Last year, my 88 yr old Mother came to live with me and my family. She has been sick throughout the year, in the hospital, then rehabilitation. Currently, I am primary caregiver and handle all transportation to doctors and PT.
During the pandemic, I sold and purchased a larger home with first floor master, so I could move in all her furniture. She insisted she wanted her furniture if she was giving up her own home.
Her furniture and all her belongings are part of her trust so I will not receive her property.
Why is it now, I feel guilty that I have this beautiful home and receive $1000 a month from her to help with living expenses?
I have six siblings that all support this arrangement to varying degrees. However, no other sibling could care for her, plus Mom refuses to live with anyone else.
Help? Do I share this guilt with my siblings? I wish I could have done all this without her help. But I can’t. I know my logic vs emotion are conflicted.
I am a carer to both elderly nearly 90 year old parents in their own home. Meals, cleaning, meds etc. It’s all on me. I have siblings and they know I am gifted $900 a month by my parents. I’m honest with them about it. Best way in my opinion. If they don’t like it too bad. They are welcome to the job but are happy not to have that burden.
I know because I cared for my 89-year-old mother for five years and yes, I was paid $1000 per month for her care about the last year or so. My dear Mom lived with hubby and I for five years, the first few years I was able to work and did not take payment.
Please don’t feel guilty, caregiving is tough tough business, and if this little bit of financial resource helps, then accept it graciously, without guilt. Again, you are providing your Mother with something priceless.
Regarding sharing your guilt (which I hope you learn to shed) with your siblings, I probably would share it with your friends or your spouse or even a therapist. No need to drag siblings into this as sometimes it’s best to just handle things without involving them otherwise things tend to get too complicated.
On a personal note to you. As I said previously, caregiving is tough business. We don’t talk about it, we are not educated on it and typically we have no experience doing it. I look back on my life and caring for my Mom was absolutely one of the most difficult things that I have done, even though my mom was a joy it was like having a toddler at my age (late 50’s) due to her dementia. Having lost my sweet Mother in January, I look back and I would have had it no other way. I miss that lil’ lady so much and I feel so blessed to have had her living with me her last year’s here on earth. It was an honor to care for her and an absolute privilege to love her. You are doing a great job!
As far as feeling guilty; you are doing SO much for your Mom both emotionally and in physically caring for her needs, I think that financial help is her only way of contributing, and it probably makes her feel useful. It's easy for a stranger to tell you that you shouldn't feel guilty, but getting some financial compensation is perfectly acceptable for all that you do. So try not to let guilt consume you, and hang in there.
Sincerely,
Been there Done that
I was overseas when sibling contacted me telling me it was a necessity for me to return and assist. I was wrong not to insist on an outside “assessment of need” as well as use a eldercare lawyer to arrange specifically what my role and compensation would be.
YOU SHOULD NOT FEEL GUILTY. Be thankful your mother validates and appreciates your efforts. I WOULD STRONGLY advise the use of an elder care attorney to make sure all is in order—especially with regards to “gifting”. They know how to arrange things in case of the Medicaid look-back thing
I fortunately my father has used that has his “weapon of choice” for not wanting to pay me...and I have given up in a care-giver agreement. (It’s “too much to handle” with the taxes and all....).
I got a job at 16 and never took a dime from him since...no sense starting at age 63! Instead, after being here for 15 months, I will be moving to a close-by apartment and volunteering my cooking and driving services. Beyond that, they can hire the help they may need.
The eldercare lawyer was extremely helpful in reviewing their will and finally putting in place POA...as well as explaining the “gifting” and potential Medicaid issues.
It sounds like you have an appreciative mother and supportive family! Be thankful!! (But do see the elder care lawyer!!)
Why does your brother have the right to call you to tell you what to do while he is free to do as he pleases?
If you cannot deal with this 100% level of care, you will have to get her on MEDICAID for nursing home placement. And by acquiring her monies you will have a 5 year look back law to deal with. This is considered "gifting" because you did not do it right.
I suggest you go to an eldercare attorney and get financial issues resolved. A CAREGIVER'S CONTRACT including tax attorney to set up a corporation for maximum deductibles, that she becomes your employer so Medicaid will not penalize her. FURTHER, estate planning includes property.
ANYTHING that goes into PROBATE, Medicaid can seize due to Estate Recovery Law.
I miss mum, but you have no idea what you are getting yourself into and I can only advise look and plan ahead.
As pointed out by others, Assisted Living would cost plus or minus $5K a month.
You are an angel in disguise.
Grace + Peace,
Bob
Every ti.e that thought comes in your head, you have to immediately think of something else and move on. Dont forget to take time for yourself. That is paramount so you can take care of her.
Are you sure that guilt isn't coming from siblings?
Your time is worth something. So you should be paid. You are with her 247.
You should be happy you get to spend time with her. Dont let siings guilt you. Notice how they didnt step up. Id make them put in time staying with her so you get mental breaks too. Good luck
Why do you feel guilty for doing what others in your family will not do???
My YB moved mother in with him 23 years ago. When she passes, each of the rest of us will inherit $9800. We're ALL just giving the money to YB. He has not been paid for all these years, and mother has pretty much ruined his personal family dynamic. Not out of spite or anything--anybody who lives with you 24/7 for 23 years is going to impact the family dynamic.
I'd feel guilty if I DIDN'T give YB my small inheritance. We also 'sneak' money to him as he has not been able to work a 2nd job (he's an EMT and all of them have to work a side job--he has not been able to). End of the year, the 4 of us sibs who can, usually gift him between $1K-5K. He doesn't know it's from us--and he wouldn't take it if he knew.
If your siblings have their heads screwed on, they probably already know they are getting a bargain. Did your mother also contribute to the capital cost of buying the new home?
I hope you have looked ahead to what happens when your mother begins to need a higher level of care. If you haven't already discussed this with your mother and any siblings she would like involved in the planning, do so. You will save a lot of stress and trouble by figuring out the time, costs and work required in advance, and thinking where you might find additional resources. Nobody can do this single-handed.
If you need the money get past it.
Can you Mother afford to give you $1000? She would be paying rent somewhere. If she can afford it just say thank you.
I had a shrink once who said "You can divide the world into two lines. One line feels that they are not responsible to anything that happens/ed. The other line feels that they are responsible for EVERYTHING." I asked her which line I should get into and she said "Well, I don't know yet, but that second line is easier to treat". I suspect you can get in that second line. So relax. Be easier on yourself. You are the "responsible one. Responsible to expect herself to do everything, and responsible for everything that goes wrong, and nothing that goes right".
If you only need REASSURANCE, come here for it. We can tell you. Or go to friends. The family? Nah. There will be ENOUGH family trauma. Don't go there.
$1000 ($12,000 a year) is actually less than half of what most healthy retirees live on a year 30-35k.
sounds like you’re giving your mom a beautiful life, and a comfortable place, with her family. Assisted-living, and nursing homes, are astronomical which you probably know, also with all the shut downs, everyone is isolated which is heartbreaking.
I guarantee her expenses would be a lot higher if she lived in a house.
Currently figuring this out for my mom, and her expenses are out of control living on her own.
Sometimes it gives purpose.
My grandpa (96 yro) paid rent to my parents, he loved it. He also did a little projects around the house and fixed things all the time and it kept him active. He liked the feeling of being able to contribute.
If you’re feeling super guilty I would take a look at her finances to make sure it’s not over something she can afford. If it is may be adjusted a little bit to her income?