could she rent even a small apartment for that amount? Probably not, but she also gets a bonus caregiver for her "rent".)
Why would you want to deny her the right to contribute funds for her expenses? She isn’t asking for charity.
Please don’t feel guilty. You aren’t a lottery winner with tons of money. So, you are entitled to money that is being used for legitimate living expenses.
My bros were clueless about the cost of MC, right up to the first place we checked (I had lined up two places to check, OB came up to view and YB came up with this new place just before our day to check!) We met for a bite to eat and discuss, and BOTH said "Gee, for that kind of money, I'd take her in!"
I knew nothing about dementia before I realized mom had started down this path. Started my research and continue to learn new tidbits now and then, so I was aware it wouldn't be cheap (it really can't be - while some are puzzled why so much, they don't take into account everything, not just the care for mom or pop. The cost of the building, food, food prep, heating, cooling, electricity, admin, cleaning, laundry, etc. adds up! If you average it by day, 8k would be about $267, but by the hour it's about $11. The actual people who provide the care probably don't get much more than that for hourly wages. Home care, 24/7 at the low end would be about $25/hr, totaling $18k for the month, but then add in all the costs of the home too, plus hourly rates go up for nights, overnights, weekends, holidays, etc. That's just for CNAs - nurses, if needed, are even more expensive!
Anyone who balks at payments like these need a serious reality check - provide costs for facility and in-home care, and show them the "real" cost of care... Then there's the physical and emotional cost in many cases - not all encounter this, but enough do, so it needs to be addressed as well!
$1000 ($12,000 a year) is actually less than half of what most healthy retirees live on a year 30-35k.
sounds like you’re giving your mom a beautiful life, and a comfortable place, with her family. Assisted-living, and nursing homes, are astronomical which you probably know, also with all the shut downs, everyone is isolated which is heartbreaking.
I guarantee her expenses would be a lot higher if she lived in a house.
Currently figuring this out for my mom, and her expenses are out of control living on her own.
Sometimes it gives purpose.
My grandpa (96 yro) paid rent to my parents, he loved it. He also did a little projects around the house and fixed things all the time and it kept him active. He liked the feeling of being able to contribute.
If you’re feeling super guilty I would take a look at her finances to make sure it’s not over something she can afford. If it is may be adjusted a little bit to her income?
I had a shrink once who said "You can divide the world into two lines. One line feels that they are not responsible to anything that happens/ed. The other line feels that they are responsible for EVERYTHING." I asked her which line I should get into and she said "Well, I don't know yet, but that second line is easier to treat". I suspect you can get in that second line. So relax. Be easier on yourself. You are the "responsible one. Responsible to expect herself to do everything, and responsible for everything that goes wrong, and nothing that goes right".
If you only need REASSURANCE, come here for it. We can tell you. Or go to friends. The family? Nah. There will be ENOUGH family trauma. Don't go there.
If you need the money get past it.
Can you Mother afford to give you $1000? She would be paying rent somewhere. If she can afford it just say thank you.
If your siblings have their heads screwed on, they probably already know they are getting a bargain. Did your mother also contribute to the capital cost of buying the new home?
I hope you have looked ahead to what happens when your mother begins to need a higher level of care. If you haven't already discussed this with your mother and any siblings she would like involved in the planning, do so. You will save a lot of stress and trouble by figuring out the time, costs and work required in advance, and thinking where you might find additional resources. Nobody can do this single-handed.
Why do you feel guilty for doing what others in your family will not do???
My YB moved mother in with him 23 years ago. When she passes, each of the rest of us will inherit $9800. We're ALL just giving the money to YB. He has not been paid for all these years, and mother has pretty much ruined his personal family dynamic. Not out of spite or anything--anybody who lives with you 24/7 for 23 years is going to impact the family dynamic.
I'd feel guilty if I DIDN'T give YB my small inheritance. We also 'sneak' money to him as he has not been able to work a 2nd job (he's an EMT and all of them have to work a side job--he has not been able to). End of the year, the 4 of us sibs who can, usually gift him between $1K-5K. He doesn't know it's from us--and he wouldn't take it if he knew.
Every ti.e that thought comes in your head, you have to immediately think of something else and move on. Dont forget to take time for yourself. That is paramount so you can take care of her.
Are you sure that guilt isn't coming from siblings?
Your time is worth something. So you should be paid. You are with her 247.
You should be happy you get to spend time with her. Dont let siings guilt you. Notice how they didnt step up. Id make them put in time staying with her so you get mental breaks too. Good luck
As pointed out by others, Assisted Living would cost plus or minus $5K a month.
You are an angel in disguise.
Grace + Peace,
Bob
If you cannot deal with this 100% level of care, you will have to get her on MEDICAID for nursing home placement. And by acquiring her monies you will have a 5 year look back law to deal with. This is considered "gifting" because you did not do it right.
I suggest you go to an eldercare attorney and get financial issues resolved. A CAREGIVER'S CONTRACT including tax attorney to set up a corporation for maximum deductibles, that she becomes your employer so Medicaid will not penalize her. FURTHER, estate planning includes property.
ANYTHING that goes into PROBATE, Medicaid can seize due to Estate Recovery Law.
I miss mum, but you have no idea what you are getting yourself into and I can only advise look and plan ahead.
I was overseas when sibling contacted me telling me it was a necessity for me to return and assist. I was wrong not to insist on an outside “assessment of need” as well as use a eldercare lawyer to arrange specifically what my role and compensation would be.
YOU SHOULD NOT FEEL GUILTY. Be thankful your mother validates and appreciates your efforts. I WOULD STRONGLY advise the use of an elder care attorney to make sure all is in order—especially with regards to “gifting”. They know how to arrange things in case of the Medicaid look-back thing
I fortunately my father has used that has his “weapon of choice” for not wanting to pay me...and I have given up in a care-giver agreement. (It’s “too much to handle” with the taxes and all....).
I got a job at 16 and never took a dime from him since...no sense starting at age 63! Instead, after being here for 15 months, I will be moving to a close-by apartment and volunteering my cooking and driving services. Beyond that, they can hire the help they may need.
The eldercare lawyer was extremely helpful in reviewing their will and finally putting in place POA...as well as explaining the “gifting” and potential Medicaid issues.
It sounds like you have an appreciative mother and supportive family! Be thankful!! (But do see the elder care lawyer!!)
Why does your brother have the right to call you to tell you what to do while he is free to do as he pleases?